Traditionally May is MCS and MCS/ES Awareness Month.
After decades of awareness raising, it’s time to move on to welcoming action and accommodation, don’t you think?
Are people with MCS/ES, often referred to as Human Canaries, actually welcome in this world?
If you are a person with MCS/ES, please share in the comments if and how you are being accommodated and welcomed (or not) in this world.
If you are a person who doesn’t have MCS/ES, please share in the comments how you are accommodating and welcoming people with MCS/ES into the world.
Seriously "Sensitive" to Pollution 
The Fragrance-free Checklist
includes
Checklist document in PDF
and links to:
Help for How to Be Fragrance-Free
So You Think We’re Being Difficult When We ask You to Change Products?
They Said I Wasn’t Fragrance-Free. How Can That Be?
No, Folks with disabilities, certainly including MCS/EI , are definitely not welcome in this world. At now 82, diagnosed COPD as a Child right after the Nazi bombing of my UK birthplace village. Coming to. my dear Canada as. a war Refugee in 1947 I was also finally correctly, ,providentially, diagnosed MCS in 1974. Throughout my “working” life I fought daily for simple disability accommodations, culminating just before retirement in a stressful, job related, MCS three year legal battle.,That ,at very least, enabled us to pay off mortgage for our safer home. Now in “retirement” the daily disability battle continues with deadly local woodsmoke invading that same home. Sad “politics and legalities” have continually confirmed the Hon. David Onley’s conclusion, for me and for millions…..”For most disabled persons, Ontario is not a place of opportunity, but one of countless, dispiriting, soul crushing barriers”.
(Colder May day today, west wind thus blowing the toxic smoke into our home yet again. I pray my faithful Lungs and Scottish Heart will enable yet another day marching with my bagpipes ,and with all those who love and support me. Thank you Linda. Thank you all.)
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Wishing you better days with more fresh air and no smoke and pollution. <3
As someone with MCS I would have to say no I am not welcome in the world. I’ve been tossed aside like trash by employers, potential employers, family, and so called friends. People tend to attack when you mention that their product choices are harming you. I have only had 1 person in my life choose me over their products, everyone else has chosen products. I’m housebound and struggle to get food that isn’t covered in disinfectant, perfume, or laundry products. I can’t even go outside because of constant neighbourhood laundry fumes. I can’t get help with anything, especially home repair and maintenance, because of products people use. How us anyone supposed to feel welcome in a world where they are constantly ill and then get attacked for mentioning it. Too many of us are jobless and homeless because we aren’t welcome in the world. I’m heading in that direction myself, through no choice of my own. It sucks so much.
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Sorry for my poor english… No I am not welcome in this world… Can’t go outside because of laundry and my neighbourd use plug in and open her windows even she knows that keeps me inside my home…The same thing for my grocery… everything smell perfume!! I have wrote to grocery head office about that and they say that they use products approved by Santé Canada. No way to live in this crasy world…I dont see my family except my mother, only one friend choose me but she lives far away. I had a cancer many years ago and it was nothing to compare with this….some days, I have regret that I survived…This condition is the worst thing I have to deal with in my live!!
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We’re welcome as long as we don’t inconvenience anyone. So, if welcome means accommodation, no.
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I would hope that once someone famous or someone with more political pull actually GETS mcs that that will turn things around and more be done. Awareness is STILL good. <3
My apologies in advance for what became a long (and cynical but accurately reflects current reality) reply.
I’ll repeat my take-away from what I am hearing is needed for progress so you don’t have to read the rest if you don’t have spoons:
“The only way to move forward is if enough people (that means us) realize all is lost unless we all speak up now, every where and every chance we have, since staying quiet is basically a death sentence, not just for us, but for future generations too.
People who are still somewhat comfortable, who are still managing to find ways to survive, also need to speak up now, because their comfort will not last, and their available solutions will be blocked too in the current trajectory”.
It’s up to all of us to show we exist NOW, and then our numbers can become a powerful force for change, especially IF we can cooperate, and also realize that actions to benefit the most vulnerable will benefit everyone who isn’t vulnerable yet, instead of just pushing for the low hanging fruit that benefit a very few.”
….
Over the years, a few famous people and/or celebrities have spoken up in some way or another, but it seems to be a career killer.
I suspect people are subjected to the same evil-behind-the-scenes campaigns from the oil, gas, and chemical industry (and others, like the wireless industry) as we have learned happens to scientists and others who report about or act to prevent pesticide and fossil fuel based harms, and reveal ways these and other industries are causing serious, long term harm to the environment and to all living beings that depend on the environment for life.
For some recent examples, look at what they do to Water Protectors, they use brutal military force on peaceful people who try to prevent their land and water from being destroyed, and their bodies from being poisoned.
Industries know most of those affected are unable to have or use our voices, and they have campaigns to discredit us, to sow doubt in people’s minds about sanity and legitimacy, and this prevents actions that would limit their short term profits.
We now know how the fossil fuel industry knew about climate change decades ago and actively worked to suppress progress in averting catastrophic consequences we are beginning to see.
The EHS groups, full of vulnerable people who experience serious adverse effects, were infiltrated by conspiracy theorists to deflect actual legitimate concerns about 5G and the widespread use of wireless devices. Very effective to sway public opinion. It has happened in the past with MCS too.
I just listened to a new May 12th webinar presentation, and it’s basically ‘yes, we’re studying things, but we need more proof’ and meanwhile there are next to zero research dollars available to get the proof… and any action plan needs to be cost effective… so…
When governments are in cahoots with the industries that harm us, what is most cost effective is to delay action with more talk and soothing platitudes until we’re all dead and unable to warn others whose health problems are so complex that causes and effects are not traceable.
…
The only way to move forward is if enough people (that means us) realize all is lost unless we all speak up now, every where and every chance we have, since staying quiet is basically a death sentence, not just for us, but for future generations too.
People who are still somewhat comfortable, who are still managing to find ways to survive, also need to speak up now, because their comfort will not last, and their available solutions will be blocked too in the current trajectory”.
It’s up to all of us to show we exist NOW, and then our numbers can become a powerful force for change, especially IF we can cooperate, and also realize that actions to benefit the most vulnerable will benefit everyone who isn’t vulnerable yet, instead of just pushing for the low hanging fruit that benefit a very few.
Thank you for your reply.