Tag Archives: MCS/ES

Gifts for People with MCS/ES

It can be hard for some people to imagine what a safe, non-toxic, emf or rf free gift could be for those of us who have MCS/ES (multiple chemical sensitivities / environmental sensitivities).

As always, ask the recipient  for details about specific allergies and sensitivities, as well as any precautions that might be needed to remove or prevent contamination, because many of these things come in a wide variety ranging from  safe (or just safer) to toxic and life threatening.
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Choices… We Always Have Some

When Toxics Drift

we end up with choices.

Sit outside for a little while to get some Vitamin D

or

Be able to think, wash dishes, and/or make something to eat

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Open Letter to the Ontario Minister of Health and the MOHLTC

Dear Minister of Health, we’re ready for action!

According to official statistics:

250,000 Ontarians had been diagnosed with MCS in 2014
and the discrimination is still systemic in 2018

SUBJECT: Accommodation for People with Disabilities

Honourable Helena Jaczek, Minister of Health (at hjaczek.mpp@liberal.ola.org )


On September 29, 2017,
Ontario  quietly released the report “Time for Leadership: Recognizing and Improving Care”  for those with myalgic encephalomyelitis /chronic fatigue syndrome, fibromyalgia, and environmental sensitivities /multiple chemical sensitivity  (ME/CFS, FM and ES/MCS). This report  was produced by the Task Force on Environmental Health for the Ministry of Health and Long Term Care.

The report found that throughout the Ontario health care system and in society at large, there is:

• a lack of recognition of the seriousness and severity of these conditions
• a profound shortage of knowledgeable care providers
• a dearth of clinical tools to support and guide care
• a discouraging shortage of services and supports for people living with these conditions
• an absence of support for family caregivers

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

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Canary Separates and Onesies aka Hazmat Gear

A few of us were talking about the steps some of us canaries have to take to be able to go places: masks, respirators, scarves to cover hair, lab coats, long skirts, outdoor only clothes that are removed before entering our safe homes, and clothes  that are  never worn inside due to picking up so much 2nd and 3rd hand fragrance contamination.

And  the removal and bagging for later washing of everything we did wear or have with us, and the showers we have to take as soon as we get home.

Then there’s the lunch kits and other accessories we need to pack, but that’s another blog post or three.

I’ve posted before about using tyvek suits, both to wear in order to protect us from exposures when we go out, or to have others wear to protect us from exposures to their products off-gassing when we need them to enter our space.

This time though, someone mentioned that they wanted to go to an event that lasted long enough that they would need to use the washroom while out, so a one piece tyvek suit wasn’t going to cut it.

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There Is No Right to Wear Fragranced Products

“there is no right to wear fragranced products”

Accommodation for Environmental Sensitivities: Legal Perspective
2007 Canadian Human Rights Commission

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tis the season

Wishing you all some Happiness during the  Holidays!

May all beings have clean air, clean water, healthy organic food, and safe and healthy shelter! All that and love, lots and lots of love!

Acts of Festive Kindness

Christmas, Birthdays, and Other Holidays with MCS/ES

For most people, these special occasions are times of joy and celebration in the company of friends and loved ones, but for people with invisible disabilities and chronic illnesses like MCS/ES, they can be sad reminders of the lives that we no longer have  access to.

We are still seldom  included in the festivities and are usually left alone to fend for ourselves. Unfortunately, since human beings are social beings, not everyone is well equipped to self occupy, and  some people become seriously depressed and even suicidal because of this.

To realize it’s because some friends, family, neighbours, and co-workers prefer to keep using certain products instead of using other products so we can safely be around them and enjoy their company,  makes it even harder for us, knowing they care more about the products they buy than they care about us. It’s a heart breaking thing to have to live with.

 

  Thankfully, not everyone chooses products over people 

 

Before I became too chemically injured to socialize in crowds, I had a wonderful friend who happily made the effort to make her place and parties safe for me!

In 2005  her invites were all sent out with these words:

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