Tag Archives: migraines

What Now?

 

A brief account of a seriously “sensitive” to pollution person living in a society where fragranced and toxic products are more important than lives, where disabled lives are disposeable, where it’s now easy to be euthanized (even for for externally imposed and inflicted) suffering, but not to receive support to remove the causes of suffering, causes and conditions that have been made systemic for many people with disabilities.

I’m not a poet and I know it and I wrote it anyway…

What Now? Continue reading

MCS Awareness Month fb Page

May is MCS Awareness Month, and there’s a new fb page just for this!

If you are on fb, please go “like” the new page, and then click on ‘following’ to choose “see first” so that you can see all the curated material that will get shared over the course of the month, making it easy for you to ‘like’ and share the posts with your fb (and other social media) circles.

As many have noted,  much of the world has had to adopt a ‘lifestyle’ much like we human canaries and other people with disabilities have been living for years, albeit without so many of the additional challenges that disabilities and chronic illnesses bring to surviving daily life.

It would be nice to think that this small taste of what we have been living for a long time will bring about more compassion, empathy, and changes of heart that will inspire people to remove accessibility barriers and welcome us in the world when everyone else is released from isolation.

To that end, we need people to know we exist, as more often than not, there is little to no understanding, or it is trivialized. Sharing info on social media is known to create change, so let’s all be a part of making a better, healthier, and accessible world for everyone.

p.s.

Please leave a comment here if you know of any other groups or people who have organized events or material for MCS (and related) Awareness Month 2020, so that we can all support each other.

Accessibility STOP Signs

I ran across a sign that the lung association had created, and while I am glad they are doing something , I found the message and visual required some tweaking.

Of course, the lung association didn’t come up with the term “sensitive”, it’s what is used in human rights laws, but it seems to have created an impression in the public’s mind that chemical and environmental sensitivities are trivial, and not disabling or even life threatening like they can be.

It also needs to be said that signs without enforcement are endangering lives and perpetuating harm, systemic accessibility barriers, discrimination, and forced isolated segregation for those who are disabled by any or repeated exposures.

To download printable posters, see below.

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Simple Fragrance-Free Posters in English and French

People have asked for simple printable signs that can be posted at home or elsewhere.  There are 2 versions of each sign, one being mostly black and white.

Click on the images below to save and print

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Harm Reduction Policy for People With Autism

Recent research that Anne Steinemann conducted in  three countries (United States, Australia, and the UK), found that 83.7% autistic adults reported adverse health effects from exposures to  fragranced products, effects such as:

migraine headaches (42.9%),
neurological problems (34.3%),
respiratory problems (44.7%), and
asthma attacks (35.9%)

In particular,
62.9% of autistic adults report health problems from air fresheners or deodorizers,
57.5% from the scent of laundry products coming from a dryer vent,
65.9% from being in a room cleaned with scented products, and
60.5% from being near someone wearing a fragranced product.

Health problems can be severe, with 74.1% of these effects considered potentially disabling under legislation in each country. Further, 59.4% of autistic adults have lost workdays or lost a job, in the past year, due to fragranced product exposure in the workplace.

Results show that vulnerable individuals, such as those with autism or autism spectrum disorders, can be profoundly, adversely, and disproportionately affected by exposure to fragranced consumer products.

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The Fragrance-free Checklist

 

It seems like the best way to clear up some confusion about being fragrance-free, is to provide a checklist of products and places where fragrances that can make you not be fragrance-free are found, so that you don’t inadvertently bring fragrances with you when going  somewhere with a strict fragrance-free policy.

The checklist addresses some common misconceptions about what being fragrance-free really means.

Being fragrance-free is about more than not using perfume or cologne.
It’s also not about skipping deodorant, as some people seem to think.

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Competing Human Rights and MCS/ES

As more people become chemically “sensitive”, different types of human rights scenarios  emerge. In their latest elearning module, the Ontario Human Rights Commission has included a case study with someone who “has been diagnosed with a chemical sensitivity disability”.

Some people think that our need for clean air interferes or competes with their imagined right to use toxic products, especially those with fragrances, but no, there is no inherent right to wear perfume or use other fragranced products!

Sometimes, though,  someone may need to use a product for a disabling condition of their own. The problems arise if that product has fragrances (or some other problematic ingredients) added which cause disabling effects on another person, as the following case study from the Ontario Human Rights Commission (OHRC) shows.

OHRC Competing Human Rights 1B

Competing rights at the office
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What I Wear in Bad Air :: Melanie

2016 Melanie and Jaiden 1Melanie and Jaiden

When I wear my mask I noticed people couldn’t see me smile at them and would avert their eyes and not smile at me.

I will usually speak and say hello. Most people will nod or say hello back even if they don’t smile or look at my eyes. Some will shrink away like I have Ebola. I’ve felt like a leper when that happens. I just hate that my kids are learning that lesson about humanity so young. I hope it will help instill a more compassionate nature in them as they see how not to be.

I started using fabric stickers on my mask sometimes and noticed that people would smile at them. I felt less invisible even if it was my stickers they smiled at more than me. I have several different ones including penguins, crosses, and holiday relevant ones I wear around Christmas time.

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What If an Industry was Allowed to Disable Us and Keep Us Housebound?

Something Is Really Wrong With This Picture

Imagine this 1

There’s a global proliferation of artificial fragrance and methods of dispersing it. Fragrance concoctions are added to almost everything imaginable (with more ridiculous ideas emerging all the time). They are sold and used everywhere at the same time as more people are developing adverse health effects from them, effects like serious allergies, disabling “sensitivities”, migraines, asthma, neurological disorders, lowered IQ, birth defects, etc. (the list keeps growing).

These health problems are due to unregulated and secret ingredients, ingredients which pollute our bodies, our air, and the waterways they get washed into from our sinks, tubs, and showers, ingredients that are impossible to avoid now, even when we don’t want them in our lives.

If you or your child had celiac disease or a severe peanut allergy, it would be the same as the peanut and gluten industries adding peanuts and gluten or peanut and gluten mist along with doses of mood altering drugs to every product imaginable, including building materials. That would be in addition to having peanut and gluten essences worn by everyone (in their hair, armpits, clothing …), pumped out of air ducts, automated devices in public washrooms, transportation, stores, apartments, offices, hotels, even medical offices, and your neighbours burning peanuts and gluten in their fireplaces, washing with laundry with them, and then pumping the residues out of their dryer vents 24/7.

You could imagine cat allergies too, but they are usually more inconvenient than life threatening and disabling.

The fragrance industry is very aware of the adverse effects its products have on people and the environment, yet they continue to look for more ways to pollute us and every product and environment conceivably possible. They knowingly create concoctions that harm and act like drugs! Yet they consider these risks reasonable and acceptable, and choose to dismiss or ridicule those who have problems, using similar tactics the tobacco industry used to deny there are problems and to continue to profit from them.

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Are Fragrances Drugs By Design?

From the FDA

drugs FDA

Drug by definition:

drug 1

What about fragrances when they target our brains and brain functions, including moods and perceptions?

From the fragrance industry:

Aromachology and the brain

To use fragrance technology to transmit feelings directly to the brain

???

That sounds a lot like drugs to me!

From the FDA… Is it a drug?

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