Tag Archives: fibromyalgia

Simple Fragrance-Free Posters in English and French

People have asked for simple printable signs that can be posted at home or elsewhere.  There are 2 versions of each sign, one being mostly black and white.

Click on the images below to save and print

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So You Think We’re Being Difficult When We ask You to Change Products?

Seriously though:

We are not trying to make your life difficult.

We’re just asking you to choose products that don’t disable us.

“Really? Products we can buy in every store disable you?”

Yes! Everyday products and materials can disable us.

There’s actually a lot of info out there that the things that disable us are harming many other people too, just in different ways.

An info dump of links are included below. Take your time and read through them, as you will learn things that will help you protect yourself and your family in the absence of product and material regulations that should exist to protect us.

In many places, it’s also the law to accommodate us
to the point of undue hardship.

“inconvenience, morale, and preferences are not valid considerations in assessing whether an accommodation would cause undue hardship”

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What’s it Like to Have MCS/ES? Part 3: Toast Chaos

MCS/ES (multiple chemical sensitivities / environmental sensitivities)  is a disability recognized by the Canadian and Ontario Human Rights Codes. There are over a million people with doctor diagnosed MCS in Canada, and so many more all around the world.

In the US, the latest prevalence study found that “among the population, 12.8% report medically diagnosed MCS and 25.9% report chemical sensitivity.”

The term ‘sensitivities’ seems to trivialize the condition in many people’s minds.

You may wonder what’s it really like then, if it’s not trivial?

Here’s how Laura J Mac describes it:

Having MCS means never knowing when you can manage something as simple as making toast.

• Can’t stand up due to pain.

• Can’t figure out all the steps involved to make toast. #execfun

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Choices… We Always Have Some

When Toxics Drift

we end up with choices.

Sit outside for a little while to get some Vitamin D

or

Be able to think, wash dishes, and/or make something to eat

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Open Letter to the Ontario Minister of Health and the MOHLTC

Dear Minister of Health, we’re ready for action!

According to official statistics:

250,000 Ontarians had been diagnosed with MCS in 2014
and the discrimination is still systemic in 2018

SUBJECT: Accommodation for People with Disabilities

Honourable Helena Jaczek, Minister of Health (at hjaczek.mpp@liberal.ola.org )


On September 29, 2017,
Ontario  quietly released the report “Time for Leadership: Recognizing and Improving Care”  for those with myalgic encephalomyelitis /chronic fatigue syndrome, fibromyalgia, and environmental sensitivities /multiple chemical sensitivity  (ME/CFS, FM and ES/MCS). This report  was produced by the Task Force on Environmental Health for the Ministry of Health and Long Term Care.

The report found that throughout the Ontario health care system and in society at large, there is:

• a lack of recognition of the seriousness and severity of these conditions
• a profound shortage of knowledgeable care providers
• a dearth of clinical tools to support and guide care
• a discouraging shortage of services and supports for people living with these conditions
• an absence of support for family caregivers

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

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Corporate Gaslighting and Conflicts of Interest at the Women’s College Hospital

I saw something that shocked me, and I don’t know how anyone involved with this could have thought it was a good idea.

This is what I saw

If you are a Canadian, you will probably understand.

.

It’s pretty much the same thing as this (slightly revised) image:

(pretend it’s done all the way)

What would you think if you saw that?

Shoppers Drug Mart is the antithesis of scent or fragrance free!

 

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Province of Ontario Interim Report on ME/CFS, FM, and MCS/ES

The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!

“We found that, throughout the health care system and in society at large, there is:

•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …

We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”

From the press release:

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