So You Think We’re Being Difficult When We ask You to Change Products?

Seriously though:

We are not trying to make your life difficult.

We’re just asking you to choose products that don’t disable us.

“Really? Products we can buy in every store disable you?”

Yes! Everyday products and materials can disable us.

There’s actually a lot of info out there that the things that disable us are harming many other people too, just in different ways.

An info dump of links are included below. Take your time and read through them, as you will learn things that will help you protect yourself and your family in the absence of product and material regulations that should exist to protect us.

In many places, it’s also the law to accommodate us
to the point of undue hardship.

“inconvenience, morale, and preferences are not valid considerations in assessing whether an accommodation would cause undue hardship”

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First Municipal Government Adopts Life Saving Plan for People With MCS/ES, CFS/ME, and FM

Good news for some people who have MCS/ES, CFS/ME, and FM

Tarragona SPAIN

RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:

THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!

The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.

In part, the agreement includes:

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Are Essential Oils Too Popular For Our Own Good?

Did you know that essential oils are not harmless?

Essential Oils can be a good thing. Many of them have useful healing properties. But as with anything, too much of a good thing is not in our best interests.

They can be sensitizers and allergens, and can cause other health problems too.
They can emit and create hazardous air pollutants. Some are made with synthetic ingredients, or from pesticided plants, and using toxic solvents.

They are WAY over-used and over-promoted, and any beneficial uses the organic oils may have, risk being lost due to this careless over-use.

They should not be used as a popular way to make money the way they are now.

They should be kept for medicinal use under the guidance of qualified, trained professionals, and  not the MLM (multi-level-marketing) folks who are inventing new ways to use them so that they can sell more product.

Some people have severe adverse reactions to them, and their proliferation is causing new barriers to access, meaning people can’t access food from health food stores,  other essentials, or even alternative health care, because the oils are so prevalent and contaminating everything (1st, 2nd, and 3rd hand) in what should be healthy places with clean, fragrance-free air.

Fore more information, here are a few links to check out: Continue reading

Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

Review Finds Ontario Far From Accessible but Report Includes People With Environmental Sensitivities

The Honourable David C. Onley, the 28th Lieutenant Governor of Ontario (2007-2014) was appointed to lead the Third Review of the Accessibility for Ontarians with Disabilities Act (AODA).

The report has now been released.

LISTENING TO ONTARIANS WITH DISABILITIES
REPORT OF THE THIRD REVIEW OF THE ACCESSIBILITY FOR ONTARIANS WITH DISABILITIES ACT, 2005

For most disabled persons, Ontario is not a place of opportunity but one of countless, dispiriting, soul-crushing barriers

Thanks to everyone who wrote in, those of us with environmental sensitivities have been recognized, and thanks to David C. Onley, we’ve been included in the report and the final recommendations:


In the SUMMARY OF RECOMMENDATIONS (on pg 80):

7. Ensure that accessibility standards respond to the needs of people with environmental sensitivities.

 

Other mentions of environmental sensitivities and details:

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Petitions! Fragrance-free Health Care in the U.S. & Safe Housing in B.C.

Two new petitions have been brought to my attention. Both of them are on change.org.
Please sign and share if you are able:

 

Make all health care facilities and services “fragrance free.”

https://www.change.org/p/us-department-of-health-and-human-services-make-all-health-care-facilities-and-services-fragrance-free

…”Please ask the secretary of HHS to provide leadership on addressing this issue and require all health care facilities and service providers to be scent free.”…

 

and

 

Stop the Human Rights Violations of Disabled British Columbians.

https://www.change.org/p/dear-bc-provincial-gov-t-and-vancouver-municipal-gov-t-leaders-stop-the-human-rights-violations-of-disabled-british-columbians

…”Health supporting housing is needed for low income British Columbians living with MCS. Currently there is no safe, affordable housing in BC for people with this chronic illness. In fact, the housing that is available is making people with MCS more ill by exposing them to off gassing building materials, strong chemicals used in building maintenance, laundry venting, cigarette smoke, and toxicant containing household and body products used by fellow renters.” …

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Harm Reduction Policy for People With Autism

Recent research that Anne Steinemann conducted in  three countries (United States, Australia, and the UK), found that 83.7% autistic adults reported adverse health effects from exposures to  fragranced products, effects such as:

migraine headaches (42.9%),
neurological problems (34.3%),
respiratory problems (44.7%), and
asthma attacks (35.9%)

In particular,
62.9% of autistic adults report health problems from air fresheners or deodorizers,
57.5% from the scent of laundry products coming from a dryer vent,
65.9% from being in a room cleaned with scented products, and
60.5% from being near someone wearing a fragranced product.

Health problems can be severe, with 74.1% of these effects considered potentially disabling under legislation in each country. Further, 59.4% of autistic adults have lost workdays or lost a job, in the past year, due to fragranced product exposure in the workplace.

Results show that vulnerable individuals, such as those with autism or autism spectrum disorders, can be profoundly, adversely, and disproportionately affected by exposure to fragranced consumer products.

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The Fragrance-free Checklist

 

It seems like the best way to clear up some confusion about being fragrance-free, is to provide a checklist of products and places where fragrances that can make you not be fragrance-free are found, so that you don’t inadvertently bring fragrances with you when going  somewhere with a strict fragrance-free policy.

The checklist addresses some common misconceptions about what being fragrance-free really means.

Being fragrance-free is about more than not using perfume or cologne.
It’s also not about skipping deodorant, as some people seem to think.

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Product Safety Gaps are Actually Canyons

Many people believe that for a product to be sold, it has to first be proven safe.
Unfortunately this is far from the truth.

I ran across a great in depth article in Fast Company about product safety,
and how:

“There are no laws in place to ensure a company’s
product development process results in safe products,

because product safety is entirely voluntary.”

and to echo what I’ve been saying:

“Today, public outcry is doing much of the work
that government agencies cannot.”

More snippets from the very informative and long article follow:

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Your Very Own Neighbourhood Chemical Distribution Device

Did you know?

If you use conventional laundry products, you might not knowingly be feeling the effects now, but you more than likely have some neighbours who do!

Dryer vents are undisclosed, unregulated chemical distribution devices.

When you choose your laundry products,
you choose what your neighbours have to breathe!

Please think about your neighbours and choose non-toxic & fragrance-free products, so that your neighbours do not become ill or disabled
and can enjoy their homes and properties too!

A growing number of people (millions, not handfuls) cannot enjoy walking about their neighbourhoods, sitting or working in their own outdoor spaces, or even open the windows of their homes due to the harmful pollutants released from dryer vents that were designed to emit moisture, not drifting toxic chemicals.

Laundry products should not be disabling people or cause short term adverse health effects like asthma, headaches, migraines, confusion, vomiting, dizziness, etc., or longer term effects like reproductive and neurodevelopmental problems!

EWG has a website where you can check the ratings for the products you use. It’s a great place to start learning which products to avoid, and which are safer options.

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When Someone Says They’re Fragrance-Free, But

When someone says they’re fragrance-free, but

they smell like

essential oils, febreze, scented candles, plug-in air effers, &/or air effing sprays…

When someone says they’re fragrance-free, but

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