Are Natural Fragrances Really Any Better?

Awareness is growing about the harmful effects of synthetic, artificial fragrances. This is with good reason, but now, many people have jumped onto the natural fragrance and essential oil (EO) bandwagons, believing them to be safe alternatives.

Is this a good thing?

Some believe so, after all, what could be wrong with something that’s natural?

It’s time to have a closer look.

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So You Think We’re Being Difficult When We ask You to Change Products?

Seriously though:

We are not trying to make your life difficult.

We’re just asking you to choose products that don’t disable us.

“Really? Products we can buy in every store disable you?”

Yes! Everyday products and materials can disable us.

There’s actually a lot of info out there that the things that disable us are harming many other people too, just in different ways.

An info dump of links are included below. Take your time and read through them, as you will learn things that will help you protect yourself and your family in the absence of product and material regulations that should exist to protect us.

In many places, it’s also the law to accommodate us
to the point of undue hardship.

“inconvenience, morale, and preferences are not valid considerations in assessing whether an accommodation would cause undue hardship”

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Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

Mask Challenge Revisited

Back in 2017, there was an effort by Memes for Inconvenient Disabilities to get people to wear a mask to see what it was like to be a human canary.

Only one person we know of took the challenge, but she did not give permission to share her incredible insights from her experience.

I’ve discovered that Fast Company did their own version of the Mask Challenge and here’s their video: Continue reading

Three New Videos About Environmental Sensitivities

 

EHAQ (Environmental Health Association of Québec) is presenting three new videos for

Environmental Sensitivity Awareness Day – May 12, 2019

Presentations are from:

John Molot MD.

“Numerous papers have been published supporting a biological explanation for MCS. These will be reviewed as well as the evolving medical and political perspective.”

David Fancy Ph.D.

…”Drawing from insights from the ‘social model of disability’ this presentation identifies how the current cultural moment presents systematic barriers, negative attitudes and ongoing electromagnetic wounding that puts the responsibility on society for being the main contributing factor in disabling EHS persons.”

Meg Sears Ph.D.

…” Sears notes the urgency of curbing harmful products and thus chronic disease because as people are getting sicker, families and society also suffer and the healthcare budget balloons faster than the Gross Domestic Product – clearly an unsustainable situation.”

 

The videos are available in both English and French.
There’s no need to register this year, just visit the website:

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Simple Fragrance-Free Posters in English and French

People have asked for simple printable signs that can be posted at home or elsewhere.  There are 2 versions of each sign, one being mostly black and white.

Click on the images below to save and print

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MCS/ES: Societal Neglect = No More Fun and Games for Life on the Planet

 

Please take a moment to feel your heart beating.
Not everyone can do this anymore.

While some progress has been made, it’s still too little,
too late for far too many people.

This will not change until more people who have MCS/ES come forward with their stories, and more  healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.

 

“Business as usual is a disaster”
Robert Watson

 

“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
(and neglect)

“The Consequences of Disbelief”

“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”

 

From
“Amputated Lives: Coping with Chemical Sensitivity”
2008
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School

 

Links to several chapters of the book, where stories about people’s lives are featured are available here:

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MCS Survey for May 2019

Survey for People with Multiple Chemical Sensitivities (MCS) and/or Environmental Illness and Injury (EII)

Guest post from Mordecai Cohen Ettinger,
The Health Justice Commons

I’ve had MCS for nearly 20 years. I’m a survivor of of the Three Mile Island partial nuclear meltdown, excessive x-ray radiation from medical treatment as a child from a teaching hospital that has since been ongoingly investigated for bioethics violations, and successive exposures to lead and mold from reckless landlords.

I’ve been a community activist for many years, along with a scholar and teacher of Critical Science, Technology and Medicine Studies.

In late 2016, I founded the Health Justice Commons, a non-profit. Our mission is to re-imagine and remake healthcare for our times.

To support efforts for MCS Awareness Month, we want to address the gap of basic research of our experiences.

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Can’t Ban Fragrances? Consider a Fragrance Free Zone

This article appears in The Job Accommodation Network’s
ENews: Volume 17, Issue 2, Second Quarter, 2019

JAN provides free, confidential technical assistance about job accommodations and the Americans with Disabilities Act (ADA).

Can’t Ban Fragrances?
Consider a Fragrance Free Zone

Dig into developing a fragrance free zone

From the desk of Linda Carter Batiste, J.D., Principal Consultant/Legislative Specialist

Employees with fragrance sensitivity often need a fragrance free work environment to avoid triggering symptoms. However, it can be difficult to completely eliminate fragrances in some workplaces. Fragrance sensitivity can be triggered by not only perfumes and colognes, but also in some cases by personal products such as deodorant, shampoo, laundry detergent, and lotion. In workplaces with a lot of employees or in which the public has access, trying to control what products people use and enforcing a total fragrance ban can be virtually impossible. So what else can be done? Continue reading

Welcome to the 2019 Edition of MCS/ES Awareness Month

It’s that time of year again!

We’re only a little tired of folks keeping their heads in the sand for decades.

The good (and sad) news is:

we’ve multiplied too much to ignore anymore!
(and there are more joining our ranks every day)

Major brands have started making fun of us and are co-opting our language,
so we know we’re making progress, even if it seems slow.

 

SPEAKING UP MAKES A DIFFERENCE!

 

If you are new to this, to learn more about  MCS/ES, you can start here:
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