Tag Archives: autism

What’s it Like to Have MCS/ES? Part 2: Curbs

MCS/ES (multiple chemical sensitivities / environmental sensitivities)  is a disability recognized by the Canadian and Ontario Human Rights Codes. There are over a million people with doctor diagnosed MCS in Canada, and so many more all around the world.

In the US, the latest prevalence study found that “among the population, 12.8% report medically diagnosed MCS and 25.9% report chemical sensitivity.”

The term ‘sensitivities’ seems to trivialize the condition in many people’s minds.

You may wonder what’s it really like then, if it’s not trivial?

 

 

From Amy RW Marsh:

I just wrote this analogy for a person who needed one in order to understand EI/MCS:

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What’s it Like to Have MCS/ES? Part 1: Arms, Brains, and Legs

MCS/ES (multiple chemical sensitivities / environmental sensitivities)  is a disability recognized by the Canadian and Ontario Human Rights Codes. There are over a million people with doctor diagnosed MCS in Canada, and so many more all around the world.

The term ‘sensitivities’ seems to trivialize the condition in many people’s minds.

You may wonder what’s it really like then, if it’s not trivial?

‘have legs or brain some days but not others’

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Statement From ARCH and CELA re MCS, ES, and the Ontario Task Force on Environmental Health

The ARCH Disability Law Centre and the Canadian Environmental Law Association (CELA) announced in September of 2016 that they were working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.

ARCH Alert September 2016

“ARCH, in collaboration with the Canadian Environmental Law Association (CELA), has been working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.  Our report was informed by consultations with persons who experience these disabilities. 

One of our major findings is the significant extent of attitudinal barriers faced by this group of people.  Often, they find that they are not believed when they ask that scents, fragrances or other products not be worn in the workplace, educational settings, health care settings or places where services are received.  We believe that a large awareness campaign is needed to educate the public about the impact of these disabilities on all aspects of a person’s life.”

 

The release of their report has been delayed because they want to respond to the Ontario Task Force on Environmental Health’s Interim Report, which came out just when their own report was intended for release.

In the November 2017 issue of Arch Alert, both ARCH and CELA  urge the Task Force to do more consultations with those of us who are living the experience:

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If Only You Could See

Guest post and art from Gloris Smith Young 

You look at me
You look away

I see it every day
If only you could see

This could be you
Instead of me

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Help for How to Be Fragrance-Free

All it takes is a decision to go fragrance-free!

It should be easier than quitting smoking since there aren’t supposed to be addictive chemicals in fragrances, right?

Due to the fact that so many people are now experiencing adverse effects from fragranced products (34.7% in 2016), we are well on the way to having fragrance-free policies everywhere for the sake of protecting public health just as was done with smoking bans. It’s not just those of us who suffer immediate and disabling adverse effects from the products (1st, 2nd, and 3rd hand), but for everyone.

Here are some great resources (in no particular order) to help you go fragrance-free:

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Bubbled People

 

I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with  the intro “Food for thought… what’s outside the bubble preventing access?”  Someone responded with  “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:

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60 MiNueTs: Short Video Series on Environmental Health

 It’s hard to get anyone to take the time to read (let alone  understand) scientific research, but it’s so important that we educate ourselves when the opportunity arises. People have short attention spans these days, probably from all the neurotoxins and wireless radiation we’re all being exposed to on a daily basis, so it’s great when we find information that is short and to the point.

Here is a great short video series from

the UCSF Program on Reproductive Health and the Environment.

Please watch and share!

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