Ginette lives in Quebec and has been trying to access health care safely for years, without success. The fragrance exposures cause severe symptoms and her health is deteriorating as a result of not being able to have her basic needs met, because… fragrance.
She posted this video to her fb profile:
Here’s a rough English transcript:
Posted in Accessibility, Action, Disability, Fragrance, Health Care, Human Rights, Policy, Public Health
Tagged accessibility barriers, accessibility standards, chemical sensitivity, chronic illness, disability accommodation, fragrance-free, francais, French, health care access for people with MCS/ES, MCS, MCS/ES, MCS/ES hospital protocols, ME/CFS, multiple chemical sensitivities, Quebec
This excellent video about MCS/ES was made in 2020 by Maria Rizzo, who was behind the Fragrance Free Revolution, but has not aged a second. It is just as relevant today as it was then.
The only thing that has changed, is that Maria is no longer with us. She lost her life in December 2020 after being subjected to too many exposures when spending time in hospitals with her father.
She wasn’t able to recover from those exposures, the broken heart of losing her father, and of the world that harms us instead of welcomes us.
The tribute her partner wrote when he informed the community of her passing can be found here.
I miss collaborating with Maria, I miss her creative energy, and her ability to do things in clear and concise ways.
She’d still be with us if hospitals and the rest of the world stopped inflicting unnecessary poisons on us all, and instead respected our human rights as well as their own vulnerability to 24/7 exposures to unnecessary hazardous substances.
Her death is a great loss to the global MCS/ES community.
Rest in power Maria.
Posted in Accessibility, Environmental Health, Environmental Sensitivities, Fragrance, Health
Tagged accessibility barriers, awareness, fragrance-free, IAQ, MCS, MCS video, MCS/ES
Human Canaries are what’s left after the signs from wildlife and nature weren’t respected, but we’re not long for this earth either, unless there are some significant changes in people’s daily habits – yes, things everyone can start to do RIGHT NOW!
Let’s start with some hashtags:
#HumanCanaries #EnvironmentalSensitivities #EarthDay #EarthDay2021 #MotherEarth #ChemicalSensitivity #MCS #EHS #IAQ #EnvironmentalHealth #air #water #disabilities #ScentFree #FragranceFree #BeFragranceFree #NonToxic #StopTheKill
Then move on to some science and other research (with apologies for the formatting, I really hate wordpress now):
Posted in Action, Environmental Health, Environmental Sensitivities, Human Rights, Policy, Public Health
Tagged accessibility barriers, autoimmune, cancer, cleaning products, emissions, essential oils, Fragrance, fragrance-free, hazardous products, IAQ, laundry products, MCS, MCS/ES, personal care products, pharmaceuticals, plastic, Pollution, scent free, science, toxic trespass, VOCs, Water
Some people are promoting their essential oils and EO containing products as being #FragranceFree.
A few years ago others were claiming their essential oils were #ScentFree.
It seems we need to have a closer look at this before more people are hurt.
Posted in Accessibility, Environmental Health, Environmental Sensitivities, Fragrance, Indoor Air Quality
Tagged allergies, aromatherapy, essential oils, formaldehyde, fragrance-free, Hormone-Disrupting Chemicals, MCS, MCS/ES, policy, scent free, terpenes, VOCs
But Shouldn’t Have to Be
Guest Post by Joanne Cabe
I read a post from someone who was out of work and broke, who wrote that being quarantined and broke, or being an essential worker and working over time, isn’t normal for anyone.
I had to respond. I don’t know that it will do any good on people’s awareness, but this was my try for the day:
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Health
Tagged allergies, barriers, chemical sensitivity, environmental sensitivities, fragrance-free, hazardous air pollutants, IAQ, invisible disabilities, MCS, multiple chemical sensitivities, Products, sanitizers, scented
Dear everyone, if you are Canadian, please sign this petition, and no matter where you are, please share this with all the Canadians you know!
e-2729 Petition to the Government of Canada
We, the undersigned, citizens of Canada, call upon the Government of Canada to:
1. Create an international classification of disease designation code in Canada for environmental sensitivities so that those affected may have access to medical care;
2. Include environmental sensitivities as a disability that must be accommodated on all relevant documents and forms in governmental departments and organizations that minister social assistance, housing, medical, and other public services; and
3. Ensure all indoor public spaces are declared scent and fragrance-free.
Posted in Accessibility, Disability, Environmental Health, Fragrance, Government, Health Care, Human Rights, Policy, Public Health
Tagged allergies, asthma, chemical sensitivity, CIRS, EHS, environmental illness, fibromyalgia, fragrance-free, human canaries, IAQ, ICD, invisible disabilities, MCS, MCS/ES, mould, multiple chemical sensitivities, petition, scent free, TILT, video
Toronto’s Mayor John Tory has lent (not given) his support with a Proclamation for for Awareness Day:
“Proud to proclaim today as Myalgia Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day. It is important that we lend our support and understanding to those living with chronic illness, especially as we deal with #COVID19.
(I’m sorry there’s no written transcript for the image)
Posted in Accessibility, Community, Disability, Environmental Sensitivities, Health Care, Housing, Human Rights, Policy
Tagged allergies, asthma, CFS/ME, chemical sensitivity, Chronic Fatigue Syndrome, ecopsychology, EHS, fibromyalgia, fragrance-free, human canaries, IAQ, invisible disabilities, MAID, MCS, multiple chemical sensitivities, Myalgic Encephalomyelitis, proclamation, suicide, video
I saw an announcement on fb from a city agency that was opening up an arena to allow homeless people a place to shower, and they were also providing soap, shampoo, and other necessities.
“People who are homeless or precariously housed in (the city) relied upon bathrooms and showers in public facilities. But, they have closed their doors during the pandemic. There are now free showers and washrooms open daily at (the) Arena.”
Homelessness is something far too many human canaries are intimately familiar with, since there are so few accessible, medically safe housing options available when our ‘sensitivities’ become disabling. Many human canaries are precariously housed too.
Graphic image text description:
Toothbrushes, shampoo, soap, and more provided.
Free showers & washrooms
Is the soap and shampoo fragrance-free so that people with environmental ‘sensitivities’ could also access the space?
MAY is MCS/ES Awareness Month
I was (due to MCS/ES related accessibility barriers) homeless myself for a year, and the need to shower did not go away. I know several homeless canaries now, one who just a few days ago was discussing her attempts to create a shower outside the van she is living in, so I asked the fb page a question about accessibility for homeless canaries.
Here’s what happened:
Posted in Accessibility, Air Quality, Disability, Environmental Health, Environmental Sensitivities, Fragrance, Human Rights, Medically Required Housing, Policy, Public Health
Tagged accessibility barriers, accessibility standards, allergies, asthma, chemical sensitivity, fragrance-free, homeless, human canary, IAQ, invisible disabilities, MCS, multiple chemical sensitivities, shower
“Air on the Side of Caution”
From Arts AccessAbility Network Manitoba:
On May 1st, 2020 Marie LeBlanc’s Exhibition, “Air on the Side of Caution” will be available to view in full on AANM’s website (aanm.ca) and we will be posting one image from the show everyday on this event page.
Guest Post from Marie LeBlanc:
Posted in Environmental Health, Environmental Sensitivities, Human Rights, Images
Tagged activism, allergies, art, awareness, chemical sensitivity, EHS, environmental illness, fragrance-free, hazardous air pollutants, Housing, IAQ, invisible disabilities, MCS, Mold, mould, photography, video