Category Archives: Action

Open Letter to the Ontario Minister of Health and the MOHLTC

Dear Minister of Health, we’re ready for action!

According to official statistics:

250,000 Ontarians had been diagnosed with MCS in 2014
and the discrimination is still systemic in 2018

SUBJECT: Accommodation for People with Disabilities

Honourable Helena Jaczek, Minister of Health (at hjaczek.mpp@liberal.ola.org )


On September 29, 2017,
Ontario  quietly released the report “Time for Leadership: Recognizing and Improving Care”  for those with myalgic encephalomyelitis /chronic fatigue syndrome, fibromyalgia, and environmental sensitivities /multiple chemical sensitivity  (ME/CFS, FM and ES/MCS). This report  was produced by the Task Force on Environmental Health for the Ministry of Health and Long Term Care.

The report found that throughout the Ontario health care system and in society at large, there is:

• a lack of recognition of the seriousness and severity of these conditions
• a profound shortage of knowledgeable care providers
• a dearth of clinical tools to support and guide care
• a discouraging shortage of services and supports for people living with these conditions
• an absence of support for family caregivers

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

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Province of Ontario Interim Report on ME/CFS, FM, and MCS/ES

The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!

“We found that, throughout the health care system and in society at large, there is:

•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.

The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.

For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …

We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”

From the press release:

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Profile Pictures for Awareness Month

These images are available on facebook. Feel free to download the appropriate one and use for Awareness Month, or at least for May 12th Awareness Day!

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MCS Mask Challenge for Family, Friends, and You!

Here’s an easy way for everyone to show some support!

And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of  why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.

The Mask Challenge is brought to you by

Memes For Inconvenient Disabilities

Help us make May 2017 the last time that we ever hear or read the words:

“MCS? #NeverHeardOfIt!!”

#MaskChallenge! Do it! Grow #MCSAwareness!

Watch the video and read the transcript below:

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MCS/ES Awareness Day Projects: Request for Submissions

Marie Leblanc, an artist from Winnipeg who is living with MCS/ES herself, is compiling information and statements to put into an MCS awareness project. There are two  ideas  to contribute to.

The easier one is to share  shorter personal statements about your life with MCS/ES and related environmentally linked health conditions,  which will be projected onto walls in a way similar to the photo below.

 

The other project involves answering 6 questions:

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When a Friend’s Life Is Being Threatened

Guest Post

A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.

Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.

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Even the Cats Say: Let Wendy Stay!

 

Now that I have your attention

Here’s an awesome short video you need to see:

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