Tag Archives: Human Rights

On being an environmental refugee in Ontario

People with any other disability are allowed appropriate health care and related aids, tax breaks, subsidies, insurance benefits, accommodations, and accessible housing. People with chemical injury, with MCS/ES, are denied access and even obstructed at every turn.

By Linda Sepp.

This is an excerpt from what I sent to Ontario politicians for Earth Day 2009:

People with any other disability are allowed appropriate health care and related aids, tax breaks, subsidies, insurance benefits, accommodations, and accessible housing. People with chemical injury, with MCS/ES, are denied access and even obstructed at every turn.

The same synthetic substances that people with MCS/ES have been disabled by for years (we’re like canaries in the coal mine) now cause cancer and other chronic health problems in too many people. Children are especially vulnerable in so many ways.

This incredible suffering is preventable, and not an acceptable economic activity!

Healthy non-toxic environments allow people with MCS/ES to lead livable lives, instead of struggling to barely survive. Healthy housing, safe food and water are key needs. Simple needs. Basic health care needs. When these are met, everyone benefits.

Healthy people can create healthy economies. Sick people will drive it to a halt.

Almost 25 years ago Ontario had a guidance document to do the right thing. Instead of acting on it, many more people have been made to suffer in unimaginably difficult and trying circumstances. Too many do not make it. And more are discovering the horrors.

It’s time something was done to respect people with MCS/ES, and help them live in safety and dignity. Doing this will also make the environment safer for all citizens.

The Honourable George Thomson, in 1985:

“I chaired a committee on environmental sensitivities established by Ontario’s Ministry of Health. The committee included two eminent teaching hospital physicians and a highly respected epidemiologist. We issued a report that identified existing, publicly funded means of diagnosis, and accepted various methods of patient management, including avoidance of offending agents.

Equally important in our minds were measures, such as income support, that would provide concrete assistance to members of this vulnerable group and reduce the risk of preventable harm.

… We also called for further research and the development of services to support that research, while also helping those who were experiencing a wide range of very difficult symptoms. We did not feel that more research was needed before these and other measures were introduced to protect patients from being caused harm through inappropriate labelling or the denial of reasonable accommodation.”

George M. Thomson, B.A., LL.B., LL.M.

What can you do to make sure safe water, food, clothing and housing are available and accessible to those of us who need them?

Linda Sepp
Toronto

Why am I begging for clean air and water?

Chemical injury can happen to anyone.

(Note: Don’t miss the resources list at the end of the post.)

By Linda Sepp

It’s really hard to allow myself to think about the implications of my current situation. I’m forced to beg for un-petro-chemically-polluted air, water, food, clothing and housing.

Seems most people would rather not change their habits, both belief and practical, that they’d rather stubbornly maintain the belief that the government is protecting them, that this could never happen to them, that there must have been something bad I did to be in this position, that otherwise the safety net would be providing the help I need.

Chemical injury can happen to anyone. Some of us get cancer, or asthma, or alzheimer’s, Parkinson’s or MS, autism, ADD, or ADHD. Others develop Multiple Chemical Sensitivities (sensitivities is a misnomer–multiple chemical hells would be more apt) or Environmental Sensitivities, as it is more commonly called in Canada (MCS/ES).

What this means is that our bodies are negatively affected by minute quantities of chemicals. Sometimes it’s more of an annoyance on par with seasonal allergies, but often, when the body cannot escape exposures, the symptoms become completely debilitating and life threatening. Think being drugged and unable to think or function, in pain for weeks, and the only things that help are clean air, food and water. Things that are in short supply now, things we have no control over unless we are wealthy enough to buy 100 acres in the middle of no-where, so that someone’s dryer vent or pesticides don’t blow toxic chemicals our way, a place to have our own safe home with air and water filtration systems… things most people don’t notice because they are themselves covered in so many chemicals, living and working in neuro-toxic environments, finding it harder and harder to get by themselves, even begrudging our need for those things as frivolous.

So we become the hidden and often homeless. Invisibly disabled, abandoned, ignored and ridiculed. How is it possible that inhaling anyone’s laundry product or body spray could disable someone for over a week? That there are no clothes that are chemical free? That all housing has been allowed to be completely contaminated by useless chemical residues allowed into fragranced personal care or cleaning products, or worse yet, those so called air-fresheners? How could a few inches of some simple caulk render someone semi-comatose for 4 months? How are neuro-toxic, carcinogenic, endocrine disrupting chemicals allowed into things we slather onto our bodies, wash our clothes with, rinse into our water supplies, in our foods, and in building materials? Synthetic petro-chemicals that will injure people’s brains and central nervous systems? How indeed.

Protecting Industry is more important than protecting public health. It is that simple. The same chemical industry that creates all the toxins that cause so many chronic or otherwise debilitating illnesses, also supplies the pharmaceutical companies with synthetic petro-chemical ingredients to make drugs that will hopefully alleviate some of the symptoms of our damaged bodies without killing us completely in the process. This is called making a killing financially and keeping the economy growing.

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A victim in my own house

The story of my life was published in November of last year, it would have been nice if they got it right.

By Linda Sepp.

The Star reported on my housing situation on Nov. 12, 2009:

A victim of her own environment: Linda Sepp fought being evicted because of her allergies. But now she’s being poisoned at home.

To read the article below, click on photo to enlarge.

And here is my Letter to the Editor in response:

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What the doctors say

Is it right that people who suffer chemical injuries and are disabled as a result are abandoned by the systems designed to help other people?

By Linda Sepp.

In her report to the Ontario Disabilities Support Program in February 2006 when the Special Diet allowance was revised, Dr. Lynn Marshall, the previous director of the Environmental Health Clinic at Sunnybrook & Women’s College Hospital, outlined my health needs as follows:

The most effective means of managing this condition is by avoidance of known triggering chemicals, and minimization of exposure to other “everyday” synthetic environmental chemicals in food, water, air, and consumer products. As with intolerances to foods themselves, it is highly challenging and expensive to minimize such exposures.

She (Ms Sepp) requires food (water, air, and consumer products) containing the lowest possible amounts of synthetic chemicals permanently to help maintain, and hopefully improve, her health status

In a letter regarding my housing needs she wrote:

Dear _____,

If Ms. Sepp is exposed to allergens or triggers such as in scented products, laundry and cleaning products, carpeting, particle-board, pesticides, moulds, wireless technologies, etc. she suffers from inability to concentrate, poor memory, profound fatigue and muscle weakness that makes it difficult for her to walk, migraine headaches, and generalized muscle pain.

In order to avoid repeated episodes of such severe symptoms, Ms. Sepp must avoid exposure to her allergens and chemical and electromagnetic triggers.

… she is in urgent need of safe housing, a situation she has been unable to rectify since I saw her in 2005, and that her health has deteriorated considerably since then. In my opinion, from my further communication with her, if Ms. Sepp is unable to live in safe housing to meet her special needs, it is probable she will require ongoing help and assistance with activities of daily living. As it is, she requires assistance when shopping for groceries due to her deteriorating health and the increased use of strong fragrance and air freshener chemicals being used and sold in grocery stores, some of which cannot be effectively removed from areas they have been used.

Ms. Sepp is unable to use a public or shared laundromat due to the chemicals used in regular laundry products, which severely impair her ability to function. She requires her own washing machine at home to avoid these triggering substances.

She also requires whole house water filtration (like that available in the Environmental Health Clinic, Dallas) to filter all the water including for cooking and drinking, as well as for washing clothes and bedding.

…She cannot share air with other people, either by HVAC or through cracks in units or shared hallways and requires a detached two bedroom home in a chemically safe area.

In my view, it is urgent that some mechanism be found to assist Ms. Sepp to locate a suitable home to prevent even more suffering and deterioration in her already extremely compromised health.

Yours truly,

Lynn M. Marshall MD FAAEM FRSM MCFP

From a submission to ODSP, Dr Armstrong writes:

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