Please take a moment to feel your heart beating.
Not everyone can do this anymore.
While some progress has been made, it’s still too little,
too late for far too many people.
This will not change until more people who have MCS/ES come forward with their stories, and more healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.
“Business as usual is a disaster”
“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
“The Consequences of Disbelief”
“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”
“Amputated Lives: Coping with Chemical Sensitivity”
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School
Links to several chapters of the book, where stories about people’s lives are featured are available here:
Posted in Accessibility, Chemicals, Community, Disability, Ecocide, Environment, Environmental Health, Human Rights, Mental Health, Policy
Tagged accessible housing, barriers, chemical sensitivity, discrimination., employment, environmental sensitivities, health care, Human Rights, invisible disabilities, MCS, multiple chemical sensitivities, systemic, toxic trespass
Many people believe that for a product to be sold, it has to first be proven safe.
Unfortunately this is far from the truth.
I ran across a great in depth article in Fast Company about product safety,
“There are no laws in place to ensure a company’s
product development process results in safe products,
because product safety is entirely voluntary.”
and to echo what I’ve been saying:
“Today, public outcry is doing much of the work
that government agencies cannot.”
More snippets from the very informative and long article follow:
Posted in Environment, Environmental Health, Health, Healthy Environment, Policy, Products, Public Health
Tagged child health, dressers, environmental sensitivities, fragrance chemicals, hazardous products
Wishing you all some Happiness during the Holidays!
May all beings have clean air, clean water, healthy organic food, and safe and healthy shelter! All that and love, lots and lots of love!
Posted in Air Quality, Environment, Environmental Health, Friendship, Gifts, Products
Tagged chemical sensitivity, environmental sensitivities, fragrance-free, hazardous air pollutants, health, holidays, IAQ, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals
The ARCH Disability Law Centre and the Canadian Environmental Law Association (CELA) announced in September of 2016 that they were working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities.
ARCH Alert September 2016
“ARCH, in collaboration with the Canadian Environmental Law Association (CELA), has been working on a report about the challenges faced by people with multiple chemical and/or environmental sensitivities. Our report was informed by consultations with persons who experience these disabilities.
One of our major findings is the significant extent of attitudinal barriers faced by this group of people. Often, they find that they are not believed when they ask that scents, fragrances or other products not be worn in the workplace, educational settings, health care settings or places where services are received. We believe that a large awareness campaign is needed to educate the public about the impact of these disabilities on all aspects of a person’s life.”
The release of their report has been delayed because they want to respond to the Ontario Task Force on Environmental Health’s Interim Report, which came out just when their own report was intended for release.
In the November 2017 issue of Arch Alert, both ARCH and CELA urge the Task Force to do more consultations with those of us who are living the experience:
Posted in Accessibility, Environment, Environmental Health, Human Rights, Policy
Tagged ARCH, autism, CELA, CFS, CFS/ME, chemical sensitivity, children, EHS, environmental sensitivities, FM, Housing, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities, Ontario, Research, wireless
While following the events at Standing Rock, I ran across something that impressed me that was shared from the “Dancing Earth” fb page, and so I began following them (please do check them out if you like powerful dance images).
At the end of April, just before MCS/ES Awareness Month was to begin, Dancing Earth posted the image below, and it made me stop in my tracks (as I scrolled through my fb newsfeed). I returned to it over and over again, and I finally asked for permission to share it here, and for the back story about how it came to be.
“Songs From The Extraction Zones”
Rulan Tangen at Santa Fe Arts Institute
I kept hoping to find the words to describe why I find it to be such a powerful image, and why I feel such a personal connection to it, but I’ve been struggling from the effects of too much pollution on my brain. Pesticides, laundry products, and who knows what else have been taking their toll on my ability to string words together to do this the justice I feel it deserves, so this will not be as eloquent as I had hoped it would be, but I still want to share this with you, and maybe you will find some of your own words, or just sit with the feelings.
Posted in Community, Environment, Environmental Health, Environmental Sensitivities, Imagination, Pollution
Tagged art, cancer, chemical sensitivity, Dancing Earth, fossil fuels, health, MCS, petrochemicals, respirators and masks, Rulan Tangen, sacred, toxic trespass, Water
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals