Category Archives: Community

MCS/ES: Societal Neglect = No More Fun and Games for Life on the Planet

 

Please take a moment to feel your heart beating.
Not everyone can do this anymore.

While some progress has been made, it’s still too little,
too late for far too many people.

This will not change until more people who have MCS/ES come forward with their stories, and more  healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.

 

“Business as usual is a disaster”
Robert Watson

 

“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
(and neglect)

“The Consequences of Disbelief”

“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”

 

From
“Amputated Lives: Coping with Chemical Sensitivity”
2008
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School

 

Links to several chapters of the book, where stories about people’s lives are featured are available here:

Continue reading

MCS Survey for May 2019

Survey for People with Multiple Chemical Sensitivities (MCS) and/or Environmental Illness and Injury (EII)

Guest post from Mordecai Cohen Ettinger,
The Health Justice Commons

I’ve had MCS for nearly 20 years. I’m a survivor of of the Three Mile Island partial nuclear meltdown, excessive x-ray radiation from medical treatment as a child from a teaching hospital that has since been ongoingly investigated for bioethics violations, and successive exposures to lead and mold from reckless landlords.

I’ve been a community activist for many years, along with a scholar and teacher of Critical Science, Technology and Medicine Studies.

In late 2016, I founded the Health Justice Commons, a non-profit. Our mission is to re-imagine and remake healthcare for our times.

To support efforts for MCS Awareness Month, we want to address the gap of basic research of our experiences.

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Your Very Own Neighbourhood Chemical Distribution Device

Did you know?

If you use conventional laundry products, you might not knowingly be feeling the effects now, but you more than likely have some neighbours who do!

Dryer vents are undisclosed, unregulated chemical distribution devices.

When you choose your laundry products,
you choose what your neighbours have to breathe!

Please think about your neighbours and choose non-toxic & fragrance-free products, so that your neighbours do not become ill or disabled
and can enjoy their homes and properties too!

A growing number of people (millions, not handfuls) cannot enjoy walking about their neighbourhoods, sitting or working in their own outdoor spaces, or even open the windows of their homes due to the harmful pollutants released from dryer vents that were designed to emit moisture, not drifting toxic chemicals.

Laundry products should not be disabling people or cause short term adverse health effects like asthma, headaches, migraines, confusion, vomiting, dizziness, etc., or longer term effects like reproductive and neurodevelopmental problems!

EWG has a website where you can check the ratings for the products you use. It’s a great place to start learning which products to avoid, and which are safer options.

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What Are Your Wishes for 2019?

Dream big! What would you wish for? Continue reading

Sharing My Truth

Jacqueline originally shared her public speaking experience at a noncompetitive StorySlam with the theme ‘Misunderstood’ in a fb group, and very graciously accepted my invitation to share her story here with you.

 

Guest Post by Jacqueline Rice

Photo of me sharing my truth @ Ex Fabula (from stories), the MKE storytelling organization.   Photo from Ex Fabula

 

Here’s the excerpt from the blog entry from their website:

Invisible Stories

“Not all stories have a resolve, but instead bring a call to action. Like Teller Jacqueline, who shared her invisible disability with the crowd. Due to carbon monoxide poisoning Jacqueline was forced to alter her lifestyle in dramatic ways. Her exposure to carbon monoxide caused her to be intolerant to chemicals such as perfumes and sprays. Because of this, Jacqueline can’t be in many public spaces. Thank you, Jacqueline, for using your voice and story to advocate for many others with invisible disabilities.”

How it felt for me at the mic in front of 200+ people: Continue reading

Choices… We Always Have Some

When Toxics Drift

we end up with choices.

Sit outside for a little while to get some Vitamin D

or

Be able to think, wash dishes, and/or make something to eat

Continue reading

Ontario’s Task Force Releases its Phase 1 Recommendations to help people suffering from chemical sensitivity but health ministry abdicates again. Here’s a new take on that report.

An important update on the situation in Ontario, from Varda Burstyn, one of the original members of the Task Force on Environmental Health.

Please read and share, and find a way to put pressure on the elected reps, and if possible, get much needed media attention on this travesty of justice!

Note too that it’s not just for us, it’s a public health issue when over 50% of children have chronic health problems (including preschool kids with disabling anxiety), and something like 2/3 of the population on at least one pharmaceutical drug. We know that removing the cause of the problem results in better health than ineffectively trying to manage some symptoms!

When the canaries are ignored, public health suffers!

Dispatches from The Chemical Edge

Hundreds of thousands are sick – and after 33 years, Ontario government again declines to implement basic measures of care

 Extracted pages from task_force_on_environmental_health_report

“These three environmental health conditions typically have a devastating impact on the individuals affected. Unfortunately, our health care system too often has not helped them to the extent they need. The report of the Task Force sets out a course that will begin to remedy this. I look forward to seeing the Minister’s response to our report, and urge him to respond quickly and decisively. There is a need for strong leadership.“ Neil Stuart, Vice-Chair of the Task Force.

Few people have any idea of the number of people in Ontario afflicted with the debilitating, painful, often co-occurring and even life-threatening conditions of Environmental Sensitivity/Multiple Chemical Sensitivities (about 310,000), Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (about 215,000) and Fibromyalgia (about 196,800). But it turns out that, in total, there are a…

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