A brief account of a seriously “sensitive” to pollution person living in a society where fragranced and toxic products are more important than lives, where disabled lives are disposeable, where it’s now easy to be euthanized (even for for externally imposed and inflicted) suffering, but not to receive support to remove the causes of suffering, causes and conditions that have been made systemic for many people with disabilities.
I’m not a poet and I know it and I wrote it anyway…
What Now? Continue reading
Posted in Accessibility, Air Quality, Community, Disability, Environmental Sensitivities, Food, Fragrance, Health, Healthy Environment, Housing, Human Rights, MCS/ES, Multiple Chemical Sensitivities, Pesticides, Policy, Pollution, Support
Tagged allergies, asthma, Bill C7, cancer, chemical sensitivity, Clothing, dryer vents, EHS, euthanasia, fibromyalgia, hazardous air pollutants, human canaries, Human Rights and Disability, invisible disabilities, laundry products, MCAS, MCS, migraines, multiple chemical sensitivities, toilet paper, unwanted, VOCs, Water
Toronto’s Mayor John Tory has lent (not given) his support with a Proclamation for for Awareness Day:
“Proud to proclaim today as Myalgia Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day. It is important that we lend our support and understanding to those living with chronic illness, especially as we deal with #COVID19.
(I’m sorry there’s no written transcript for the image)
Posted in Accessibility, Community, Disability, Environmental Sensitivities, Health Care, Housing, Human Rights, Policy
Tagged allergies, asthma, CFS/ME, chemical sensitivity, Chronic Fatigue Syndrome, ecopsychology, EHS, fibromyalgia, fragrance-free, human canaries, IAQ, invisible disabilities, MAID, MCS, multiple chemical sensitivities, Myalgic Encephalomyelitis, proclamation, suicide, video
May is MCS Awareness Month, and there’s a new fb page just for this!
If you are on fb, please go “like” the new page, and then click on ‘following’ to choose “see first” so that you can see all the curated material that will get shared over the course of the month, making it easy for you to ‘like’ and share the posts with your fb (and other social media) circles.
As many have noted, much of the world has had to adopt a ‘lifestyle’ much like we human canaries and other people with disabilities have been living for years, albeit without so many of the additional challenges that disabilities and chronic illnesses bring to surviving daily life.
It would be nice to think that this small taste of what we have been living for a long time will bring about more compassion, empathy, and changes of heart that will inspire people to remove accessibility barriers and welcome us in the world when everyone else is released from isolation.
To that end, we need people to know we exist, as more often than not, there is little to no understanding, or it is trivialized. Sharing info on social media is known to create change, so let’s all be a part of making a better, healthier, and accessible world for everyone. ♥
Please leave a comment here if you know of any other groups or people who have organized events or material for MCS (and related) Awareness Month 2020, so that we can all support each other.
Posted in Accessibility, Action, Community, Disability, Environmental Health, Environmental Sensitivities, Health Promotion, Human Rights, Inspiration, Support
Tagged allergies, asthma, awareness month, chemical sensitivity, EHS, environmental illness, GWS, invisible disabilities, MCS, migraines, multiple chemical sensitivities, Sick Building Syndrome, TILT, toxic brain injury
There are those who invite us to celebrations, sometimes year after year, but who also refuse to remove the accessibility barriers so that we can attend.
There are 25 barriers in this photo.
Can you find them all?
Click on the image to enlarge it.
Learn more here:
Posted in Accessibility, Air Quality, Community, Disability, Environmental Health, Fragrance, Products
Tagged accessibility barriers, allergies, asthma, autism, cancer, chemical sensitivity, environmental sensitivities, fibromyalgia, Fragrance, hazardous air pollutants, IAQ, invisible disabilities, MCS, multiple chemical sensitivities, quit fragrance, toxic chemicals, VOCs
Canadian Lawyer Magazine and The Law Foundation of Ontario have shared the news about CERA’s new resources for community workers, to help support clients with chemical and environmental sensitivities in rental housing:
Posted in Accessibility, Community, Disability, Environmental Health, Housing, Human Rights
Tagged CERA, chemical sensitivity, environmental sensitivities, IAQ, invisible disabilities, legal rights, MCS, MCS/ES, multiple chemical sensitivities, resources
It’s not often that we hear people discussing chemical and environmental “sensitivities” and other environmentally linked chronic health problems and disabling conditions, or how they relate in the bigger picture.
Two such discussions have taken place in August of 2019, and you can watch the videos below.
Posted in Accessibility, Community, Disability, Environment, Environmental Health, Human Rights, Pollution, Products
Tagged allergies, art, chemical sensitivity, creativity, EHS, environmental sensitivities, fragrance-free, health, Housing, IAQ, invisible disabilities, medical, Mold, multiple chemical sensitivities, pesticides, petrochemicals, toxic chemicals, video
Do you (or will you) need safe housing?
Until the end of November 2019, Health Risk Navigation Inc. (HRNI) is conducting a much needed (yet simple) survey of the housing needs of the chemically injured in order to have quantitative data to show housing providers, communities, policy, and decision makers, funders, and other relevant parties.
This kind of data doesn’t exist currently, so even though safe housing is our core need, there are no official documents that anyone can easily point to.
More details are available on their FAQ page:
Some of you may have already done the 1st edition of this survey in June of 2019, when it originally came out. Thank you! Even though the survey now has a different format, those responses are not lost.
You don’t have to do the revised one, but it would be helpful if you could spend the 10-15 minutes to do so… just mention that you completed the original on the last page where people are asked to share any additional comments.
The questions of the initial survey and the current survey are identical, except that the current survey now has four new questions at the beginning that seek consent of the respondents to save and share info (largely due to EU privacy laws).
Every question also gives an explanation as to why the data is requested. Additionally, every question (except the consent questions) now gives us the choice to answer “Prefer Not To Say”.
Posted in Accessibility, Community, Environmental Health, Environmental Sensitivities, Housing, Medically Required Housing, Research
Tagged accessibility, allergies, Chemical Injury, chemical sensitivity, environmental illness, fragrance-free, health, IAQ, invisible disabilities, MCS, multiple chemical sensitivities, pesticide poisoning, safe housing, survey, TILT, toxic trespass
Please take a moment to feel your heart beating.
Not everyone can do this anymore.
While some progress has been made, it’s still too little,
too late for far too many people.
This will not change until more people who have MCS/ES come forward with their stories, and more healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.
“Business as usual is a disaster”
“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
“The Consequences of Disbelief”
“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”
“Amputated Lives: Coping with Chemical Sensitivity”
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School
Links to several chapters of the book, where stories about people’s lives are featured are available here:
Posted in Accessibility, Chemicals, Community, Disability, Ecocide, Environment, Environmental Health, Human Rights, Mental Health, Policy
Tagged accessible housing, barriers, chemical sensitivity, discrimination., employment, environmental sensitivities, health care, Human Rights, invisible disabilities, MCS, multiple chemical sensitivities, systemic, toxic trespass