Category Archives: Disability

MCS/ES: Societal Neglect = No More Fun and Games for Life on the Planet

 

Please take a moment to feel your heart beating.
Not everyone can do this anymore.

While some progress has been made, it’s still too little,
too late for far too many people.

This will not change until more people who have MCS/ES come forward with their stories, and more  healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.

 

“Business as usual is a disaster”
Robert Watson

 

“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
(and neglect)

“The Consequences of Disbelief”

“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”

 

From
“Amputated Lives: Coping with Chemical Sensitivity”
2008
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School

 

Links to several chapters of the book, where stories about people’s lives are featured are available here:

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Can’t Ban Fragrances? Consider a Fragrance Free Zone

This article appears in The Job Accommodation Network’s
ENews: Volume 17, Issue 2, Second Quarter, 2019

JAN provides free, confidential technical assistance about job accommodations and the Americans with Disabilities Act (ADA).

Can’t Ban Fragrances?
Consider a Fragrance Free Zone

Dig into developing a fragrance free zone

From the desk of Linda Carter Batiste, J.D., Principal Consultant/Legislative Specialist

Employees with fragrance sensitivity often need a fragrance free work environment to avoid triggering symptoms. However, it can be difficult to completely eliminate fragrances in some workplaces. Fragrance sensitivity can be triggered by not only perfumes and colognes, but also in some cases by personal products such as deodorant, shampoo, laundry detergent, and lotion. In workplaces with a lot of employees or in which the public has access, trying to control what products people use and enforcing a total fragrance ban can be virtually impossible. So what else can be done? Continue reading

Gain – Sinking Your Disabled Boat

Have you seen the new  “the more the better” Gain detergent ad?

When the delivery woman tries her best not to puke from the Gain fumes,
the Gain user shrugs and the voice-over says:

“Hey, you can’t float everyone’s boat. Love it or hate it, it’s intense.”

!!!

In other words, Gain implies they’re fine with sinking us

(More on what we all think about that later)

The ad starts off with a scene that already promotes an IAQ nightmare:

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Review Finds Ontario Far From Accessible but Report Includes People With Environmental Sensitivities

The Honourable David C. Onley, the 28th Lieutenant Governor of Ontario (2007-2014) was appointed to lead the Third Review of the Accessibility for Ontarians with Disabilities Act (AODA).

The report has now been released.

LISTENING TO ONTARIANS WITH DISABILITIES
REPORT OF THE THIRD REVIEW OF THE ACCESSIBILITY FOR ONTARIANS WITH DISABILITIES ACT, 2005

For most disabled persons, Ontario is not a place of opportunity but one of countless, dispiriting, soul-crushing barriers

Thanks to everyone who wrote in, those of us with environmental sensitivities have been recognized, and thanks to David C. Onley, we’ve been included in the report and the final recommendations:


In the SUMMARY OF RECOMMENDATIONS (on pg 80):

7. Ensure that accessibility standards respond to the needs of people with environmental sensitivities.

 

Other mentions of environmental sensitivities and details:

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So You Think We’re Being Difficult When We ask You to Change Products?

Seriously though:

We are not trying to make your life difficult.

We’re just asking you to choose products that don’t disable us.

“Really? Products we can buy in every store disable you?”

Yes! Everyday products and materials can disable us.

There’s actually a lot of info out there that the things that disable us are harming many other people too, just in different ways.

An info dump of links are included below. Take your time and read through them, as you will learn things that will help you protect yourself and your family in the absence of product and material regulations that should exist to protect us.

In many places, it’s also the law to accommodate us
to the point of undue hardship.

“inconvenience, morale, and preferences are not valid considerations in assessing whether an accommodation would cause undue hardship”

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What’s it Like to Have MCS/ES? Part 3: Toast Chaos

MCS/ES (multiple chemical sensitivities / environmental sensitivities)  is a disability recognized by the Canadian and Ontario Human Rights Codes. There are over a million people with doctor diagnosed MCS in Canada, and so many more all around the world.

In the US, the latest prevalence study found that “among the population, 12.8% report medically diagnosed MCS and 25.9% report chemical sensitivity.”

The term ‘sensitivities’ seems to trivialize the condition in many people’s minds.

You may wonder what’s it really like then, if it’s not trivial?

Here’s how Laura J Mac describes it:

Having MCS means never knowing when you can manage something as simple as making toast.

• Can’t stand up due to pain.

• Can’t figure out all the steps involved to make toast. #execfun

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What’s it Like to Have MCS/ES? Part 2: Curbs

MCS/ES (multiple chemical sensitivities / environmental sensitivities)  is a disability recognized by the Canadian and Ontario Human Rights Codes. There are over a million people with doctor diagnosed MCS in Canada, and so many more all around the world.

In the US, the latest prevalence study found that “among the population, 12.8% report medically diagnosed MCS and 25.9% report chemical sensitivity.”

The term ‘sensitivities’ seems to trivialize the condition in many people’s minds.

You may wonder what’s it really like then, if it’s not trivial?

 

 

From Amy RW Marsh:

I just wrote this analogy for a person who needed one in order to understand EI/MCS:

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