Q ~ If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?
A ~ What I’d really like to tell the world about my life is a full explanation of MCS, such that everyone would understand it enough to prevent, treat and accommodate me and everyone with this illness. That seems like more than I could do even if I had a whole book rather than a blog post. So I will focus my answer on something a bit more manageable.
I would tell the world that the invisible nature of this illness affects me on many levels. Some of the substances I react to are invisible, though they are obviously detected by my body. Some of my symptoms are invisible to others, but are still felt by me and still limit my abilities. Most importantly, the primary survival mechanism of chemical sensitivity is avoidance, which means that I have to avoid public places. Thus, the sicker I am, the more invisible I am to my community. That invisible nature of this illness is the most devastating part for me.
Q ~ How has this one thing affected your life?