I saw this photograph on facebook of Richard Gere and Roshi Joan Halifax hugging (at the Mind and Life “Power and Care” conference), which to me exemplifies the best kind of (adult to adult) hug we humans could have.
Richard Gere and Roshi Joan Halifax
I haven’t been able to stop looking at it… and it made me start trying to remember when the last time I was able to hug someone was.
I don’t think it was in 2010 when I left Toronto, as I was so sick then, and I didn’t have any spare clothes to risk contaminating them with 2nd and 3rd hand fragrance chemicals. Continue reading
Posted in Accessibility, Air Quality, Chemicals, Community, Disability, Environmental Health, Fragrance, Human Rights, Pollution, Toxic Trespass
Tagged chemical sensitivity, environmental sensitivities, hazardous air pollutants, invisible disabilities, isolation, laundry, MCS, MCS/ES, pesticides, petrochemicals, solitary
Who should be isolated?
The poisoned or the poisoners?
When we develop MCS/ES, we are told to avoid the triggers that disable us. Yet, far too often, fragrance chemicals are the biggest triggers of disabling effects, yet they are in everything, and everywhere now.
To follow doctors orders, and to have some quality of life (like the ability to look after ourselves), when others at work or elsewhere won’t stop using toxic products, we have to stay isolated in our homes (if we’ve found a safe one). It’s just like being in prison… but for crimes we did not commit.
WE who are immediately disabled by these harmful pollutants are being forced into prisons of isolation for crimes the chemical and fragrance industry are committing, like when they hide oil and gas industry toxic waste chemicals into everyday products and materials, without listing them on labels, they are causing a public health crisis, a crisis that most people are unaware of.
WE who become disabled are being imprisoned for their crimes of saturating people (and our air and water) with toxic chemicals, and so, if we are to be able to see our friends and loved ones, we need to be protected from them, in environments kind of like this:
Posted in Accessibility, Air Quality, Chemicals, Environmental Health, Toxic Trespass
Tagged allergies, asthma, barriers, cancer, chemical sensitivity, environmental sensitivities, fibromyalgia, Fragrance, fragrance chemicals, hazardous air pollutants, IAQ, isolation, MCS, MCS housing, petrochemicals, prison, segregation, sensitivities, systemic barriers
Amy from Florida shares this with us:
Q ~ If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?
A ~ What I’d really like to tell the world about my life is a full explanation of MCS, such that everyone would understand it enough to prevent, treat and accommodate me and everyone with this illness. That seems like more than I could do even if I had a whole book rather than a blog post. So I will focus my answer on something a bit more manageable.
I would tell the world that the invisible nature of this illness affects me on many levels. Some of the substances I react to are invisible, though they are obviously detected by my body. Some of my symptoms are invisible to others, but are still felt by me and still limit my abilities. Most importantly, the primary survival mechanism of chemical sensitivity is avoidance, which means that I have to avoid public places. Thus, the sicker I am, the more invisible I am to my community. That invisible nature of this illness is the most devastating part for me.
Q ~ How has this one thing affected your life?
Posted in Accessibility, Chemicals, Disability, Education, Environmental Health, Mental Health
Tagged Fragrance, invisible, invisible disabilities, isolation, public space, risk, TILT, visibility
I recently received a virtual gift from a friend and wanted to make my own version to share with you, because I know how difficult life can get, especially when we are isolated and facing challenges most people cannot relate with.
Here then is the gift bag I created for you!
Even though I am totally housebound, with no family at home, with little to no ability to visit with them or friends, either here or anywhere, due to my severe MCS/ES, I found this article from Toni Bernhard to have some lovely, helpful coping ideas. I’m sharing it with you in case you find yourself alone, or having to bow out of gatherings, if you find yourself in need of more tools to try out, whether or not it’s the holiday season:
How to Ease the Pain of Isolation During the Holidays
Three simple practices can help you feel less alone during the holidays.
For some of us, this (electronic social media) is all we have to ease our isolation, not because people won’t put down their wireless devices (although this is a factor for reasons not brought up in the video), but because people won’t stop buying and using products made with fragrance and other toxic chemicals.
A lot of people and sites are sharing this video (it has been viewed over 17 million times in the week since it was posted, and with good reason). Too bad there is no mention of the adverse health effects wireless radiation can cause.
What else aren’t we seeing?
What is civilized about having toxic chemicals in so many everyday products and materials?
What is civilized about extracting and using fossil fuels from the earth in ways that cause harm to all living beings?
What is civilized about denying health care and safe housing to people who need it?
When I saw this image, it spoke to me…
But it needed a slight revision… It wasn’t my “dream” to cut ties with civilization, it was my prescription!
So here is what I did and why:
Posted in Accessibility, Environmental Health, Healthy Environment, Images, MCS/ES
Tagged assault, environmental sensitivities, images, isolation, living with MCS / ES, MCS, multiple chemical sensitivities, sensitive to pollution, society, toxic trespass