Linda,
Alison Johnson’s Introduction to MCS was great – thanks for sharing. Your blog/website is amazing – thanks for your hard work.
A motivational speaker just today asked me to point her to info about MCS for her sister. I think your website will have another guest soon!
Linda
Linda, Thank you for posting Alison Johnson’s latest film
“Multiple Chemical Sensitivity: A Short Introduction”. This video including representation from a leading Professor of Public Health at Harvard, and the U.S. Department of Housing and Urban Development will go a long way in validating the reality and range of severity of MCS; of which far too many suffer horribly and have been disgracefully neglected and denied their basic Civil and Human Rights of access to essential life activities, as well as the care they so desperately need for far too long now.
Yes. My appreciation to all those who were involved in making the video, and to Alison Johnson in particular, for working so tirelessly on the cause all these years.
Where I work, the company has a “volunteer” fragrance-free policy. What is this good for??? Co-workers do not understand/ or just don’t care.
My doctor does not believe in MCS. He is not supportive, but still gave me time off to get better, and said : “that’s it after that- just go back to work-”
It’s awful, and trying hard to keep my head on straight and not let myself fall into depression.The manager thinks that I should wear a mask all day. It’s embarassing and hard to breathe in those masks.
I hope one day this can be diagnosed. I know I am getting worse now.
Thank you so much for your work! You are making a difference in this life.
Thank you.
I’m so sorry you are having trouble getting accommodated. Unenforced policies aren’t good for much if people won’t co-operate.
I wouldn’t be embarrassed about wearing a mask, but if it’s difficult to breathe in it, then it isn’t a reasonable accommodation, especially if it’s meant to help you breathe, sigh…
If you are in Canada, especially Ontario (I’m not familiar with the Human Rights Codes in other provinces), there’s a duty to accommodate…
That said, it’s easier with the diagnosis. Ontario, Nova Scotia, and now BC (theirs is getting up and running) have facilities that can diagnose if your own doctor can’t.
Also, there are diagnostic tools here if your doctor is willing to self-educate a bit:
Ontario College of Family Physicians Environmental Health Committee Publications http://www.ocfp.on.ca/committees/env-health/publications
I’ve just updated the video link as I noticed the original was no longer available.
It’s possible the film itself was also updated in 2016
(I posted the original in 2012).
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
CHE Toxicant and Disease Database
a searchable database that summarizes links between chemical contaminants and approximately 180 human diseases or conditions.
Sandra Steingraber
, an acclaimed ecologist and author, explores the links between human rights and the environment, with a focus on chemical contamination
Toxic Clout
explores how the industry’s actions create uncertainty and delay, threatening public health. The Center for Public Integrity
TOXNET
– Databases on toxicology, hazardous chemicals, environmental health, and toxic releases.
UCSF Program on Reproductive Health and the Environment
PRHE has developed a series of brochures that describe the common types and routes of exposure to toxic substances and provide evidence-based recommendations on ways to reduce those exposures
US Chemical Policy Reform
Physicians for Social Responsibility… statements from a number of organizations concerned about the new bill
Washington Toxics Coalition
We promote alternatives, advocate policies, empower communities and educate people to create a healthy environment.
Food
Buy Non-GMO
Buying non-GMO not only impacts your own and your family’s health concerns, it also influences the buying decisions of food manufacturers, distributors, and retailers.
Cultivating Food Co-ops
– resources and tools to meet the needs of those involved in sustainable food and farming co-operatives
Dr Vandana Shiva and Navdanya
are actively involved in the rejuvenation of indigenous knowledge and culture. It has created awareness on the hazards of genetic engineering, defended people’s knowledge from biopiracy and food rights in the face of globalisation and climate chan
Dr. Anne C. Steinemann
Resources: Fragrance-Free Policies, CDC Indoor Environmental Quality Policy, Leaders for Healthier Air, Air Freshener Fact Sheet, Green Clean Fact Sheet , Toxic Chemicals in Air Fresheners, Toxic Chemicals in Fragranced Laundry Products
Center for a New American Dream
We seek to cultivate a new American dream—one that emphasizes community, ecological sustainability, and a celebration of non-material values.
Sandrup Jongkhar Inititiative, Bhutan
establishing food security and self-sufficiency, protecting and enhancing the natural environment, strengthening communities, stemming the rural-urban migration tide, and fostering a cooperative, productive, entrepreneurial and self-reliant spirit
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Chemical Sensitivity Foundation
The primary goal of the Chemical Sensitivity Foundation, a 501(c)3 nonprofit corporation, is to raise public awareness about multiple chemical sensitivity.
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
Environmental Health Center-Dallas
The mission of the Environmental Health Center – Dallas is to provide superior medical care and education with a special emphasis on the effects of environmental factors on health and disease.
Scent Reduction at Southlake Hospital
FAQ – an introduction (note, reduction is not the same as elimination, and they don’t mention scented laundry products, which can be worse than perfumes)
Miscellaneous
Amelia Hill
from Australia, her MCS story and resources
Marie LeBlanc
Canadian disability artist Marie LeBlanc advocates for those living with environmental sensitivities/multiple chemical sensitivity through her art.
Paradigm Change
While we are interested in all kinds of toxins (including heavy metals, pesticides, herbicides, fire retardants and other chemicals), a particular focus is on the biotoxins made by molds, cyanobacteria and other microorganisms.
Safe Canary Nest
Excellent compilation of resources for canaries
ThinkBeforeYouStink
An educational resource for reducing your chemical and fragrance footprint, improving your health, and making your home or business safe and accessible for all.
Orion Magazine
to inform, inspire, and engage individuals and grassroots organizations in becoming a significant cultural force for healing nature and community.
The Story of Stuff Project
Short, easily shareable online movies that explore some of the key features of our relationship with Stuff
News
Environmental Health News
a foundation-funded news organization that advances the public’s understanding of environmental health issues by reporting and publishing news stories and providing daily access to news from other media around the world.
O Ecotextiles
Excellent info on chemicals in textiles and furnishings
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
Bio Initiative
—A rationale for a biologically-based public exposure standard for electromagnetic fields
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
The BabySafe Wireless Project
a joint initiative of two environmental health non-profit organizations providing info like What You Should Know About Wireless Radiation and Your Baby
The Switch2Safe project
exists to inform the public of the dangers of e-pollution and to advise on ways to lower it in the home, at work and other public places
Linda,
Alison Johnson’s Introduction to MCS was great – thanks for sharing. Your blog/website is amazing – thanks for your hard work.
A motivational speaker just today asked me to point her to info about MCS for her sister. I think your website will have another guest soon!
Linda
Thank you! As my own health improves, I hope to add even more useful information.
Linda, Thank you for posting Alison Johnson’s latest film
“Multiple Chemical Sensitivity: A Short Introduction”. This video including representation from a leading Professor of Public Health at Harvard, and the U.S. Department of Housing and Urban Development will go a long way in validating the reality and range of severity of MCS; of which far too many suffer horribly and have been disgracefully neglected and denied their basic Civil and Human Rights of access to essential life activities, as well as the care they so desperately need for far too long now.
Yes. My appreciation to all those who were involved in making the video, and to Alison Johnson in particular, for working so tirelessly on the cause all these years.
Where I work, the company has a “volunteer” fragrance-free policy. What is this good for??? Co-workers do not understand/ or just don’t care.
My doctor does not believe in MCS. He is not supportive, but still gave me time off to get better, and said : “that’s it after that- just go back to work-”
It’s awful, and trying hard to keep my head on straight and not let myself fall into depression.The manager thinks that I should wear a mask all day. It’s embarassing and hard to breathe in those masks.
I hope one day this can be diagnosed. I know I am getting worse now.
Thank you so much for your work! You are making a difference in this life.
Thank you.
I’m so sorry you are having trouble getting accommodated. Unenforced policies aren’t good for much if people won’t co-operate.
I wouldn’t be embarrassed about wearing a mask, but if it’s difficult to breathe in it, then it isn’t a reasonable accommodation, especially if it’s meant to help you breathe, sigh…
If you are in Canada, especially Ontario (I’m not familiar with the Human Rights Codes in other provinces), there’s a duty to accommodate…
That said, it’s easier with the diagnosis. Ontario, Nova Scotia, and now BC (theirs is getting up and running) have facilities that can diagnose if your own doctor can’t.
I have some info here on human rights and the Ontario clinic:
http://lindasepp.wordpress.com/2012/11/20/canadian-recognition-of-mcses-multiple-chemical-sensitivitiesenvironmental-sensitivities/
Also, there are diagnostic tools here if your doctor is willing to self-educate a bit:
Ontario College of Family Physicians Environmental Health Committee Publications
http://www.ocfp.on.ca/committees/env-health/publications
I’ve just updated the video link as I noticed the original was no longer available.
It’s possible the film itself was also updated in 2016
(I posted the original in 2012).
Forgot to add her new blog site link there, so I’ll drop it here:
https://alisonjohnsonmcs.wordpress.com/