Monthly Archives: August 2015

Guest Post: Euthanasia and Disability Rights

Monique and I both live in Ontario, Canada, where there are new discussions happening both provincially and federally regarding “assisted suicide”, “death with dignity”, the right to die, and euthanasia (I may have missed a few other terms used).

We both have MCS/ES, and are confronted with systemic discrimination and barriers to access with almost every breath we take. Breathing is not optional. And we are not alone. There are hundreds of thousands of us in Canada, and millions around the world.

Open letter in support of Euthanasia and Rights for those with diseases that defy accommodations

Guest Post by Monique

I Am Easy to Ignore

I am female
I am over 60
I am divorced and alone
I am a student
I have lower employability
I have invisible disability
I was abused
I have depression + ADD.
I do not feel strong

The biggest and most painful ordeal is people who lack the ability to reduce the perfumes they wear in public… who value their vanity above the good of others. I cannot exist without the kindness of strangers. I do not want to live without my Right to life-sustaining air. I do not want to explain why I cannot breathe your scents and subsist in the lifestyle you value and have grown attached to. I cannot live in your chemical soup.

I am a canary. I have MCS. Although canaries have saved many from disasters, their deaths are never celebrated. I feel like I will soon be sacrificed so that many will continue to breathe good quality air.

I would like to give a voice to those canaries. I’d like to call upon every canary on this planet to stand up and be counted. I want every canary not to die in vain. Continue reading

Your Wireless Devices Have Secrets

If you own ANY wireless devices, you really want to know about these secrets.

Right to Know 2

The following video is a must see video. It’s very easy to understand. These are secrets you need to know about, as if your life depended on it, because it actually might.

Highlights from the Massachusetts Statehouse Briefing on Wireless and Public Health:

Continue reading

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

The new online resource from ADA Hospitality, Accessible Meetings, Events & Conferences addresses chemical and electrical sensitivities in their planning process.

“The guide is an updated version of a 1993 work authored by June Isaacson Kailes and Darrell Jones. The Mid-Atlantic ADA Center and TransCen Inc. sponsored the update and publication in recognition of the 25th anniversary of the ADA. The updated version includes both regulatory updates along with practical guidance from meeting planning professionals and subject matter experts.

Mary Lamielle, Executive Director of the National Center for Environmental Health Strategies (NCEHS), was invited to comment on the 1993 Guide for the update. She made extensive recommendations addressing the access needs of people with chemical and electrical sensitivities.

The following pages include the NCEHS fact sheet Planning an Accessible Meeting or Event for People with Environmental Sensitivities or Intolerances and recommendations that were incorporated into the just-issued guide. Those with environmental sensitivities are urged to use the fact sheet and the guide to substantiate individual disability accommodation needs and to ensure all meetings are healthier for everyone.”

Continue reading

When They Poisoned the Pests, I Didn’t Care

waves 1c

 

 

 

 

When they poisoned the pests,

I didn’t care, because I wasn’t a pest…

When they poisoned the frogs,

I didn’t care, because I was not a frog…

When they poisoned the birds,

I didn’t care, because I wasn’t a bird…

When they poisoned the air,

I didn’t care, because it was on the other side of the planet…

When they poisoned the ocean,

I didn’t care, because I wasn’t a fish…

When they poisoned the lands,

I didn’t care, because it wasn’t near my land…

When they poisoned the people,

I didn’t care, because it wasn’t anyone in my family…

(besides, those people with MCS/ES were acting all crazy, wanting me to change my laundry products, stop using fragrances, and get rid of my wi-fi, among other things)

Continue reading

Webinar to Increase Smoke-Free Policies in Federally Assisted Housing (US)

Smoke and chemicals (such as fragrances, air “fresheners”, laundry products, pesticides, and other VOCs) do not respect property lines as they travel throughout space, often making others quite sick, even disabling them in their own homes. This is especially a problem in multi-unit housing, and where housing units are built close together.

This is also a very serious accessibility issue for people with MCS/ES, as there are few affordable housing options available, and most of these put people at risk of further  harm due to indoor air pollution issues, despite HUD and other federal agencies in the US and Canada recognizing MCS/ES as a disability that needs to be accommodated.

The following webinar is about addressing smoke, but the issues are applicable to other forms of indoor air pollutants as well. It should also be available as a podcast later.

For those of you who are interested and able,  the webinar is being offered on Wed, Aug 5, 2015 2:00 PM – 3:30 PM EDT by the Asthma Community Network

Breathing Easy at Home: Partnering to Increase Smoke-Free Policies in Federally Assisted Housing

live smoke free webinarMore info: Continue reading