Category Archives: Disability

Canadian Recognition of MCS/ES (Multiple Chemical Sensitivities/Environmental Sensitivities)

The Canadian Human Rights Commission

Policy on Environmental Sensitivities

Individuals with environmental sensitivities experience a variety of adverse reactions to environmental agents at concentrations well below those that might affect the “average person”. This medical condition is a disability and those living with environmental sensitivities  are entitled to the protection of the Canadian Human Rights Act, which prohibits discrimination on the basis of disability. …

UPDATE 2013: see Canadian Human Rights Documents Archived

Ontario’s Human Rights Code

What is disability?

“Disability” covers a broad range and degree of conditions, some visible and some not visible. A disability may have been present from birth, caused by an accident, or developed over time. There are physical, mental and learning disabilities, mental disorders, hearing or vision disabilities, epilepsy, drug and alcohol dependencies, environmental sensitivities, and other conditions.

The Code protects people from discrimination because of past, present and perceived disabilities. For example, the Code protects a person who faces discrimination because she is a recovered alcoholic. So is a person whose condition does not limit their workplace abilities, but who is believed to be at greater risk of being able to do less in the future.

http://www.ohrc.on.ca/en/disability-and-human-rights

CERA the Centre for Equality Rights in Accommodation

…While environmental sensitivities are not well understood by the general public, they are recognized by Health Canada, the Canadian Health Network, the Canadian Centre for Occupational Health and Safety, the Canada Mortgage and Housing Corporation, the Canadian and Ontario Human Rights Commissions, the Ontario Medical Association and the Environmental Health Committee of the Ontario College of Family Physicians – among others….

http://www.equalityrights.org/cera/?page_id=674

Environmental Health Clinic

The Environmental Health Clinic is a unique multidisciplinary clinic, and the only one of its kind in Ontario. It was established in 1996 by the Ministry of Health and Long-Term Care to be a provincial resource in promoting environmental health, and to improve health care for people with environment-linked conditions such as chronic fatigue syndrome, fibromyalgia and multiple chemical sensitivities.

The Environmental Health Clinic is the clinical part of a joint clinical and research program of Women’s College Hospital and the University of Toronto.

http://www.womenscollegehospital.ca/programs-and-services/environmental-health-clinic469/

This post is in response to a request.

If anyone can provide other links, including the sources mentioned by CERA, I will add them.  Thanks in advance.

HRV and MCS… an update

The HRV (heat recovery ventilator) broke down in March.

September 25th was the 1st time they came to install the new one. At that time it was discovered that neither the people ordering the HRV, the people selling HRVs, or the people installing them thought to ask if the intake and exhaust vents would be in the same location on the new machine as on the old machine.

They were not.

After a lot of humming and hawing it was decided to keep the new unit and build out more ducts to make it fit. The duct material had to be ordered in. Apparently it was special and not in stock.

They finally came back, Friday the 16th of November. Now that it is too cold out to open windows without the heating system coming on (or freezing, I still don’t have adequate safe warm clothing, but that’s another story) they came back.

And wouldn’t you know it, there is something in the new system that isn’t good for me, and, it gets sucked through the ducts whenever the heat goes on, even if the HRV is turned off.

It might be because

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MCS/ES Housing Resources From CERA

This information can now be found in the Property Manager’s Guides to MCS

Emergency Preparedness and Disaster Relief for People with Chemical and Electrical Sensitivities

(Thanks to Mary Lamielle)

Providing Services for People with Chemical and Electrical Sensitivities (CS/ES) in Emergency Management

Educate yourself and your agency or organization about the needs of people with chemical and electrical sensitivities (CS/ES).

Identify and work with the CS/ES in your community to determine how to best meet their needs.

Provide notification to people with CS of any toxic event so that they can take precautions or evacuate as necessary.

Establish a registry as a means to provide advance notification.

Keep the needs of those with CS/ES in mind as emergency preparedness plans are developed.

Work to ensure emergency services and shelters are accessible for people with CS/ES.

Be prepared to respond to any emergency affecting the CS even if the balance of the population is not significantly affected.

Provide for the safe evacuation, if necessary, for those who cannot use public transportation.

Provide outreach to people with CS/ES who are unable to get to or be accommodated in a shelter.

Prohibit smoking in the vicinity of people with CS and protect those with CS from exposure to combustion sources including gasoline and diesel exhaust, propane, and similar exposures.

Use least toxic/allergenic cleaning and maintenance products and Integrated Pest Management (IPM) practices with least toxic/low impact products, if necessary.

Adopt and promote best practices policies that restrict the use of fragrances and the purchase and use of fragranced and scented products in emergency services.

Restrict the use of cell phones, smart phones, and similar devices in the vicinity of people with ES.

These tips were provided by Mary Lamielle,
National Center for Environmental Health Strategies, Inc.
“Addressing the Needs of People with Chemical and Electrical Sensitivities and Fragrance-Free Policies in Emergency Preparedness,”
New Jersey GAINED, January 25, 2012.

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Undisclosed chemicals in fragranced products (new video)

Independent researcher Dr. Anne Steinemann was recently interviewed by Dr. Joseph Mercola about undisclosed toxic chemicals found in laundry products, air fresheners, cleaners, lotions and other (mostly) fragranced consumer products.

She will be testing foods found in supermarkets for fragrance chemicals. Many of us have had to stop buying food from supermarkets etc because they taste like fragrance and cleaning product chemicals.

She also notes that just because a product is “fragrance free”, doesn’t mean it really is, or that it doesn’t contain other harmful chemicals.

Important, worthwhile interview, especially if you don’t know what all the “fragrance-free” fuss is about.

For more info, see Dr. Steinemann’s website

Diagnosing Electromagnetic Hypersensitivity and “The effects of invisible waves”

The Environmental Health Clinic at Women’s College Hospital in Toronto recently held an educational event on the environmental health condition called electromagnetic hypersensitivity (EMS, aka EHS). Dr. Ray Copes, chief, environmental and occupational health, Public Health Ontario, Dr. Magda Havas, associate professor of environmental and resource studies, Trent University, and Dr. Riina Bray, medical director, Environmental Health Clinic, WCH were among the speakers.

“We need to create more awareness about this condition,” said Dr. Riina Bray. “Health-care practitioners need to better understand EMS (EHS) so they can help their patients prevent and manage their symptoms. The public needs to know how to protect themselves from the broad range of health impacts electromagnetic fields have on their minds and bodies.”

Recognition of EHS is slowly growing as more people are affected. The number of wireless devices is growing, and it’s difficult to avoid exposure. Smart meters on every house, cell phones in nearly every pocket, cell towers in every neighbourhood, wifi in every other café and home… Never before in human history have we been exposed in this way.

I personally am lucky that compared to some people, my EHS symptoms are mostly mild to middling, although they have been severe at times.

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Not so Equal Access to Health Care in Ontario or Systemic Barriers to Access for People with MCS/ES

Some places like Ontario, where I live, have disability access laws that state service providers, including those in healthcare, must accommodate people who are disabled.

On a government website, it states:

Barriers to accessibility are obstacles that make it difficult — sometimes impossible — for people with disabilities to do the things most of us take for granted — things like going shopping, working, or taking public transit… 

(or receiving health care services)

When we think of barriers to accessibility, most of us think of physical barriers — like a person who uses a wheelchair not being able to enter a public building because there is no ramp.

The fact is there are many kinds of barriers. Some are visible. Many are invisible:

•    Attitudinal barriers are those that discriminate against people with disabilities.

•    Organizational barriers are an organization’s policies, practices or procedures that discriminate against people with disabilities.

•    Architectural and physical barriers are features of buildings or spaces that cause problems for people with disabilities.
Chemical or “environmental” barriers prevent people like myself who have disabling medical conditions from breathing and functioning properly when exposed to these invisible, toxic and disabling barriers, resulting in both short and long term impacts.

How many of us do not have safe access to healthcare in Ontario?
How many of us do not have safe access to healthcare in Ontario?

In the ” Guide to the Accessibility Standards for Customer Service, Ontario Regulation 429/07″,  it says that Hospitals and health services provide goods or services  and as  designated public sector organizations should have been in Compliance by January 1, 2010…

It also states:
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Air Quality and Accessibility in Health Care; Why Aren’t All Health Care Providers Fragrance-Free?

Can you smoke in a hospital or doctor’s office? No. Why not? Because smoke adversely impacts air quality and our health (despite what the tobacco industry has tried to claim).


So why then are fragrance chemicals still allowed in these environments?

One would think that with so much information about how harmful most fragranced items are, and how easy it is to find fragrance free substitutes, that the health care profession would be the first to embrace fragrance-free, low to no VOC indoor environments for both themselves and all the sick and vulnerable people they serve. This includes children, people with asthma, autism, heart and respiratory diseases, migraines, chemical and environmental “sensitivities”, and others who are prone to having symptoms greatly exacerbated by fragrance chemicals and poor indoor air quality.

We know some fragrance ingredients cause cancer. We know some are endocrine disruptors. Some are even neuro-toxic.  Fragrance chemicals trigger asthma, allergies, migraines, and mild to life threatening symptoms in people. Some of the chemicals have been linked to early puberty in girls, reduced sperm counts in men, reproductive defects in the developing male fetus (when the mother is exposed during pregnancy),  and hormone disruption which leads to some cancers, thyroid disease, obesity, and diabetes. There is also evidence suggesting that exposure to one of the ingredients that make fragrances last longer and stick to everything may cause liver and kidney failure in young children. What more are we waiting for?

Graphics by Roslyn Rodgers, health effects text by Linda Sepp.

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Toronto: ME/CFS, Fm and MCS Awareness Day‏ May 12, 2012.

City of Toronto Proclamation
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day
May 12, 2012

WHEREAS the Myalgic Encephalomyelitis Association of Ontario is a non-profit organization that has served our community since 1991, to support individuals living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities.

Over 568,000 Ontarians are afflicted by these three chronic illnesses. Once diagnosed, one is often ill for years and as many as 70 per cent are disabled for life. These illnesses affect men, women and children of all backgrounds and presently the cause is unknown.

Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (ME/CFS), is a neurological and autoimmune disease characterized by overwhelming fatigue, pain, headaches, cardiac symptoms, immune disorders, dizziness and balance problems.

Fibromyalgia (FM) is characterized by severe musculoskeletal pain and tenderness in many areas of the body, along with fatigue and sleep dysfunction, generalized or regional stiffness and in some cases neurological and cognitive symptoms. This pain can become strong enough to prevent people from working or engaging in physical activities for months and even years.

Multiple Chemical Sensitivities (MCS), also called Environmental Sensitivities or Intolerance, is characterized by an unusually severe sensitivity or allergy-like reaction to many different kinds of pollutants such as chemicals, perfumes and other environmental triggers.

NOW THEREFORE, I, Mayor Rob Ford, on behalf of Toronto City Council, do hereby proclaim May 12, 2012 as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day” in the City of Toronto.

Mayor Rob Ford

http://www.toronto.ca/proclamations/2012/chemicalsensitivities2012.htm

Scared or sacred?

When you encounter suffering, either your own or others’, do you close your heart in discomfort or fear and do whatever you can to distract yourself from feeling whatever comes up?

Or do you open your heart wide and approach whatever arises with compassion and kindness?

“Scared Sacred” is the 1st in a series of three films by Velcrow Ripper. It shows people who have been opening their hearts in the face of enormous suffering.

I am grateful to have run across this film now, available to view for free online via the National Film Board. (I hope the link embeds properly, I’ll also share the page link below in case it doesn’t)

Scared Sacred

In case the film did not embed above, you can find it here:

http://www.nfb.ca/film/scared_sacred

 

Some may wonder what MCS/ES has to do with the film, and although the connection isn’t direct, most of us who live with MCS/ES will relate. MCS/ES doesn’t exist in a vacuum… it’s all interconnected. All too often, we see and feel how people close their hearts and minds to us, choosing to use toxic and harmful products instead of changing to safer ones that would make our lives so much easier, and are also better for everyone’s health and the environment. I know of many people who are still struggling to access safe housing and health-care, all over the world, while being assaulted by toxic exposures from everyday products and materials, and by people who find it easier to ridicule than help, although fortunately, this is slowly changing as more and more people understand how their own health is also threatened by the harmful ingredients we are all exposed to.

Some very difficult personal memories of events from the past few years have been surfacing lately too, fragmented memories that I don’t know how to process yet, and the brain injury is making more difficult… Some are of human kindness, some of indifference, and others are of cruelty…

I’ve also learned that my dear 101 year old grand-mother whom I haven’t been able to see in years, is preparing to leave her body soon. It fills me with sadness that I can’t be with her, although I am grateful that for months I was able to talk with her more or less weekly until her birthday in March, it’s not at all the same as being there for her in person.

These are some of the things that are challenging me these days, and I often want to retreat from the pain, but there’s no-where to go. I try to open my heart, but it’s not always easy, yet I know my only real option is to find the love within, and to open my heart to the suffering of others, and to practice tonglen (as seen in the film) when I’m able. I also know that if we want more kindness in the world, we have to be kind with ourselves too, and that we are all in this together. I’m very fortunate to have a supportive online community, so I don’t have to feel alone during these difficult times, and I hope for a kinder, more caring world for all.

I’d like to say more, or to have said it better, but my brain isn’t co-operating. The HRV broke down almost 2 months ago and  there’s been a dearth of fresh, unpolluted, smoke-, pesticide-, fragrance- and laundry chemical free outdoor air here so my brain isn’t functioning very well. I have a jumble of thoughts, all connected in my life, without the ability to put them together now, but I can appreciate a good film when I see it.

I hope you find Scared Sacred and Velcrow’s other work as inspiring as I do.

Here’s the website where you can read more about the film: http://www.scaredsacred.org/

 
Velcrow Ripper’s second film “Fierce Light” is here: http://www.fiercelight.org/

 
He is currently editing his 3rd film, “Occupy Love”     http://occupylove.org/