Category Archives: Fragrance

How NOT to Do a Scent (or fragrance) Policy

This is why so many people with MCS/ES, MCAD/MCAS, asthma, migraines,  and fragrance allergies and sensitivities lose their jobs and end up  housebound.

When policies are mere wallpaper, they become dangerous.
Real people’s lives and well-being are threatened.

Please, do not put up a sign if you are not going to respect or enforce it.

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Sharing My Truth

Jacqueline originally shared her public speaking experience at a noncompetitive StorySlam with the theme ‘Misunderstood’ in a fb group, and very graciously accepted my invitation to share her story here with you.

 

Guest Post by Jacqueline Rice

Photo of me sharing my truth @ Ex Fabula (from stories), the MKE storytelling organization.   Photo from Ex Fabula

 

Here’s the excerpt from the blog entry from their website:

Invisible Stories

“Not all stories have a resolve, but instead bring a call to action. Like Teller Jacqueline, who shared her invisible disability with the crowd. Due to carbon monoxide poisoning Jacqueline was forced to alter her lifestyle in dramatic ways. Her exposure to carbon monoxide caused her to be intolerant to chemicals such as perfumes and sprays. Because of this, Jacqueline can’t be in many public spaces. Thank you, Jacqueline, for using your voice and story to advocate for many others with invisible disabilities.”

How it felt for me at the mic in front of 200+ people: Continue reading

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Judge Brett Kavanaugh’s Father Made a Fortune Representing the Fragrance Industry

This really stinks.
These guys don’t care how much anyone suffers if they can keep profiting.

via Judge Brett Kavanaugh’s Father Made a Fortune Representing the Fragrance Industry

“According to an article published by the New York Times on July 14, 2018, Judge Brett Kavanaugh’s father, Edward Kavanaugh, “was paid $13 million, including his retirement package, in 2005, his last year at the Cosmetics, Toiletry and Fragrance Association,” an organization of which he became president in 1972.  His yearly salary at the point of his retirement was $5 million. ” …

no more

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11 Reasons To Stop Using Fragrances and Implement Fragrance-free Policies

Here are 11 excellent  reasons to stop using and allowing fragrances in your home, at work,  in healthcare, in housing, at school, in transportation, in retail, and in other public places:

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Acts of Festive Kindness

Christmas, Birthdays, and Other Holidays with MCS/ES

For most people, these special occasions are times of joy and celebration in the company of friends and loved ones, but for people with invisible disabilities and chronic illnesses like MCS/ES, they can be sad reminders of the lives that we no longer have  access to.

We are still seldom  included in the festivities and are usually left alone to fend for ourselves. Unfortunately, since human beings are social beings, not everyone is well equipped to self occupy, and  some people become seriously depressed and even suicidal because of this.

To realize it’s because some friends, family, neighbours, and co-workers prefer to keep using certain products instead of using other products so we can safely be around them and enjoy their company,  makes it even harder for us, knowing they care more about the products they buy than they care about us. It’s a heart breaking thing to have to live with.

 

  Thankfully, not everyone chooses products over people 

 

Before I became too chemically injured to socialize in crowds, I had a wonderful friend who happily made the effort to make her place and parties safe for me!

In 2005  her invites were all sent out with these words:

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How to Survive the Holidays with EI and (Possibly) Not End Up Alone or Wanting to Give Your Family the Boot (Part Four)

Part Four of Four

(Part One, Part Two, Part Three)

Guest post by Che Ray

 

If you are hosting the family in your own home, it is true, you must take every precaution.  Otherwise their stink will be there long after they leave.  If they come in with stuff and it gets on your furniture, it will be bad.

Here is a suggestion: let them know in advance that before they enter the house they will have to be willing to have you test whether they are wearing anything that is triggering for you. Then when they arrive, if you have a good friend who gets what you are dealing with, have them first go to the cars of the people who are coming. He or she can do a preliminary test. If she senses something she can be the one to tell them what the problem is.

If you have sent them detailed emails in advance of everything they need to eliminate (she can even bring the check list to the car) then this will come as no surprise. They won’t be mad at you, they will feel bad. And that’s OK. That is the part of the learning process on their end.

If they make it to the front porch, you go outside and test again.  When you first greet them, I suggest having your mask on.  It will let them know right away what the situation is.  Take it off briefly to assess the situation.  If you feel comfortable taking it off at some point later in the evening, you can simply say, I am going to do a test to see how I do.

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How to Survive the Holidays with EI and (Possibly) Not End Up Alone or Wanting to Give Your Family the Boot (Part Three)

Part Three of Four

(Part One and Part Two)

Guest post by Che Ray

 

Here are some things I would recommend: even when it’s a stuck in bed day…

I: Don’t try to do too much physically. Definitely let your body rest, but also do something active to restore your mind like listen to a meditation talk or guided meditation. Tarabrach.com or jonathanfoust.com are great!  I recommend them highly.  This will help you get restorative rest, which is a much deeper, more relaxing experience.

II: I only recently discovered an online language tutorial called Mango. It’s free if you have a public library card. It is an awesome interactive language learning app. It has everything from Spanish to Swahili, to Pirate (really, it’s super fun and funny!) to Yiddish; dozens of languages.

I have a brain injury from the toxic exposures but have not been able to get the kind of occupational therapy I need which has been depressing. One day I thought, what can I do to keep my mind stimulated?  And I came across this. Even if you don’t want to dedicate yourself to learning a new language, 10 minutes of mimicking Pirate language is going to make you laugh and feel better. And it’s good for your brain.

 

III.  You are a superhero.

Recruit other people in your life to join your fight.

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