Monthly Archives: May 2013

Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

Need Protection?

To Breathe, That Is…

I was looking up masks and found these ads…
I am a bit (but not entirely) speechless…

Find a Mask to Filter Fragrance From Work HVAC Systems

“Companies across the globe are including fragrances in their heating and ventilation systems. It’s part of what emotional branding companies such as DMX call a multi-sensory experience. Retail stores may use scent in combination with audio and visual systems to enhance brand awareness. Smell associations, say DMX, are so strong they can even increase worker productivity. Whatever the reason, these scent systems can make it difficult for employees working in the affected areas who have fragrance sensitivities.”

While it won’t be possible for all workers in controlled scent environments to wear respirators, for those who can, we have a few suggestions:

http://blog.pksafety.com/a-respirator-mask-to-filter-out-fragrance-from-the-hvac/

I do know people who have to wear a mask just to go to work. It’s a horrible way to have to live when toxic chemicals are used everywhere everyday by almost everyone, and so much worse when pumped into the air deliberately. In fact, I don’t think anyone with MCS/ES or respiratory symptoms could work (or visit or shop) in an environment with deliberately pumped in fragrance chemicals, even wearing a mask.

That’s why we have human rights legislation to provide fragrance or scent free policies for working environments (see the sidebar or resources page at the top). These policies actually end up benefitting everyone’s health, not just those of us who are “sensitive”. Soon (but not soon enough) that will change to basic public health legislation, as it has for smoking.

Some multi-unit housing complexes have introduced smoke free rules, but so far there are very few housing options with fragrance free rules. We need them. Wearing a mask all day and night just isn’t feasible or possible, even if we tolerate the (mostly synthetic) materials they are made of, which many of us don’t.

Did you know there are masks for kids? These just make me really sad…

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How My Descent to Fragrance Hell Began

Manufactured fragrance ingredients have had a huge and mostly negative impact on my life, beginning with the “Chanel No.5 Eau de Cologne” my mother used to douse herself with in the 70’s. I remember running around opening windows and doors to air out the house after my parents went out on the town.

“Chanel No.5” happens to be the first fragrance that was created with synthetic substances. Nice to have a video about that now:

(August 13, 2014: I just watched the Chanel No 5 video that I had posted here, and they have completely changed it to remove all mentions of the synthetic (and toxic) substances that they were first to use!!! I have removed the video from the post, as it is now just an insipid commercial for the perfume.)

I remember as children (in the 60’s) my sister and I were often given tiny bottles of “4711” as gifts, most likely free samples that family members received when purchasing larger bottles of it. I don’t remember it bothering me at the time.

It was during the 70’s that more and more products (shampoos, moisturizers, cleaning products, etc) started to bother me. At the time, I thought it was normal that some products just didn’t agree with me. I had no idea I was actually being poisoned by them. I even ended up in the hospital for a week of tests in my late teens, after developing stroke-like migraine symptoms while applying one of my sister’s scented facial cremes after I had spent the night back home instead of where I was living then.

No connections to products were made at the time… It was also the week I learned to read food labels, as one evening the ice cream I was given for dessert started foaming up instead of melting into a puddle while I was eating my dinner…

As a young adult, I had to search high and low for a perfume or eau de cologne that I could wear on special occasions, because we were taught that it was an important part of the ritual. I don’t think I made it through two tiny bottles of “L’Air du Temp” before having to abandon that ritual. Just reading their evocative description now leads me to a never never land, one I don’t remember if I was influenced by back in those days. (According to the Nina Ricci website’s legal notice, I am not allowed to link to their site without written authorization, so you’ll have to google it for yourself!!! But beware, the site has some annoying hurdles to go through before you get to the perfume’s page).

Now there are hundreds, if not thousands of synthetic, petro-chemical ingredients used in fragrances. And fragrance chemicals are everywhere. It is pretty much impossible to avoid them unless you are alone in the middle of no-where. They are in the air, in our water, even in our supermarket foods.

I am housebound now because fragrance chemicals are everywhere, even in my yard when others are using their dryer vents and the wind blows this way. I have a very difficult time finding even basic essentials (like baking soda, food and clothing) that are un-contaminated by fragrance ingredients. I wrote about how fragrance residues basically left me homeless in the previous post.

eau de petroleum

The International Fragrance Association (IFRA) reports that 3090 materials have been reported (voluntarily via membership surveys, there was no forced compliance) as being used in fragrance compounds in 2008 and updated in 2011.

Here’s the list. Some are known to be quite hazardous. Most have never been tested for safety.

Check the sidebar here > > > for some links about fragrances and their health impacts. You can also read what I’ve previously posted about them.

Fragrance chemicals are clearly just as bad, if not worse for our health than tobacco smoke. It’s time to ban toxic chemicals from fragrances. At the very least, label them on products, so people know what they are applying to their bodies and forcing everyone else to breathe. Being forced to breathe in toxic chemicals is toxic trespass.

I love clean air

Here are some fragrance free policies from around the world.

CCOHS Scent Free Zone

You Can Help Provide Medically Required Safe Housing!

Safe, non-toxic housing is the primary medical need of people with MCS/ES and EHS. The number of lives affected and needing this kind of medically required housing is growing, and far too little is being done by the various governments or medical associations to address the needs of all the people who are being injured and disabled by common everyday chemical and EMF/EMR exposures.

For us, safe housing is like the cast after we break a bone. It protects us and allows us to heal while preventing re-injury, especially if the housing is in an area where the outdoor air is also safe for us to breathe. Especially for those of us who have been repeatedly and seriously injured. That means no dryer vents that emit hazardous laundry chemicals, no pesticide use, or industrial emissions or busy roads nearby.

The good people at  the Environmental Health Association of Québec (ASEQ-EHAQ) see and understand the need and are working to do something about it, by developing an ECOASIS in the Laurentian Mountains of Quebec, but they need your help to make it happen.

Help Provide An ECOASIS

If you are already convinced this is a great cause to support and just want the link to where you can donate, then please click here.

If you need to know more about why this is so important, then please keep reading…

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2013 Proclamation From Toronto

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day

May 12, 2013

WHEREAS over 568,000 men, women and children in Ontario live with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia or Multiple Chemical Sensitivities.

Myalgic Encephalomyelitis, commonly known as Chronic Fatigue Syndrome, is a neurological and autoimmune disease with no known cure. It is characterized by overwhelming fatigue and chronic symptoms that inhibit a person’s ability to work and perform routine everyday tasks.

For those living with Fibromyalgia, a disease characterized by severe pain in muscles, ligaments and tendons, the pain can become so severe that it prevents the individual from working or engaging in any physical activity.

Multiple Chemical Sensitivities, also referred to as Environmental Sensitivities or Intolerance, are initiated by an unusually severe sensitivity or allergy-like reaction in individuals when exposed to a number of different pollutants such as chemicals, perfumes and other environmental triggers.

On May 12, communities across Ontario will join the Myalgic Encephalomyelitis Association of Ontario to raise public awareness, educate the medical profession, raise funds for necessary services and end the stigma and discrimination that accompanies these diseases.

NOW THEREFORE, I, Mayor Rob Ford, on behalf of Toronto City Council, do hereby proclaim May 12, 2013 as “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities Awareness Day“in the City of Toronto.

Mayor Rob Ford

2013… Friends, I Remember and Won’t Forget

skeleton 2

The world lost three amazing women and I lost three good friends in the first three months of this year. Linda left her poisoned body behind in January. Janine left her poisoned body behind in February. Connie left her poisoned body behind  in March.

I’m pretty sure MCS was not mentioned on any of their death certificates, but MCS  certainly had a far greater impact on each their lives, and their family lives than any listed cause of death did.

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