Category Archives: Environmental Sensitivities

MCS/ES Awareness Month 2014

 It’s that time of year again. Welcome to MCS “Awareness” Month!

People with disabilities have the right to equal treatment and equal access

Barriers to access can be physical, attitudinal or systemic. Conveniences can also create barriers. If you are unable to remove a barrier to accessibility, consider what else can be done to provide services to people with disabilities. No-one should live without safe access to the necessities of life.

What is disability? (Ontario Human Rights Commission)

“Disability” covers a broad range and degree of conditions, some visible and some not visible. A disability may have been present from birth, caused by an accident, or developed over time. There are physical, mental and learning disabilities, mental disorders, hearing or vision disabilities, epilepsy, drug and alcohol dependencies, environmental sensitivities, and other conditions.”

Removing barriers and designing inclusively

Persons with disabilities face many kinds of barriers every day. These can be physical, attitudinal or systemic. …

Identifying and removing barriers also makes good business sense. As well as meeting the needs of customers or employees with disabilities, removing barriers can also help other people…

Employers, unions, landlords and service providers can start by doing an accessibility review of their facilities, services and procedures to see what barriers exist. You can then make an accessibility plan and begin to remove the barriers.

It is also helpful to create an accessibility policy and a complaints procedure. These steps will help you remove existing barriers and avoid making new ones. The best way to prevent barriers is to design inclusively

Barriers aren’t just physical. Taking steps to prevent “ableism” – attitudes in society that devalue and limit the potential of persons with disabilities – will help promote respect and dignity, and help people with disabilities to fully take part in community life…

The duty to accommodate

Even when facilities and services are designed as inclusively as possible, you may still need to accommodate the individual needs of some people with disabilities. Under the Code, unions, landlords and service providers have a legal “duty to accommodate” persons with disabilities. The goal of accommodation is to allow people with disabilities to equally benefit from and take part in services, housing or the workplace.

Accommodation is a shared responsibility. Everyone involved, including the person asking for accommodation, should work together, exchange relevant information, and look for accommodation solutions together…

 

Some Resources: Continue reading

Big News for Ontario

From the News Release:

“The province is providing nearly $560,000 to support two new annual fellowships over three years for a total of six new fellowships. They will allow family medicine graduates to complete an extra year of focused training in environmental health, and will help primary care providers like family doctors offer the right care to assess, diagnose and treat environmentally-linked health issues.”

 

“Environmental health is an emerging public health field that examines the relationship between the environment and human health. This includes the role of the environment in contributing to serious health conditions that can be disabling and even life threatening, such as environmental sensitivities, myalgic encephalomyelitis/chronic fatigue syndrome, fibromyalgia and other chronic, complex disorders. ”

 

“There is a growing recognition that our environment and our health are connected. Through these new fellowships, we can develop greater understanding of the links between health and the environment in order to provide better care to those suffering from complex chronic illnesses.”

~
~ Deb Matthews
Minister of Health and Long-Term Care

 

“The study of the environment’s effects on human health is an important emerging field of research. Support for investigating environmental impacts on health is emblematic of our government’s commitment to strengthen healthy communities.”

~
~ Jim Bradley
Minister of Environment

Full News Release:

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Property Manager’s Guides to MCS

From the Centre for Equality Rights in Accommodation (CERA):

Environmental Sensitivities and Housing

Every year, CERA receives a significant number of calls from tenants being made ill from the poor indoor air quality in their apartment buildings. Most of these individuals suffer from environmental sensitivities and are particularly sensitive to contaminants in the air. With funding assistance from the Ontario Trillium Foundation, CERA recently launched HomeSafe, an initiative to educate tenants and multi-unit housing providers on strategies to improve indoor air quality and create healthier living environments.

The resources section has some excellent documents that are designed to “help landlords, property managers, and co-operative and condominium boards of directors reduce the health impacts associated with multi-unit housing and create living environments that are as safe and “green” as possible… and make their properties more attractive…”

For example:

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Money, Masks and MCS

Here is yet another way petro-chemical and wireless pollutants and policies create barriers to access, barriers that personal actions and responsibility alone cannot overcome…

Background: Michellina  wrote about her masked experiences on her blog The-Labyrynth, which inspired Colleen to write about her mask breakthrough on her blog Life in the City with a Future, which inspired me to share her link and post on the subject here, which then inspired Suki to chime in here adding her experiences, as well as a link to some really great resources from from The (US) National Center for Independent Living on environmental health barriers to access, which links back here to one of my  posts! And here’s an example of just how prevalent fragrance chemicals are.

And then… my friend Melody posted this photo, which brings up another issue:

How can we have access to our money when wearing disability related “accessories”?

What about the masks we wear to be able to breathe cleaner air?

What about the masks we wear  to breathe? Or the hats and scarves we wear to keep some of the fragrance chemicals off of our hair? Or the special fabric head-coverings to protect from wireless radiation? These are necessary “accessories” which prevent further disability, and allow some of us to lead somewhat more normal lives, kind of like what wheelchairs are for people who can’t walk.

Do they have these signs (and policies) everywhere now?

How do you manage?

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Report: RECOGNITION, INCLUSION AND EQUITY – THE TIME IS NOW

Many of us have been waiting for action for decades, let’s hope that this is the project that finally makes it happen. It has been a long time coming…

‘RECOGNITION, INCLUSION AND EQUITY – THE TIME IS NOW: PERSPECTIVES OF ONTARIANS LIVING WITH ES/MCS, ME/CFS AND FM’

Recognition Inclusion and Equity the Time is Now

From Varda Burstyn:

At long last, I am writing to let you know about four new groundbreaking reports – products of a 5-year initiative that I and colleagues began in 2008 – that present exciting new research on the three environmentally linked conditions of ES/MCS, ME/CFS and FM, and that develop a wonderful new model of care and support for those living with the conditions in Ontario.

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Climate More Sensitive Than Previously Thought!

“the combustion of fossil fuel is the largest source” (EPA)

sensitive climate

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New PAGE on Statistics for MCS/ES, FM and ME/CFS

I’ve assembled prevalence statistics from Canada and the US into one place, including images and links to documents with more information.

Included are links and images with Canadian stats for MCS/ES, FM, and ME/CFS, and US stats for MCS. I will update to include more stats from more countries when I have reliable sources for them. Please share any that you are aware of.

The new page is located at the top of this site under the MCS/ES page, or via this link:

Statistics for MCS/ES, FM and ME/CFS

Here is a sample of what you will find there:

According to The Canadian Community Health Survey (CCHS) and Statistics Canada, between 2005 and 2010 the rates of people diagnosed with Multiple Chemical Sensitivities (MCS), Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) in Canada increased significantly.

The number of people diagnosed with MCS increased by 31%
The number of people diagnosed with FM increased by 15%
The number of people diagnosed with CFS increased by 24%

Chronic Conditions Prevalence Comparisons
(for perspective)

You can find all the statistics, links and images in the ‘Statistics for MCS/ES, FM and ME/CFS’ page at the top of this site under the MCS/ES page, or click on this link:

https://seriouslysensitivetopollution.wordpress.com/mcses/statistics-for-mcses-fm-and-mecfs/

With gratitude to the National ME/FM Action Network for much of the material.

Fragrance-Free and Healthy Schools (updated)

Are you sick from sick schools?

How Healthy is Your SchoolTeachers and students suffer when school buildings are not healthy, sometimes even developing permanently disabling conditions as a result.

MCS/ES. Asthma. Autism. Learning disabilities. Behavior problems…

Unhealthy school buildings can present real barriers to access.

It shouldn’t be like that. You shouldn’t lose your health or your job or have your child’s health and future suffer because there’s something unhealthy in the air at school.

There are enough examples of the benefits of a healthy learning environment over an unhealthy one (from toxic chemicals, molds and wi-fi for example), and tools for how to make change happen.

Here are some resources (in no particular order):

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MCS/ES Page

I have finally added a Page to the top of the blog that deals with MCS/ES under the following headings:

MCS – Multiple Chemical Sensitivities, etc
Environmental Sensitivities
Categorical guidelines for levels of disability
Getting diagnosed
ICD Codes
Treatment Options
Mind and Brain
Support
Human Rights and Accommodations

https://seriouslysensitivetopollution.wordpress.com/mcses/

seriously sensitive to pollution

Our Brains Matter: Brain Facts Primer

Neuroscience is a fascinating and fairly recent area of study. For those of you who wish to learn more, I have discovered this helpful resource. Brain Facts dot org has a free primer download on the brain and nervous system (see below).

Too many of us are currently in possession of brains and nervous systems that are more or less immediately and adversely affected from exposures to toxic chemicals, some molds, wireless and other environmental contaminants.

As one of these people, I have been fascinated by the changes that occur in my brain at times, (despite the fact that most of the changes are highly disruptive and disabling instead of pleasant) and so I am really trying to learn more about these processes and what might be happening.

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