Tag Archives: accessibility

Two Tales: Temporary Quarantine or Long-term Segregation

 

There have been several articles in the news lately about the experiences of people who have been forced to endure quarantine or social isolation due to the coronavirus.

Many other people are worried about having to stay at home for a couple of weeks, without access to their regular activities, because they have never had to think about what it’s like, but some of us (indeed millions around the world) have been forced  to stay confined and isolated, sometimes for most of our lives! Our stories are seldom told, and when they are told, they’re often dismissed as anomalies and quickly forgotten.

 

When I saw the following articles, I felt the need to add a different perspective.

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Holiday Canaries

Holidays
are not easy for human canaries these days.


But friends CAN make it better:

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Safe Housing Survey

Do you (or will you) need safe housing?

Until the end of November 2019, Health Risk Navigation Inc. (HRNI) is conducting a much needed (yet simple) survey of the housing needs of the chemically injured in order to have quantitative data to show housing providers, communities, policy, and decision makers, funders, and other relevant parties.

This kind of data doesn’t exist currently, so even though safe housing is our core need, there are no official documents that anyone can easily point to.

More details are available on their FAQ page:
https://www.hrni.ca/Housing-Survey-FAQ.php

Some of you may have already done the 1st edition of this survey in June of 2019, when it originally came out. Thank you! Even though the survey now has a different format, those responses are not lost.

You don’t have to do the revised one, but it would be helpful if you could spend the 10-15 minutes to do so… just mention that you completed the original on the last page where people are asked to share any additional comments.

The questions of the initial survey and the current survey are identical, except that the current survey now has four new questions at the beginning  that seek  consent of the respondents to save and share info (largely due to EU privacy laws).

Every question also gives an explanation as to why the data is requested. Additionally, every question (except the consent questions) now gives us the choice to answer “Prefer Not To Say”.

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Accessibility STOP Signs

I ran across a sign that the lung association had created, and while I am glad they are doing something , I found the message and visual required some tweaking.

Of course, the lung association didn’t come up with the term “sensitive”, it’s what is used in human rights laws, but it seems to have created an impression in the public’s mind that chemical and environmental sensitivities are trivial, and not disabling or even life threatening like they can be.

It also needs to be said that signs without enforcement are endangering lives and perpetuating harm, systemic accessibility barriers, discrimination, and forced isolated segregation for those who are disabled by any or repeated exposures.

To download printable posters, see below.

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Welcome to the 2019 Edition of MCS/ES Awareness Month

It’s that time of year again!

We’re only a little tired of folks keeping their heads in the sand for decades.

The good (and sad) news is:

we’ve multiplied too much to ignore anymore!
(and there are more joining our ranks every day)

Major brands have started making fun of us and are co-opting our language,
so we know we’re making progress, even if it seems slow.

 

SPEAKING UP MAKES A DIFFERENCE!

 

If you are new to this, to learn more about  MCS/ES, you can start here:
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Are You A Woman Over the Age Of 65 With MCS/ES?

IF SO, WOULD YOU PARTICIPATE IN A STUDY OF WOMEN’S NEEDS AS YOU GROW OLDER WITH ENVIRONMENTAL SENSITIVITIES?

The James Madison University Environmental Sensitivities Research Team is inviting women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how your needs are being met as you grow older with sensitivities.

If you are interested in participating, please click on the link below to see the consent form and learn more about the study. Continue reading

Have Your Say For May

What if you had the chance to say one thing about your life with MCS/ES, and how it would change your life if it was understood?

May is MCS/ES Awareness Month (yet again… maybe some year we won’t need it to be, but this year, we still do), and this year, I would like to share some of your stories and insights.

this one thing

If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?

How has this one thing affected your life?

If this one thing were changed, how would your life be different?

You could think of it as a conversation with someone you love, someone who loves you (or even a kind stranger), someone who wants to understand, and who is willing to do something for you, and/or to change the way they do things, in order to include you in life, and to help you with what you need or want to accomplish in life (for example).

This is your time to tell them this one thing, and how this change will impact your life for the better.

Here’s what I am asking for with your submissions: Continue reading