Please take a moment to feel your heart beating.
Not everyone can do this anymore.
While some progress has been made, it’s still too little,
too late for far too many people.
This will not change until more people who have MCS/ES come forward with their stories, and more healthy people start advocating and helping us in daily life, as well as pushing governments and medical institutions to pull their heads out of the sand (and industry pockets) and get into (at least) the 20th century as far as the very serious environmental and related health issues are concerned.
“Business as usual is a disaster”
“Unfortunately, many physicians, employers, family, and friends
are in effect assisting in suicide through their disbelief.”
“The Consequences of Disbelief”
“Twelve years as an advocate for the chemically sensitive has led me to the sad realization that a large number of chemically sensitive people have taken their own lives and many others are inching ever closer to that decision because they find it such a daunting task to locate a safe place to live or work and are rapidly running out of money. And at the same time that they are engaged in this herculean struggle, far too many of them are facing a discouraging skepticism from those about them.”
“Amputated Lives: Coping with Chemical Sensitivity”
By Alison Johnson
With a Foreword by L. Christine Oliver, M.D., Harvard Medical School
Links to several chapters of the book, where stories about people’s lives are featured are available here:
Posted in Accessibility, Chemicals, Community, Disability, Ecocide, Environment, Environmental Health, Human Rights, Mental Health, Policy
Tagged accessible housing, barriers, chemical sensitivity, discrimination., employment, environmental sensitivities, health care, Human Rights, invisible disabilities, MCS, multiple chemical sensitivities, systemic, toxic trespass
This article appears in The Job Accommodation Network’s
ENews: Volume 17, Issue 2, Second Quarter, 2019
JAN provides free, confidential technical assistance about job accommodations and the Americans with Disabilities Act (ADA).
Can’t Ban Fragrances?
Consider a Fragrance Free Zone
Dig into developing a fragrance free zone
From the desk of Linda Carter Batiste, J.D., Principal Consultant/Legislative Specialist
Employees with fragrance sensitivity often need a fragrance free work environment to avoid triggering symptoms. However, it can be difficult to completely eliminate fragrances in some workplaces. Fragrance sensitivity can be triggered by not only perfumes and colognes, but also in some cases by personal products such as deodorant, shampoo, laundry detergent, and lotion. In workplaces with a lot of employees or in which the public has access, trying to control what products people use and enforcing a total fragrance ban can be virtually impossible. So what else can be done? Continue reading
Posted in Accessibility, Air Quality, Disability, Environmental Health, Fragrance, Human Rights, Policy
Tagged accommodation, allergies, asthma, chemical sensitivity, employment, environmental sensitivities, Fragrance, fragrance sensitivity, fragrance-free, fragrance-free policy, IAQ, invisible disabilities, job accommodation, MCS, work
When we develop MCS/ES, one of the first concerns we have is how to keep our job when other people keep using products and materials that disable us.
Some people are able to negotiate a legally required accommodation policy, but sadly, too many people find these policies are rarely or effectively enforced as they should be.
Recent research from Dr Anne Steinemann shows there are serious adverse impacts due to fragrance use:
“Significantly, 15.1 % of the general population reported that exposure to fragranced products in their work environment has caused them to become sick, lose workdays, or lose a job. Also, 20.2 % of the population reported that if they enter a business, and smell air fresheners or some fragranced product, they want to leave as quickly as possible.
Here are some Human Rights resources on various laws, regulations, and solutions that, when enforced, can help people remain employed without losing their health and abilities:
Posted in Accessibility, Air Quality, Disability, Environmental Sensitivities, Human Rights
Tagged EHS, employment, enforcement, fragrance-free policy, indoor air quality, jobs, MCS, MCS/ES, policies