Category Archives: Medically Required Housing

Safe Housing Survey

Do you (or will you) need safe housing?

Until the end of November 2019, Health Risk Navigation Inc. (HRNI) is conducting a much needed (yet simple) survey of the housing needs of the chemically injured in order to have quantitative data to show housing providers, communities, policy, and decision makers, funders, and other relevant parties.

This kind of data doesn’t exist currently, so even though safe housing is our core need, there are no official documents that anyone can easily point to.

More details are available on their FAQ page:
https://www.hrni.ca/Housing-Survey-FAQ.php

Some of you may have already done the 1st edition of this survey in June of 2019, when it originally came out. Thank you! Even though the survey now has a different format, those responses are not lost.

You don’t have to do the revised one, but it would be helpful if you could spend the 10-15 minutes to do so… just mention that you completed the original on the last page where people are asked to share any additional comments.

The questions of the initial survey and the current survey are identical, except that the current survey now has four new questions at the beginning  that seek  consent of the respondents to save and share info (largely due to EU privacy laws).

Every question also gives an explanation as to why the data is requested. Additionally, every question (except the consent questions) now gives us the choice to answer “Prefer Not To Say”.

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When a Friend’s Life Is Being Threatened

Guest Post

A few of us in the MCS community have been burning the proverbial candle at both ends and in the middle, trying to generate public awareness and interest to persuade the NS housing authority to reconsider their 3 year battle to evict our good friend Wendy, despite no accessible alternatives being available.

Their unwillingness to understand and accommodate her disability and her medical team’s recommendations… well, it’s something a lot of us have faced and are facing.

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Update: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

UPDATE:
The bureaucrats expect Wendy to leave the only safe and accessible home Wendy has access to, the sherriffs could be there any day, and there is still no other safe and accessible place for Wendy to move to!

In a kind and sane society, disabled people would be treated with respect and dignity, and safe and accessible housing would not be taken from them when there is no place else to go to.

We need to treat people with invisible, inconvenient disabilities better!

Wendy has a safe-for-her-home, the ONLY place she can now be and remain functional, but the bureaucrats only see that it is a 3 bedroom home and not the 2 bedroom home her doctors have said she (at minimum) needs.

She cannot go to the mall, to the hospital, to a library, or to an apartment where people smoke, use fragrances, pesticides, or have dryer vents spewing toxic laundry products her way.

The only kind, humane, and sane solution is that she should be allowed to remain where she is, until the province has built MCS/ES accessible housing that is safe for her to move to…

2016 W.K. 1


UPDATE May 3rd:

According to this CBC interview, the housing authority has extended Wendy’s stay until the end of July, although a week or so ago they had told Wendy that she only had until April 30th, and they have not informed Wendy or her lawyer about this news (she learned via the CBC).

Hers is the 1st interview: http://www.cbc.ca/maritimenoon/2016/05/03/chemical-sensitivity-eviction-pot-pardons-your-thoughts/

∴ Wendy is NOT a widget. Widgets can go anywhere. Wendy can’t. “Widget” is used in texts and speech, especially in the context of accounting, to indicate a hypothetical “any…

Source: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

MCSVille: A Canary Safe Sanctuary

Guest post by Laura Canary

Since I could not sleep, I thought I would bake a gingerbread house for our Christmas party. When I still could not sleep, I got carried away and baked enough to piece together this whole gingerbread village.

MCS ES gingerbread village kit 2(image for inspirational purposes only)

But, what to call it?
Canary City? Sansparfumville? Beneficidale? Healington? MCSville? Magic Canary Sanctuary?

Welcome to our Magic Canary Sanctuary, or MCSville!

See all the houses! They are all built MCS safe, to accommodate all Canaries in need.

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Wendy is NOT a Widget and She Shouldn’t be Treated Like One

Wendy is NOT a widget. Widgets can go anywhere. Wendy can’t.

“Widget” is used in texts and speech, especially in the context of accounting, to indicate a hypothetical “any-product”. Companies in such texts will frequently be given names such as “ABC Widgets” or “Acme Widget Corp.” to indicate that the particular business of the hypothetical company is not relevant to the topic of discussion.
(Widget economics – wikipedia)

“Economists often use the term widget to refer to an abstract unit of production.”

Wendy is NOT a widget as her local housing authority seems to believe. They have a capacity problem, but instead of addressing the need for improved (and accessible) capacity, they want to re-arrange people’s lives as if they were widgets, with little to no regard or understanding of the consequences.

INVESTOPEDIA EXPLAINS ‘Capacity’

“The widget manufacturer may be able to produce 150,000 widgets in a month. However, due to downtime because of equipment maintenance and worker illness, only about 130,000 widgets can actually be produced per month. Over the long run, a business can increase its capacity and output by acquiring more factors of productions. For example, if market demand for widgets spikes, the widget manufacturer can buy more equipment and hire more workers, and thus increase its capacity to 175,000 widgets per month.”

Wendy is not a widget. She is a living, breathing, human being, a human being with a complex, chronic environmentally linked condition and disability related needs, needs that widgets don’t have.

Wendy Kearly photo by ADAM MACINNIS – THE NEWS

Wendy Kearly photo by ADAM MACINNIS – THE NEWS

The housing authority from which Wendy rents her safe home has deemed her over-housed, and are in the process of evicting her, despite the fact that Wendy has no other option for medically required, safe housing available, and no safe access to any of the other places most people take for granted (see below).

In the following audio interview with Wendy, among other things, she talks about the process her grown children take to detox themselves enough to be able to safely visit with her, so that she is able to safely hug them when they come to town.

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Event: MCS/EI/EHS, Housing & Human Rights: Press Conference

Derek Shanks is a 38 year old Toronto based black & white street and documentary photographer.

He recently photographed Olga, a woman who has commented here on my blog at times. The photos and some of her story can be seen on his blog:

All That I Am, All That I Have

Olga also let me know about an event she is organizing for the morning of Tuesday April 16th, 11am, if any of you are in Toronto and can attend to lend support.

Event details are on facebook:

MCS/EI/EHS, Housing & Human Rights: Press Conference

Tax Time: Medical and Disability-Related Expenses

Tax time is approaching yet again, and there are some disability related tax credits available in Canada, even for people with MCS/ES (some of which I will post below).

There are also tax credits offered to people who need to retrofit their homes for medical reasons:

Renovation or construction expenses – the amounts paid to make changes to give a person access to (or greater mobility or functioning within) their dwelling, when that person has a severe and prolonged mobility impairment or lacks normal physical development.

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