What is civilized about having toxic chemicals in so many everyday products and materials?
What is civilized about extracting and using fossil fuels from the earth in ways that cause harm to all living beings?
What is civilized about denying health care and safe housing to people who need it?
When I saw this image, it spoke to me…
Original
(artist unknown)
But it needed a slight revision… It wasn’t my “dream” to cut ties with civilization, it was my prescription!
So here is what I did and why:
People with visible and invisible disabilities are often not only discriminated against, but far too often abused. Some of the abuse is from ignorance. Other times it is systemic and sometimes it is political.
ME/CFS, FM, and MCS/ES are often overlapping conditions. Canadian diagnosis stats with more details are here or a simple chart is at the bottom of the page here.
There are 3 dedicated clinics in Canada for diagnosing these conditions (and more, such as EHS). One is in Toronto (with a perpetual long wait list) and a new one just opened in BC with Dr Bested as the clinic director and was immediately overwhelmed with people seeking appointments. There is also one in N.S.
Some provinces have a diagnostic code for ME/CFS now, and for FM, but not for MCS/ES. The CDC has also recognized it. In the US, people can look for doctors on the AAEM website. (there may be others, I am not as familiar with the US resources).
People in the UK and elsewhere are still trying to get proper recognition and protocols in place so that patients there are also not subjected to more abuse on top of these already devastating conditions.
Watch the trailer of the film here, then you can link to the full length film from the Voices from the Shadows website. Continue reading
Posted in Environmental Health, Fibromyalgia, Health Care, Human Rights, Images, MCS/ES, ME/CFS
Tagged documentary, environmental health clinics in Canada, FM, health, invisible disabilities, MCS/ES, ME/CFS, video
We have a fabulous new resource that Heather Awen has put together.
She writes:
The Safe Canary Nest was created in the first three months of my MCS diagnosis. As I was scrambling like mad to find out where to shop, what to eat, how to afford it, which doctors to trust, and venturing into MCS online groups, my online folder “MCS” became massive. I found bits and pieces of information here and there, but nothing centralized.
Posted in MCS/ES, Multiple Chemical Sensitivities, Support
In other words, hot masons!
Non-toxic bedwarmers…
If you have spare safe socks, you can drop the jars into socks so that in case you kick them out of bed, the glass would be contained, but I haven’t kicked one out yet! Use the 2 piece lids as they are watertight, you can shake them a bit to make sure there are no leaks when the lids are getting older.
Stay warm!
Posted in Health, MCS/ES, Multiple Chemical Sensitivities, non-toxic
Tagged bed warmers, masons, MCS safe heat, non-toxic hot water bottles
This is an idea I had in 2006, before things totally fell apart in my life… I’d like to resurrect the idea now.
Is anyone interested in writing about their life with MCS/ES so we could put together a book with our stories from behind the bubble?
 | linda @ Seriously "S… on MCS/ES |
| linda @ Seriously "S… on The CDC and MCS |
 | Tabatha Schnorr on MCS/ES |
| Tabatha Schnorr on The CDC and MCS |
| linda @ Seriously "S… on MCS and Housing |
| linda @ Seriously "S… on Hospital Protocols for People… |
Seriously "Sensitive" to Pollution 