What if you had the chance to say one thing about your life with MCS/ES, and how it would change your life if it was understood?
May is MCS/ES Awareness Month (yet again… maybe some year we won’t need it to be, but this year, we still do), and this year, I would like to share some of your stories and insights.
If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?
How has this one thing affected your life?
If this one thing were changed, how would your life be different?
You could think of it as a conversation with someone you love, someone who loves you (or even a kind stranger), someone who wants to understand, and who is willing to do something for you, and/or to change the way they do things, in order to include you in life, and to help you with what you need or want to accomplish in life (for example).
This is your time to tell them this one thing, and how this change will impact your life for the better.
Here’s what I am asking for with your submissions: Continue reading
Posted in Accessibility, Action, Change, Disability, Environmental Health, Environmental Sensitivities, MCS/ES, Multiple Chemical Sensitivities, Support
Tagged accessibility, advocacy, allergies, autism, communication, community, education, family, fibromyalgia, friends, heart to heart, invisible disabilities, MCS, MCS/ES, ME/CFS, sensitivities, writing
Guest Post by Candy Martin
1) Firstly get an illness/disease that no one has ever heard of. As everyone knows everything about every disease that exists, what you have can’t possibly be true or real as they have never heard of it.
2) Try to explain your illness to your friends. They still won’t believe you because they still haven’t heard of it, and frankly your explanation bores them.
3) Try to give a clearer explanation, because YOU REALLY WANT THEIR UNDERSTANDING. Now you will be accused of complaining or of being negative because you have talked about your illness for more than 1 minute.
4) Try to explain why their suggestions to get well aren’t feasible. Now you’re just being difficult and are not worth “helping” any more. Despite knowing nothing about your illness they “know’’ that exercise will help, getting out more will help, eating magic marshmallows will help etc etc. (Even if your Dr advises against it)