Category Archives: Accessibility

When 90% of Us Share 12.3% of the Pie

I can’t get this out of my mind, as it really brings into focus why so many people have become chronically ill, and are dying younger from devastating new health problems and increasingly early  deaths (including suicides), because our true health and well-being is not profitable, and therefore what is needed is not available.

When access to safe, non-toxic, healthy air to breathe, water to drink, homes to live in, clothing to wear, health care, and other necessities of life are denied to so many people because everything that is manufactured now is made with so many toxic chemicals, including our food, because our current system allows corporations to pollute us for profit, without paying any of the costs (some of which are priceless), when the environment we depend on for life is destroyed and treated like a garbage dump, (as are our minds and bodies) then we are not going to survive as a species for much longer.

When 10% of the population is hoarding 87.7% of the global asset pie, and when 90% of us have just 12.3% of the pie, how many have no access to pie at all?

This has to change if we are to have future human generations on this planet, the only place which is uniquely suitable to provide what we need to live healthy, loving lives, if only we would respect and care for it and each other!

Think about this, over and over again, until it sinks in…

When 80 people own 50% of the world’s assets, then everyone else (the other 7.3 billion people who live on this planet) have to share the other 50%. (Oxfam, 2015)

That is, 7.3 BILLION people share 1/2 of the pie, while just 80 people share the other half… but it gets worse:

“Since the release of the Oxfam report in January, Credit Suisse released a new report validating the concern for the acceleration of global income disparity as the richest ten percent of people now hold 87.7 percent of all wealth.”

 

pie

Meaning some portion of  90% of the population have 12.3% of the global pie…

This is a very graphic view of what is wrong in the world today, why so many people are seriously sick and dying at astonishingly younger ages (as several new reports this year show), and why so many of us don’t have access to even very basic needs.

I believe that we can work together to bring things back into harmony with each other and the planet that supports our lives and existence.

We have to act now to change this, and it starts with reconnecting with our hearts!

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We Shouldn’t Need a Gas Mask to Use A Computer or Blender!

Ever notice how when you buy a new appliance or electronic device, and take it out of the box, or plug it in, the smell makes you nauseous, dizzy, and gives you a headache? Or worse?

That smell is made up of some really toxic chemical fumes. Benzene, styrene, and toluene, among others… in everyday technology!

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New research from the Exposure, Epidemiology & Risk Program, Department of Environmental Health, Harvard T.H. Chan School of Public Health, on how the pollutants in indoor environments affect people’s cognitive functioning (people who are still able to work in polluted offices, not the people who are already too disabled to work in polluted offices) discovered that

Green office environments linked with higher cognitive function scores

…”People who work in well-ventilated offices with below-average levels of indoor pollutants and carbon dioxide (CO2) have significantly higher cognitive functioning scores–in crucial areas such as responding to a crisis or developing strategy–than those who work in offices with typical levels, according to a new study from the Harvard T.H. Chan School of Public Health’s Center for Health and the Global Environment, SUNY Upstate Medical University, and Syracuse University.

“We have been ignoring the 90%. We spend 90% of our time indoors and 90% of the cost of a building are the occupants, yet indoor environmental quality and its impact on health and productivity are often an afterthought,” said Joseph Allen, assistant professor of exposure assessment science, director of the Healthy Buildings Program at the Harvard Center for Health and the Global Environment, and lead author of the study.

“These results suggest that even modest improvements to indoor environmental quality may have a profound impact on the decision-making performance of workers.”

Researchers wanted to look at the impact of ventilation, chemicals, and carbon dioxide on workers’ cognitive function because, as buildings have become more energy efficient, they have also become more airtight, increasing the potential for poor indoor environmental quality.

Building-related illnesses and “sick building syndrome” were first reported in the 1980s as ventilation rates decreased. In response, there has been an emphasis on sustainable design–“green” buildings that are energy efficient and are also designed to enhance indoor environmental quality. The researchers designed this study to identify the specific attributes of green building design that influence cognitive function, an objective measure of productivity.

“The major significance of this finding lies in the fact that these are the critical decision making parameters that are linked to optimal and productive functioning. Losing components of these skills impacts how people handle their day to day lives.”

In other words, pollution prevents people from being smart!

appliance gas mask

Here are just some of the harmful emissions from computers:

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When Programmers Send Old Computers Into ICU and Palliative Care

My computer and old Operating System have seen better days. Things are crashing almost hourly now. I am so grateful that the original donor was twice able to get this computer back up again (with telephone advice) after a partial freeze and fully appearing meld-down, but it is still malfunctioning online, so I have to shut it down frequently, as the sites I use seem to have updated using technology that is no longer inclusive of XP and my  minimal RAM (adding more would be cost-prohibitive).

I  therefore find myself in critical need of a new computer, even with all the toxicity and adverse health risks involved, and without the time to mitigate them (like running things somewhere else that is also fragrance free, for however long it takes to off-gas everything).

Eeks! image from pixabay 2

Here are some details:

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Scent-Free Buildings Guide from CCIAQB

From The Canadian Committee on Indoor Air Quality (CCIAQB) 

“This Module provides building owners and managers with information about the sources and effects of scents and fragrances. It also suggests ways to move toward scent-free buildings. The information covers scents and fragrances brought into a workplace by people wearing personal products such as perfume as well as those scents and fragrances that originate from custodial products such as washroom hand soap.”

scent-free buildings guide banner

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V’s Canary Cries

Guest Post by V from the USA

This was originally posted to an online support group. V granted her permission to share it here. She has been able to put this part of her life story into words that so many of us find hard to express, and I thank her deeply for sharing her words with you too.

 

Canary V

It’s about 1:30 a.m. and this is about the time where I start to feel despair about everything in my life. I just can’t seem to adapt to the isolation and lack of a routine or purpose. Also, I can’t seem to find any pain meds for my chronic pain. I have been in physical pain for so long.

I know this post may seem disjointed which is apropos considering how I feel.

I AM so tired of spinning my wheels…Along with MCS I have so many other medical issues…non terminal that I know of but still…I have asthma and allergies.. I can’t be around dogs or cats, the weather determines my breathing status for the day and my physical mobility.

I can only eat about 10 things and it’s exhausting to try to rotate these foods and I spend excessive time trying to plan. Even planning a rotation I still get itching throat and sometimes a swollen throat with some of the ten things I think I can eat…it’s horrible to start eating and not know how I will feel ..

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“Artificial scents have no place in our hospitals”

Canada’s top medical journal, the Canadian Medical Association Journal (CMAJ), says
Artificial scents have no place in our hospitals

Hospital NO Fragrance

“These patients may be involuntarily exposed to artificial scents from staff, other patients and visitors, resulting in worsening of their clinical condition. As patients,
family members and emergency physicians will attest, the attacks can be quite sudden and serious. There is little justification for continuing to tolerate artificial scents in our
hospitals.” …

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Who Wants to Help Me Get New Air Purifier Filters?

I need several air purifiers to clean the air of pollutants from unavoidable everyday products and materials (like the mail, receipts, product labels, food packaging, replacement of any basic essentials, etc) and also the neighbourhood pollution (trains, planes, laundry products, pesticides, BBQs, fireplace smoke, etc) from my indoor air so that my brain and body can work more like they were intended to.

To cook, clean, and take care of my very basic needs, (nothing extra going on here, I am housebound) I am dependent on clean air to be able to function. My filters need to be changed annually or every other year (depending on what the air quality has been like) and mine were last changed in 2012, three years ago.

I have looked all over the place for funding to purchase new filters and there just isn’t anyone out there with a mandate to provide clean air to those who require it for medical reasons.

! ! !

IAQ help

Last summer was a disaster for me, this year was even worse. I’ve had a horrid three  months from area roadwork and pesticide use (there was massive spraying of Wild Parsnip around this part of Ontario during the summer, and the pesticide drift got to me really bad), and now other simpler exposures that hadn’t been bothering me as much as they used to, are again having more serious adverse effects on me because my indoor air is not being filtered anymore.

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Guest Post: Euthanasia and Disability Rights

Monique and I both live in Ontario, Canada, where there are new discussions happening both provincially and federally regarding “assisted suicide”, “death with dignity”, the right to die, and euthanasia (I may have missed a few other terms used).

We both have MCS/ES, and are confronted with systemic discrimination and barriers to access with almost every breath we take. Breathing is not optional. And we are not alone. There are hundreds of thousands of us in Canada, and millions around the world.

Open letter in support of Euthanasia and Rights for those with diseases that defy accommodations

Guest Post by Monique

I Am Easy to Ignore

I am female
I am over 60
I am divorced and alone
I am a student
I have lower employability
I have invisible disability
I was abused
I have depression + ADD.
I do not feel strong

The biggest and most painful ordeal is people who lack the ability to reduce the perfumes they wear in public… who value their vanity above the good of others. I cannot exist without the kindness of strangers. I do not want to live without my Right to life-sustaining air. I do not want to explain why I cannot breathe your scents and subsist in the lifestyle you value and have grown attached to. I cannot live in your chemical soup.

I am a canary. I have MCS. Although canaries have saved many from disasters, their deaths are never celebrated. I feel like I will soon be sacrificed so that many will continue to breathe good quality air.

I would like to give a voice to those canaries. I’d like to call upon every canary on this planet to stand up and be counted. I want every canary not to die in vain. Continue reading

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

Another great resource shared by Mary Lamielle, this time on how to make events accessible for people with MCS/ES.

Accessible Meetings Guide Addresses Chemical and Electrical Sensitivities

accessible events

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Webinar to Increase Smoke-Free Policies in Federally Assisted Housing (US)

Smoke and chemicals (such as fragrances, air “fresheners”, laundry products, pesticides, and other VOCs) do not respect property lines as they travel throughout space, often making others quite sick, even disabling them in their own homes. This is especially a problem in multi-unit housing, and where housing units are built close together.

This is also a very serious accessibility issue for people with MCS/ES, as there are few affordable housing options available, and most of these put people at risk of further  harm due to indoor air pollution issues, despite HUD and other federal agencies in the US and Canada recognizing MCS/ES as a disability that needs to be accommodated.

The following webinar is about addressing smoke, but the issues are applicable to other forms of indoor air pollutants as well. It should also be available as a podcast later.

For those of you who are interested and able,  the webinar is being offered on Wed, Aug 5, 2015 2:00 PM – 3:30 PM EDT by the Asthma Community Network

Breathing Easy at Home: Partnering to Increase Smoke-Free Policies in Federally Assisted Housing

live smoke free webinarMore info: Continue reading