Guest post by Judy Freed
The Power of This Pause
For just a moment, there is a pause.
A pause from the years of well-intended, ill-informed inquiries:
“So, what have you been up to lately? What do you do for fun? See any good movies? Go anywhere exciting? Get together with any friends?”
For this moment, nobody is asking me these questions. Instead, there is an awareness that “normal” day to day life has been interrupted. The questions now are almost always something like: “How are you doing?” “How are you holding up?” “Are you ok?”
Finally – questions that make sense to me; questions I can answer without Continue reading →
Posted in Accessibility, Community, Disability, Human Rights, Writing
Tagged ableism, chemical sensitivity, coronavirus, environmental sensitivities, fragrance-free, invisible barriers, invisible disabilities, isolation, MCS, mental health, quarantine, social
There have been several articles in the news lately about the experiences of people who have been forced to endure quarantine or social isolation due to the coronavirus.
Many other people are worried about having to stay at home for a couple of weeks, without access to their regular activities, because they have never had to think about what it’s like, but some of us (indeed millions around the world) have been forced to stay confined and isolated, sometimes for most of our lives! Our stories are seldom told, and when they are told, they’re often dismissed as anomalies and quickly forgotten.
When I saw the following articles, I felt the need to add a different perspective.
Continue reading →
Posted in Accessibility, Environment, Environmental Health, Health Care, Policy, Public Health
Tagged accessibility, allergies, asthma, chemical sensitivity, coronavirus, environmental sensitivities, invisible disabilities, isolation, MCAS, MCS, ME/CFS, multiple chemical sensitivities, quarantine, social distancing, solitary confinement, toxic trespass
I’m sorry you have to experience this, but am glad that it is just a temporary experience for you and your family. I personally know how difficult it is (times 1000 or more).
Hopefully if you actually do become ill, it will pass quickly and there will be no lasting effects.
It is more than likely that most of you will have all the medical assistance, food, toilet paper, and everything else that you will need to have available to deal with basic creature comforts and needs, so it will be just the habitual and a few social comforts that are temporarily disrupted for you.
Did you know that more than a few people are not as fortunate, and experience this kind of segregation full time, with no vacations, with few, if any of the relatively easily accessible (to most) basic amenities? And they aren’t criminals!
Continue reading →
Posted in Accessibility, Community, Environmental Health, Environmental Sensitivities, Fragrance, Health, Human Rights, Public Health
Tagged accessibility barriers, allergies, chemical sensitivity, fragrance-free, hazardous air pollutants, human canary, invisible disabilities, MCS, multiple chemical sensitivities, quarantine, social isolation, systemic discrimination