The Honourable David C. Onley, the 28th Lieutenant Governor of Ontario (2007-2014) was appointed to lead the Third Review of the Accessibility for Ontarians with Disabilities Act (AODA).
The report has now been released.
LISTENING TO ONTARIANS WITH DISABILITIES
REPORT OF THE THIRD REVIEW OF THE ACCESSIBILITY FOR ONTARIANS WITH DISABILITIES ACT, 2005
“For most disabled persons, Ontario is not a place of opportunity but one of countless, dispiriting, soul-crushing barriers”
Thanks to everyone who wrote in, those of us with environmental sensitivities have been recognized, and thanks to David C. Onley, we’ve been included in the report and the final recommendations:
In the SUMMARY OF RECOMMENDATIONS (on pg 80):
7. Ensure that accessibility standards respond to the needs of people with environmental sensitivities.
Other mentions of environmental sensitivities and details:
Posted in Accessibility, Disability, Environmental Sensitivities, Human Rights, Policy
Tagged AODA, chemical sensitivity, discrimination., EHS, fragrance-free, IAQ, MCS, review, scent free, systemic
The Province of Ontario’s Ministry of Health and Long Term Care’s long awaited Environmental Health Task Force Interim Report has finally been released!
“We found that, throughout the health care system and in society at large, there is:
•a lack of recognition of the seriousness and severity of these conditions
•a profound shortage of knowledgeable care providers
•a dearth of clinical tools to support and guide care
•a discouraging shortage of services and supports for people living with these conditions
•an absence of support for family caregivers.
The lack of knowledge and appropriate accessible care has devastating effects on Ontarians struggling with ME/CFS, FM and ES/MCS.
For those living with ME/CFS, FM and ES/MCS, the lack of recognition of these serious and debilitating conditions is as harmful as the lack of treatments. …
We urge the Minister to act now to raise awareness of these conditions and address the barriers that keep people with ME/CFS, FM and ES/MCS from getting the care and services they need.”
From the press release:
Posted in Accessibility, Action, Environmental Health, Health Care, Human Rights, Policy
Tagged AODA, environmental sensitivities, ES/MCS, fibromyalgia, FM, hospitals, invisible disabilities, MCS, MCS/ES, ME/CFS, mental health, multiple chemical sensitivities, multiple chemical sensitivity, OHIP, Ontario
When she needed accommodation, you won’t believe the rigmarole that ensued.
(unless you have MCS/ES)
“They should not have to make significantly more effort to access or obtain service. They should also not have to accept lesser quality or more inconvenience.”
Someone with MCS (who wishes to remain anonymous) was asked about how her efforts to receive appropriate, safe, accommodation were going, so she could see a health care provider. She is one of a growing number of people who become disabled from exposures to toxic chemicals found in many everyday products and materials, especially in fragrances.
This is pretty much how the story goes:
She contacted a health care provider by phone and talked to a receptionist.
She asked her if they had a scent-free policy and was told they didn’t.
Posted in Accessibility, Chemicals, Disability, Environmental Health, Fragrance, Human Rights, Indoor Air Quality, MCS/ES, Policy, Precaution
Tagged allergies, AODA, environmental sensitivities, Fragrance, fragrance-free, fragrance-free policy, health, IAQ, invisible disabilities, multiple chemical sensitivities, petrochemicals, Pollution, rigmarole, smoke-free, systemic barriers, systemic discrimination, toxic chemicals
Guest post and images by Laura J Mac
What always strikes me during conversations about how to persuade service providers to accommodate our disability is how much extra work we have to do just to participate in simple survival stuff. I mean, “simply” tracking down professionals who are willing to accommodate is a chore and a half. The luxury of “having a good relationship” with a service provider falls way down on the list because it’s usually one or the other.
Nobody would think twice about someone who uses a mobility device asking if there are ramps and elevators but it seems that our need for fragrance-free and reduced chemical exposure is perceived as a “preference” rather than a medical necessity. That perception leads to the idea that accommodation of our disability is an “option” (and generally it’s an “option” that service providers aren’t willing to make available.) It’s not that we don’t “like” fragrance, these chemical exposures cause neurological and physiological problems that interfere with our ability to function on a daily basis.
Posted in Accessibility, Disability, Environmental Health, Fragrance, Health Care, Human Rights, Indoor Air Quality, Mental Health, Policy, Public Health
Tagged AODA, Chemicals, environmental sensitivities, fragrance-free policy, hazardous air pollutants, health, IAQ, invisible disabilities, MCS, MCS/ES, mental health, multiple chemical sensitivities, Ontario, petrochemicals