Shared by Doug Atwood
In June 2017, we lost a friend and active member of our community.
Shared by Doug Atwood
In June 2017, we lost a friend and active member of our community.
Posted in Community, Environmental Sensitivities, Friendship
Tagged asthma, environmental sensitivities, MCS, MCS/ES, obituary, safe housing
I ran across some striking photos by Alex Kisilevich (you can see them in the banner above if you squint) and I shared the link with the intro “Food for thought… what’s outside the bubble preventing access?” Someone responded with “tell me about it”, so I wrote a short story before seeing what the photographer’s intent was, if it was indeed as a writer wrote, to say:
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Human Rights, Public Health
Tagged allergies, asthma, autism, bubble, cancer, chemical sensitivity, EHS, environmental sensitivities, hazardous air pollutants, health, invisible disabilities, MCS, MCS/ES, petrochemicals, toxic chemicals, toxic trespass
WHO Says We Need Fresh Air?!
Guest Post from Marie LeBlanc
Bringing awareness to chemical sensitivity
Marie LeBlanc at the Centennial Concert Hall in Winnipeg. May 12th 2017.
I am an artist in Winnipeg who lives with multiple chemical sensitivity (MCS) and environmental illness caused by mold exposure. My art has been in relation to multiple chemical sensitivity (MCS)/Environmental Illness (EI) and toxic environments.
“WHO says we need fresh air?!” is a series of quotes from sufferers of Multiple Chemical Sensitivity, Environmental Illness, Mold Exposure, Electrohypersensitivity Syndrome, Lyme Disease and other conditions related to Chronic/Complex Immunological Neurological Diseases.
The art installation was on display during the evening of Fri. May 12, on Multiple Chemical Sensitivity (MCS)/Environmental Sensitivities Awareness Day, outside the Centennial Concert Hall (with a few quotes displayed on the indoor screens), and is dedicated to my friend Eliana from Mexico.
Posted in Accessibility, Disability, Environment, Environmental Health, Health, Housing, Human Rights
Tagged allergies, anaphylaxis, asthma, chemical sensitivity, chemicals in clothing, CIND, creativity, EHS, environmental illness, environmental sensitivities, Fragrance, hazardous air pollutants, homeless, Housing, invisible disabilities, Lyme Disease, MCS, MCS/ES, Mold, multiple chemical sensitivities, suicide, toxic chemicals
May 12th is International MCS Awareness Day, and May is MCS Awareness Month. Many people who have MCS also have MCAS – Mast Cell Activation Syndrome, where chemical and other exposures cause anaphylaxis.
Guest Post from Raven
My request for you to visualize:
I’d like to ask each of my friends to sit in a quiet space for just 15 minutes and close your eyes. Breathe and get calm and relaxed.
Now I want you to think of yourself only. Visualize yourself in your body. Once you see or feel you, I want you to see yourself Continue reading
Posted in Community, Disability, Environmental Health, Housing, Human Rights, Imagination, Pollution
Tagged allergies, anaphylaxis, chemical sensitivity, Chemicals, environmental illness, environmental sensitivities, Fragrance, health effects, Housing, invisible disabilities, MCS, MCS/ES, pesticides, petrochemicals
Here’s an easy way for everyone to show some support!
And maybe, just maybe, wearing a mask for an hour or a day will spread some understanding of why the people who fought for smoke free policies did that instead of expecting all non-smokers to just wear masks always and everywhere.
The Mask Challenge is brought to you by
Help us make May 2017 the last time that we ever hear or read the words:
“MCS? #NeverHeardOfIt!!”
#MaskChallenge! Do it! Grow #MCSAwareness!
Watch the video and read the transcript below:
Posted in Accessibility, Action, Air Quality, Environmental Health, Fragrance, Pollution, Public Health
Tagged activism, awareness, chemical sensitivity, environmental sensitivities, IAQ, invisible disabilities, masks, MCS, multiple chemical sensitivities, petrochemicals, support, toxic trespass, video
Unilever, the company responsible for making disabling products like AXE (aka LYNX) has announced they will be expanding their product ingredient lists to include fragrance ingredients above 0.01 percent (100 parts per million) in a product’s formulation (via the SmartLabel app, but not on the actual labels *)
* 20 parts per million (ppm) is the FDA’s standard for ‘gluten-free’ *
Which means that people who are allergic or “sensitive” can suffer serious and life threatening effects from substances at well below 100 ppm, and we still won’t know what is causing the symptoms, or what we need to avoid to stay alive.
This plan may help people who aren’t knowingly or immediately affected by fragrance exposures to choose their products more wisely, but it doesn’t go nearly far enough to help those of us who are disabled by or have life threatening reactions to their products.
Edited to add:
Unilever’s fragrance transparency is a major green-wash at 100 ppm, when gluten-free has to be below 20 ppm, and people with isothiazolinone (aka MI) allergy react to as little as 3 ppm, perhaps less.
Also, long-term health limit for fumes from dry-cleaning solvents has dropped from 20 parts per billion to an infinitesimal 2 parts per billion because long-term exposure to even very low concentrations can result in cancer, as well as fetal development problems for pregnant women.
Other interesting tidbits about Unilever:
We are surrounded by and saturated with fragrance chemicals now.
(if you have been impacted, you know this is not hyperbole)
Most fragrances are now are made from oil and gas based chemicals.
They are in our personal care, laundry, and cleaning products. They are in garbage bags, candles, and shoes. They are in toys, fire-place logs, and diapers. They are in toilet paper, stationary, and stickers. They are in clothing, pillows, and jewellery. They are in foods, plastics, and medicines. They are in kitty litter, trash bags, and vacuum cleaner bags. They are even in pesticides, where they are regulated by the EPA, but they are not regulated by anyone when they are added to all the other products we use and are exposed to!
There’s no escaping fragrance even when housebound, because so many deliveries of even the basics like food, arrive fragrance contaminated!
We were not designed for 24/7 exposures to toxic chemicals
.
How much more evidence is needed before something is done about the human and environmental health problems caused by fragranced productss?
.
Here’s an info dump with some relevant links and videos:
Posted in Air Quality, Brain, Chemicals, Child Health, Disability, Environmental Health, Fragrance, Human Rights, Pollution, Public Health
Tagged allergies, asthma, autism, cancer, chemical sensitivity, environmental sensitivities, essential oils, fibromyalgia, fossil fuels, hazardous air pollutants, IAQ, invisible disabilities, MCAS, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, pharmaceuticals, profits, scented products, STINK, supply chain, toxic trespass
From Dr Anne Steinemann’s latest research
“Fragranced consumer products: exposures and effects from emissions”
“Basically, if it contained a fragrance, it posed problems for people”
“This is a huge problem; it’s an epidemic”
says Professor Steinemann.
She is especially concerned with involuntary exposure to fragranced products, or what she calls “secondhand scents.“
“Over 22% of Americans surveyed can’t go somewhere because exposure to a fragranced product would make them sick.”
“These findings have enormous implications for businesses, workplaces, care facilities, schools, homes, and other private and public places,” said Professor Steinemann. For instance, a growing number of lawsuits under the Americans with Disabilities Act concern involuntary and disabling exposure to fragranced products.”
Posted in Accessibility, Air Quality, Environmental Health, Fragrance, Human Rights, Policy, Public Health
Tagged allergies, Anne Steinemann, asthma, chemical sensitivity, environmental sensitivities, epidemic, fragrance-free, hazardous air pollutants, health, IAQ, invisible disabilities, MCS, MCS/ES, petrochemicals, Research
…
The following questions are to help us think about how much space we have to enjoy, and what if it were to be taken away.
I saw this photograph on facebook of Richard Gere and Roshi Joan Halifax hugging (at the Mind and Life “Power and Care” conference), which to me exemplifies the best kind of (adult to adult) hug we humans could have.
I haven’t been able to stop looking at it… and it made me start trying to remember when the last time I was able to hug someone was.
I don’t think it was in 2010 when I left Toronto, as I was so sick then, and I didn’t have any spare clothes to risk contaminating them with 2nd and 3rd hand fragrance chemicals. Continue reading
Posted in Accessibility, Air Quality, Chemicals, Community, Disability, Environmental Health, Fragrance, Human Rights, Pollution, Toxic Trespass
Tagged chemical sensitivity, environmental sensitivities, hazardous air pollutants, invisible disabilities, isolation, laundry, MCS, MCS/ES, pesticides, petrochemicals, solitary