Tag Archives: multiple chemical sensitivities

Endocrine disruptors – in fabric?

O Ecotextiles is a great blog to follow if you are interested in what’s happening in the textile world. Lots of excellent information about why those of us with MCS/ES and Fibromyalgia can have so much difficulty finding safe (non-toxic) clothing to wear, as well as safe beds and furniture to rest our weary bodies on.

Here’s their latest, a subject that is worth understanding, as endocrine disruptors are found in so many of our everyday products and materials, and our endocrine systems are responsible for regulating so much of our lives, processes that we seem to have taken for granted for far too long…

Endocrine disruptors – in fabric?.

A big thank you to Patty and Leigh Anne who founded O Ecotextiles in 2004 and keep us so well informed.

Access to Safe and Appropriate Dental Care for People With MCS/ES: Part 3

Part 3: Things I Need to Do to Survive a Trip to the Dentist     

(I have severe MCS, the measures I need to take are not necessary for everyone)

In addition to making sure I am fully prepared for what I need in order to survive the days following a trip to the dentist (supplies, food, frozen foods, etc), I have to prepare for the actual visit. Depending on my state of brain fog and or brain injury symptoms, this can be very time consuming and challenging.

If possible, I discuss these measures in advance with staff when I make the appointment, to make sure they are prepared to accommodate my disability related needs, and can be comfortable explaining them to other patients who might have concerns when seeing me.

At the cabin, getting ready to go to the dentist
At the cabin, getting ready to go to the dentist
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Access to Safe and Appropriate Dental Care for People With MCS/ES: Part 2

Access to Safe and Appropriate Dental Care for People With MCS/ES:

Part 2: Resources and Links

dental tools

What we really need are mobile dental vans that have no-VOC interiors and staff for people with severe MCS/ES, and safe and accessible dental offices and practitioners for everyone else. Until then, we need ways to protect ourselves and must often educate the dentists and staff as to how they can take care of our needs.

From mild to severe MCS/ES, different measures may be required.

Here are useful links that can help you prepare, and a sample office policy:

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Worth Reading: Other Bloggers Write About MCS/ES and ME/CFS

Worth Reading

Fergiemoto wrote about the challenges she faces due to having MCS and fragrance chemical proliferation. I love her illustrations!  See Human Canaries and Friendship.

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Sharon, a writer and service dog partner who also has Lyme Disease and other disabilities, wrote about how MCS affects her life here: How MCS Affects Sharon

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Phoenix Rising posted this great piece by Carol Schmid who examines what it is about the nature of ME/CFS that makes it likely to generate skepticism. There are many similarities with MCS/ES. See:  The ME/CFS Stigma

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Women’s Voices for the Earth Report on “Secret Scents”

Women’s Voices for the Earth recently released a new report, called “Secret Scents“. It  highlights the need for ingredient transparency by the companies that create fragranced products, since right now we have almost no way of knowing what is causing the fragrance allergies and other serious health effects people experience when exposed to  fragrances. These adverse health effects are increasing, especially in children.

Amazingly, companies are not required by the FDA or EPA to disclose fragrance ingredients, so it is difficult for anyone to pinpoint specific fragrance allergens and sensitizers among the hundreds of ingredients that can make up a scent.

Another report  was also just released, this one on endocrine disrupting chemicals. Some fragrance ingredients, like phthalates (see below) are also endocrine disruptors, while others are known carcinogens and/or neurotoxic!

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Fragrance: A Barrier to Access

Fragrance a Barrier to Access

Fragrance: A Barrier to Access

When you choose, use and wear products with fragrance, you create chemical barriers to access for people who are disabled when exposed to the toxic chemicals allowed in fragrances.
To be air safe and disability friendly, choose fragrance-free laundry and personal care products, and avoid dryer sheets and fabric softeners.

Not so Equal Access to Health Care in Ontario or Systemic Barriers to Access for People with MCS/ES

MCS/ES Safe Gift Ideas

Golden Gift

Thinking about all the toxic gifts out there, I thought that compiling a list of safeR non-toxic gift ideas might be helpful, as sometimes it’s hard to think of (or choose) something  when we are asked if we have too much brain fog going on. I know it has been for me.

I think the greatest gift would be if family and friends went fragrance and chemical free so we could enjoy their company.

Here’s a few other ideas I thought of:

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MCS Car Repair Safety Precautions

This note can be modified to suit individual needs.

car repair

Car Repair Safety Precautions (when taking the car in for any work)

Would you please ensure that the enclosed notice is taped visibly to the driver’s side car window, and that anyone who works on the car is made aware of the precautions necessary to prevent an accidental use of products which would render the car unusable to me.

Thank you.

I have severe environmental and chemical sensitivities and allergies, etc. to a wide assortment of chemicals contained in cleaning and other petrochemical products.

In order to make sure the car remains safe for me to drive, can you please take the following precautions:

No-one with gas, oil, cologne, aftershave, scented soap or lotion residues on their hands should touch the car interior.

No smoking in the car, or anyone who has just been smoking.

Use clean disposeable gloves or paper towel to touch doorknobs, handles, steering wheel, etc.

Make sure the seat and steering wheel are fully covered before touching or sitting.

(I may provide a mylar emergency blanket to cover the seat with)

Do not use WD-40 or other products on door hinges or anywhere inside. If any interior lubrication is necessary, please advise and we will research a safe alternative product.

Do not, under any circumstances, use any cleaning or air “freshening” products in or near the car.

Please do call  if there are any questions

Thank you for your co-operation.

Safe Housing – One Brick at a Time

The Environmental Health Association of Québec (EHAQ) is ready to build an ecological, affordable housing community for people with Environmental Sensitivities and related conditions. This type of housing will provide a roof for those in dire need of a healthy home, free of the triggers that make them ill.

safe and healthy home

A home that will restore dignity and health…how amazing is that?

Please watch the video

JOIN EHAQ TO BUILD A HEALTHY COMMUNITY, ONE BRICK AT A TIME
BUY A BRICK @ $10 A BRICK!

To donate and learn more:

http://www.aseq-ehaq.ca/donation/donateonline.php

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MCS Video compilation from Alison Johnson

Alison Johnson’s film
“Multiple Chemical Sensitivity: A Short Introduction”

For more information see her website

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