Category Archives: Chemicals

Fibro Flare From Underwear

 fibro flare from underwear 1 Original image from GettyYes way…sighs…

Most of us wear underwear all the time. We don’t think much about it.

I remember when I used to be able to find decent 100% cottom undies with enclosed elastic waistbands at the dollar stores! I could throw them in the wash once, and they were good to go. Those were the days!

More recently, I’ve been disabled from a serious fibro flare caused by trace (?) levels of chemical residues from wearing organic undies that cost me $20 a pair. Even after soaking and washing them at least a dozen times, and then boiling them several times after.

Disabled?
Yes, disabled!

My alternate title for this post was Disabled by Underwear… Here’s what happened:

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Have Your Say For May by Amy

tilted momAmy from Florida shares this with us:

Q ~ If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?

A ~ What I’d really like to tell the world about my life is a full explanation of MCS, such that everyone would understand it enough to prevent, treat and accommodate me and everyone with this illness. That seems like more than I could do even if I had a whole book rather than a blog post. So I will focus my answer on something a bit more manageable.

I would tell the world that the invisible nature of this illness affects me on many levels. Some of the substances I react to are invisible, though they are obviously detected by my body. Some of my symptoms are invisible to others, but are still felt by me and still limit my abilities. Most importantly, the primary survival mechanism of chemical sensitivity is avoidance, which means that I have to avoid public places. Thus, the sicker I am, the more invisible I am to my community. That invisible nature of this illness is the most devastating part for me.


Q ~ How has this one thing affected your life?

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3o Things

30 Things

The following is a list of products many of us use or have contact with every day. Each and every one of these usually contains unregulated synthetic chemical ingredients, many of which pose known health hazards.

How many of these things did you touch or breathe in today?
What is protecting you?

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MCS is International

People all over the industrialized world have been developing Multiple Chemical Sensitivities and Environmental Sensitivities, or Environmental Illnesses. We are exposed to so many petrochemical pollutants, in our air, water, foods, clothes, furnishings, homes, and elsewhere in daily life, substances which are now known to cause many kinds of adverse health effects, and some of us just have the epigenetic disposition to feel the effects faster and more extremely than others who may develop cancer or some other condition many years later.

Amelia Hill (aka the Amazing Amelia Hill) lives in Australia and developed very severe, or extreme MCS after not being properly diagnosed for too many years. A lack of proper diagnosis and precautionary measures usually results in a debilitating worsening of the condition, which is best addressed with avoidance of the triggering substances, and building up health in very targeted ways. This is much more difficult to do the longer one isn’t able to take the steps to avoid exposures and rebuild life with safe alternatives.

Amelia’s life is probably unlike any you have ever heard of (even mine) although there are many similarities between the experiences those of us who have severe MCS/ES share. Amelia is known as “amazing” because of the ways she handles her life.

You will see why here.

Amelia 01

Amelia’s story has been featured as the cover story in what may be South Australia’s most popular newspaper weekend magazine: Continue reading

About Those Fragrance-Free Laundry Products

Some of us have gone to great lengths to encourage others to use fragrance-free products, especially for laundry, as many of the chemicals in fragrances cause such  disabling effects for us.

Not only that, but fragranced laundry products pollute entire neighbourhoods with hazardous chemicals when pumped out of dryer vents (which were designed to emit moisture, not toxic chemicals), meaning that we (and others with asthma, migraines, COPD, etc) can’t sit or work outside in our gardens, open our windows for fresh air, or go for walks safely when other people are doing laundry with regular commercial  products (and when are they not?), because we could be felled at any time from the emissions.

Much to our chagrin, many of us have discovered that some fragrance-free products can also make us dizzy, cause breathing difficulties like asthma, create cognitive confusion and memory problems, give us headaches, chemical hangovers, and more.

This has caused all kinds of difficulties, not just for us, but for the people who switched products only to discover that their efforts were not “good enough” for us.

“Can’t they EVER be happy?  Why are they still complaining?”

Anne Steinemann’s recently published research regarding VOCs emitted from regular personal care, cleaning, and laundry products, (the popular ones used by most people in the “developed” world) sheds some much needed light on the problems.

So what did she find?

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Your Favorite Personal Care and Cleaning Products Went to the Lab, and They Came Back With This

Take a deep breath (or maybe not)

“This study found 156 different VOCs emitted from the 37 products, with an average of 15 VOCs per product. Of these 156 VOCs, 42 VOCs are classified as toxic or hazardous under US federal laws, and each product emitted at least one of these chemicals. Emissions of carcinogenic hazardous air pollutants (HAPs) from green fragranced products were not significantly different from regular fragranced products.”

Most homes are full of these products!!!

Indeed, most indoor environments (and everything in them) are now polluted with these VOCs due to the pervasive nature of these products and chemical compounds.

156 VOCs

From the research article:

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Endocrine Disrupting Chemicals Are Costly to ALL of Society

(not just those of us who are adversely affected before others)

“Global experts in this field concluded that infertility and male reproductive dysfunctions, birth defects, obesity, diabetes, cardiovascular disease, and neurobehavioral and learning disorders were among the conditions than can be attributed in part to exposure to endocrine-disrupting chemicals (EDCs).”

New research estimates the cost in Europe alone to be in the billions of dollars. As these endocrine disrupting chemicals have been inflicted on the global population, and are found in countless everyday products and materials, the costs to society are huge (and the profits to the chemical and pharmaceutical companies are equally huge).

“The overwhelming majority of the reported costs were from “lost cognitive potential”
Dr Leonardo Trasande

I’ve posted about EDCs a few times, including here:

Endocrine Disruption… Huh? Why Should We Care?

Many of us have no idea what “those people” are talking about when they mention endocrine disruptors. Sounds like something foreign and insignificant, or at least it did to me, until something caught my attention a few years ago. …

Here are links to some of the news articles and how you can avoid some EDCs:

 

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Revolutionary Way to Freshen the Air

Freshening the air is big business these days. Polluting the air is also very profitable. Sadly, it’s usually similar chemicals  polluting the air as are in the substances sold to “freshen” it.

What does fresh air smell like?

fragrance emitting products smell like chemicals

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Laundry Woes Six Years Later

6 years

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How to Have Company (or Repairmen) In Your Home When You Have MCS/ES

Even when people try to be fragrance (and other chemical) free, they can have 2nd and 3rd hand residues from personal care, cleaning, and laundry products all over them. Air “fresheners” and scented candles are other items that leave residues on everything. It can take weeks to get it out of skin and pores, and longer to get it out of clothing and bedding, all the while re-contaminating the body and anything else that has contact with the fragranced surfaces or air.

rigmarole

Fragrance (and other toxic) chemicals are just all-pervasive now. Unless people are completely fragrance-free and stay out of fragrance filled places, they will have some degree of fragrance saturation in their clothes, skin, and hair. Some of the residues are also impossible to remove no matter how hard one tries, because of chemicals that are designed to penetrate and remain active for long periods of time (think of the  laundry commercials where they boast you can smell the fresh scent days later – except some of us can be affected years later, because that’s how permanent those chemicals are).

If people who use those products come to visit, not only can they leave us gasping for air (or worse) during their visit, they can leave chemical residues that will keep off-gassing from the couch and anyplace else they touched for days or weeks to come.

fragrance around a sofa

Depending on how severe one’s MCS/ES is,there are different things that can be done.

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