Category Archives: Research

Safe Housing Survey

Do you (or will you) need safe housing?

Until the end of November 2019, Health Risk Navigation Inc. (HRNI) is conducting a much needed (yet simple) survey of the housing needs of the chemically injured in order to have quantitative data to show housing providers, communities, policy, and decision makers, funders, and other relevant parties.

This kind of data doesn’t exist currently, so even though safe housing is our core need, there are no official documents that anyone can easily point to.

More details are available on their FAQ page:
https://www.hrni.ca/Housing-Survey-FAQ.php

Some of you may have already done the 1st edition of this survey in June of 2019, when it originally came out. Thank you! Even though the survey now has a different format, those responses are not lost.

You don’t have to do the revised one, but it would be helpful if you could spend the 10-15 minutes to do so… just mention that you completed the original on the last page where people are asked to share any additional comments.

The questions of the initial survey and the current survey are identical, except that the current survey now has four new questions at the beginning  that seek  consent of the respondents to save and share info (largely due to EU privacy laws).

Every question also gives an explanation as to why the data is requested. Additionally, every question (except the consent questions) now gives us the choice to answer “Prefer Not To Say”.

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Now Online: “Multiple Chemical Sensitivity: A Survival Guide”

Great news!

Pamela Reed Gibson’s groundbreaking and information filled book “Multiple Chemical Sensitivity: A Survival Guide” (2nd Edition) is now available to read online, or as a download, for FREE!

 

It’s still very relevant and extremely useful even though it came out in 2006.

There are also a lot of other excellent resources, including research papers, available on the new website: Continue reading

Three New Videos About Environmental Sensitivities

 

EHAQ (Environmental Health Association of Québec) is presenting three new videos for

Environmental Sensitivity Awareness Day – May 12, 2019

Presentations are from:

John Molot MD.

“Numerous papers have been published supporting a biological explanation for MCS. These will be reviewed as well as the evolving medical and political perspective.”

David Fancy Ph.D.

…”Drawing from insights from the ‘social model of disability’ this presentation identifies how the current cultural moment presents systematic barriers, negative attitudes and ongoing electromagnetic wounding that puts the responsibility on society for being the main contributing factor in disabling EHS persons.”

Meg Sears Ph.D.

…” Sears notes the urgency of curbing harmful products and thus chronic disease because as people are getting sicker, families and society also suffer and the healthcare budget balloons faster than the Gross Domestic Product – clearly an unsustainable situation.”

 

The videos are available in both English and French.
There’s no need to register this year, just visit the website:

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MCS Survey for May 2019

Survey for People with Multiple Chemical Sensitivities (MCS) and/or Environmental Illness and Injury (EII)

Guest post from Mordecai Cohen Ettinger,
The Health Justice Commons

I’ve had MCS for nearly 20 years. I’m a survivor of of the Three Mile Island partial nuclear meltdown, excessive x-ray radiation from medical treatment as a child from a teaching hospital that has since been ongoingly investigated for bioethics violations, and successive exposures to lead and mold from reckless landlords.

I’ve been a community activist for many years, along with a scholar and teacher of Critical Science, Technology and Medicine Studies.

In late 2016, I founded the Health Justice Commons, a non-profit. Our mission is to re-imagine and remake healthcare for our times.

To support efforts for MCS Awareness Month, we want to address the gap of basic research of our experiences.

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Environmental Sensitivities (Chemical, Electrical, and Beyond) in Ecopsychology

Special Issue on Ecopsychology and Environmental Sensitivities:
Chemical, Electrical, and Beyond

The articles in the special edition of Ecopsychology are sometimes available for free (like right now), so  if you haven’t read them yet, this is a good opportunity to check them out!

This is a real gift from the publisher! The usual cost is about $50 per article!

Please read and share with others who aren’t familiar with what is going on!

http://online.liebertpub.com/toc/eco/9/2

The articles and authors are listed here:

Introduction Continue reading

Research Survey: Are You Over 21 and ‘Sensitive’ to Environmental Pollutants?

Research Update

I’ve  previously posted about a research project Pamela Gibson from the James Madison University in Virginia was undertaking. She has been asking for women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how their needs are being met as they grow older with sensitivities, but due to a lack of participation from women over the age of 65 (does anyone want to guess why?) she has opened up the study to anyone over the age of 21.

WOMEN OVER AGE 65 STUDY MODIFIED TO INCLUDE PERSONS 21 OR OVER WITH ENVIRONMENTAL SENSITIVITIES
(CHEMICAL OR ELECTRICAL)

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Videos: What’s Making us Sick? The Chemical Erosion of Public Health

If you prefer getting your research information by watching and listening  instead of reading, here are a couple of video presentations by the esteemed Dr Stephen J. Genuis, who is one of the leading experts on  environmental health.

In these presentations he discusses the increases in chronic illness and mental health problems, chemical and other causes and effects,  shortcomings in our health care systems, as well as some treatment options to improve health.

I’ve also linked to related research for those of you who like to read.

videos 4 Genuis

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‘Conceptual Breakthrough’ Regarding the Chemicals We’re Stewing In

This is BIG news in the everyday chemicals and human health research front!

This explains what many of us who have MCS/ES experience – we can feel these processes as they occur, we don’t have to wait for the cancer that will kill us if we don’t get away from the exposures and find tools to heal the already occurring damage.

chemical effects

‘Conceptual breakthrough’

“This is the first time scientists have figured out how widespread this is, and how many different layers of machinery within the cells themselves are being impacted by these chemicals.”

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“We found definite evidence that chemicals that are unavoidable in the environment can produce a wide range of low-dose effects that are directly related to carcinogenesis. So the way we’ve been testing chemical safety is really quite out-of-date.”

“Every day we are exposed to an environmental ‘chemical soup’ and we need testing to evaluate the effects of our ongoing exposure to the mixtures in this soup.”

~ William Goodson III, a senior scientist at the California Pacific Medical Center in San Francisco.

 

“This research backs up the idea that chemicals not considered harmful by themselves are combining and accumulating in our bodies to trigger cancer and might lie behind the global cancer epidemic we are witnessing.

~ Cancer Biologist Dr Hemad Yasaei from Brunel University London

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This would be all kinds of everyday chemicals, such as those that trigger MCS – they included chemicals found in items such as mobile phones, detergents and cooking pans, and pesticides used on fruits and vegetables!

Read the research or check out some of the media reports:

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Are You A Woman Over the Age Of 65 With MCS/ES?

IF SO, WOULD YOU PARTICIPATE IN A STUDY OF WOMEN’S NEEDS AS YOU GROW OLDER WITH ENVIRONMENTAL SENSITIVITIES?

The James Madison University Environmental Sensitivities Research Team is inviting women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how your needs are being met as you grow older with sensitivities.

If you are interested in participating, please click on the link below to see the consent form and learn more about the study. Continue reading

What We All Need Now: Personal Exposure Detection Devices!

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MyExposome has designed silicone wristbands (such as the ones worn in support of various causes) that are specially prepared to act as a sponge to absorb hundreds of different chemicals in our environment—the air, water, and even personal care products.

silicone-wristband-measures-1400-chemicals

The possibilities!

With all the toxic VOCs in everyday products,  the carcinogenic activity of the chemical cocktails we are exposed to on a daily basis, this is a great idea that can show people just how prevalent toxic chemicals have become, and how difficult it is to avoid them.

It would be really interesting to have a group of people with MCS/ES participate in some exposure measuring research, as those of us who have to practice extreme chemical avoidance for our health and well-being have some experiences that researchers will eventually find quite interesting.

Now, they would be able to see how difficult it is to avoid  these chemicals, even when making great efforts due to necessity (of course, different levels of MCS/ES dictate different levels of avoidance requirements and efforts too).

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