Monthly Archives: September 2014

Teaching Doctors About the Health Effects of Wireless Technology

Health Effects of Wireless Technology Dr

The updated contents of this post may now be found here:

Learning About the Health Effects of Wireless Technology

https://seriouslysensitivetopollution.wordpress.com/2015/01/11/learning-about-the-health-effects-of-wireless-technology/

Air Cleaners, Filters, and Purifiers

Many of us have to breathe to stay alive. Okay, all of us have to breathe to stay alive. Some of us just need cleaner air than others, or our ability to think and function is severely impaired from inhaling common pollutants found in both outdoor and indoor air.

This is where air purifiers and filtration devices come in.

Here are links to a few good documents and websites to read before you spend any money, that discuss what to look for and what to avoid:

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Support the Ontario Centre of Excellence in Environmental Health (OCEEH)

The Myalgic Encephalomyelitis Association of Ontario (MEAO), along with others, has been working on a plan to get proper health care and supports established for the hundreds of thousands of people in Ontario who are affected by the “often overlapping, commonly disabling and sometimes life-threatening conditions of ES/MCS (Environmental Sensitivities/Multiple Chemical Sensitivity), ME/CFS (Myalgic Encepahlomyelitis/ Chronic Fatigue Syndrome) and FM (Fibromyalgia).”

A quick, easy summary document of the features and benefits of the OCEEH  business case proposal for a comprehensive network of care and support has been sent to every MPP in Ontario. Here it is for you too (copied from the PDF 2014 OCEEH IN A NUTSHELL), so you can encourage your local elected representatives to support it in Ontario, and to support similar plans everywhere else in the world:

ONTARIO CENTRE OF EXCELLENCE IN ENVIRONMENTAL HEALTH (OCEEH)
‘IN A NUTSHELL’

“Five percent of Ontario’s population is affected by the often overlapping, commonly disabling and sometimes life-threatening conditions of ES/MCS (Environmental Sensitivities/Multiple Chemical Sensitivity), ME/CFS (Myalgic Encepahlomyelitis/ Chronic Fatigue Syndrome) and FM (Fibromyalgia).

As of 2010, over 568,000 Ontarians had been diagnosed with one or more of these conditions. This number grew from 439,000 in 2005, as reported in Statistics Canada’s Canadian Community Health Survey. It demonstrates prevalence comparable to diabetes, heart disease, cancer and effects of a stroke. These are very widespread conditions, and the 2010 figures are likely underestimates.

Recognition, diagnosis and treatment of these serious conditions are absent from Ontario’s health care system at present. Even though a commission of enquiry recommended services be put into place for ES/MCS as long ago as 1985, exclusion, discrimination and stigmatization of those living with these conditions have been the rule; and Ontario has lost physicians seeking to help these groups.

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“Sensitivities” in the Canadian Family Physician journal

The June 2014 edition of the Canadian Family Physician journal contains a couple of excellent articles by Dr Stephen J. Genuis. Here’s the abstract and link to one of them:

Approach to patients with unexplained multimorbidity with sensitivities

Abstract:

Objective To explore the underlying causation of unexplained multimorbidity with sensitivities and to discuss the management of patients who present with this perplexing condition.

Sources of information Medical and scientific literature was used from MEDLINE (PubMed), several books, toxicology and allergy journals, conference proceedings, government publications, and environmental health periodicals.

Main message Multimorbidity with sensitivities has become an increasingly common and confusing primary care dilemma. Escalating numbers of debilitated individuals are now presenting to family physicians and specialists with multisystem health complaints, including sensitivities and fatigue, with no obvious causation, a paucity of laboratory findings, and a lack of straightforward solutions. In the recent scientific literature, there is discussion of sensitivity-related illness, an immune-mediated disorder that frequently manifests with multisystem symptoms, commonly including sensitivities and fatigue.

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Some Fragrance Contamination Effects

There are days that I am not as peaceful as I would like to be… This is one of them…

Despite most of my fantasies being about a world where we all have clean air, clean water, healthy food, safe shelter and clothing, and care about each others well-being, I admit to occasionally entertaining various “revenge” fantasies regarding those who allow toxic chemicals into everyday products and materials, especially those in the fragrance industry…

I have had different fantasies over the years, despite in my heart of hearts, not wanting anyone to suffer…Today another revenge fantasy emerged (since some people just don’t understand the harm their actions cause others, unless they personally experience the same or similar harm):

The people who allow toxic chemicals to be used in colognes and other fragranced products deserve to be locked into a room with no ventilation, to inhale the fumes from 20 opened bottles and packages of those products (like soaps, laundry, personal care and cleaning products) for 24 hours, no matter what happens to them while they are in there.

eau de not fresh

With their families and friends watching via live-stream somewhere else…

Ok, I’ll be a little considerate…maybe when they go unconscious or delirious, they could be taken to a hospital, to a room filled with toxic sanitizers, PVC/vinyl fumes, perfumed and cologned doctors and nurses… only to be told that their symptoms were all in their head.

Why, you might ask, would I wish such a thing on someone today?

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Day 256 In the Pursuit of Love (IIAW A “Sister’s” Journey)

Colleen and her friend Beth discuss statistics and friendship challenges and benefits in another revealing post for Invisible Illness week…
Just like Colleen waited for years to get officially diagnosed with MCS, so did I, and for mainly the same reasons.
I knew that the doctors at the time knew nothing about it (or they would have given me a clue as to what the early signs were years ago).
Eventually I came to realize that statistics ARE important (to decision makers), and if we don’t make the effort to get an official dx (I say effort, because many people go from uneducated doctor to uneducated doctor for years… see my post about good news for Ontario to understand what a major deal the announcement of training 2 doctors in environmental health is) then in the eyes of decision makers, we do not exist.
That means that services for us continue to not exist also…
But when we speak up, things change.
I love how Colleen is speaking up, and how her friends are too!

Life in the City with a Future

PERSON

Image17meshovelFor day 5 of Invisible Illness Awareness Week, my buddy Beth has agreed to give her perspective of what it is like having a friend disabled from MCS. In a Canadian study, in 2010, over 800,000 people were diagnosed with MCS (Multiple Chemical Sensitivities) an 31% increase in 5 years. Those during the same time period with one or more of Chronic Fatigue, Fibromyalgia, and MCS were 1,415,000 (a 25% increase). This study excluded children with MCS and focused mostly on people with MCS diagnosed by a doctor. I personally went undiagnosed for decades. I avoided the triggers of perfume as much as I could. I figured there was nothing a doctor could do for me anyway and why be just another statistic. I now understand how important it is for our governments to have accurate statistics. The more people who give MCS a voice — the more likely we…

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Day 254 In the Pursuit of Love (IIAW In Mom’s Words)

A mother’s thoughts on having a daughter with disabling MCS

Life in the City with a Future

Image (11)I asked my mom for the ultimate act of love this week. I asked her tell about her journey having a daughter who is disabled with MCS. Mom asked me for questions for her to answer. These are her words:

1. What did you first think when I told you I was disabled with MCS and you would have to eliminate all toxic chemicals from your life if you wanted to physically see me?

I thought, God. How do we do that — chemicals are everywhere? How bad is this going to get for my poor daughter? And of course, I thought about myself also. I have lived for so long doing everything using all kinds of awful stuff and not even paying attention until you get an awful wake up call and have to hope and pray it is not too late.

2. Two years after my disability from…

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