Amelia Hill shared an eloquent post about enduring and working with loneliness (see below). Amelia and I are both housebound (and have been so for years), but she is currently confined to a much smaller space in her home than I am in mine.
From Heal Amelia’s Life:
Loneliness. I’ve kinda learned to override the often relentless waves of loneliness one feels living an isolated existence like mine.I don’t deny the feelings of loneliness or push them down in an unhealthy way. But it’s more like a repetitive cycle of acknowledging it & letting it go, acknowledging it & letting it go. It’s how I survive.
Posted in Accessibility, Community, Disability, Environmental Health, Friendship, Human Rights, Support
Tagged allergies, Amelia, EHS, environment, environmental sensitivities, Fragrance, health, Housing, invisible, MCS, MCS/ES, multiple chemical sensitivities, petrochemicals, posttraumatic growth
IF SO, WOULD YOU PARTICIPATE IN A STUDY OF WOMEN’S NEEDS AS YOU GROW OLDER WITH ENVIRONMENTAL SENSITIVITIES?
The James Madison University Environmental Sensitivities Research Team is inviting women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how your needs are being met as you grow older with sensitivities.
If you are interested in participating, please click on the link below to see the consent form and learn more about the study. Continue reading
Posted in Environmental Health, Environmental Sensitivities, MCS/ES, Multiple Chemical Sensitivities, Research
Tagged accessibility, EHS, MCS, needs, over 65, seniors, sensitivities, women
Good news for some people who have MCS/ES, CFS/ME, and FM
RESCUE PLAN FOR PEOPLE WITH CENTRAL SENSITIVITY SYNDROMES:
THE CITY OF TARRAGONA (CATALONIA, SPAIN) IS THE FIRST MUNICIPAL GOVERNMENT THAT IMPLEMENTS IT!
The first municipal government that has stepped forward to implement this plan, is the City of Tarragona Municipal Government (Tarragona is a major city 100 kilometres south of Barcelona). In the plenary session held last November 30th, the “Institutional Declaration of support for people with Central Sensitivity Syndromes” was approved, which consists of a concrete programme of measures. This is a historical step.
In part, the agreement includes:
Posted in Accessibility, Disability, Environmental Health, Government, Human Rights, MCS/ES, ME/CFS, Policy
Tagged CFS/ME, EHS, environmental sensitivities, fibromyalgia, FM, invisible disabilities, MCS, MCS/ES, multiple chemical sensitivities
Guest post by Sandra McPherson
I have a niece who moved back from out west just a year or so ago. I love her dearly. Her son that she had so much difficulty to have is named Owen. I lost a son named Owen and she contacted me to tell me she wanted to name him after my son unless it would upset me. She is so thoughtful!
I was sucking it up and inviting her here to my place, (safe place) for meals and visits now and then when I was strong enough. Her laundry fragrances and personal products were hard on me but it was only every few months, though I wished it could be more. We talked often about my MCS because she saw me go from a person that was at EVERY party and kid sport gathering and family get together, etc., etc., to a hermit.
I had not seen her in several months and she inquired about getting together again. We set up a date for lunch at my place again.
Guest post poetry by Sandy Lippert
You probably think you are all fragrance free,
But it doesn’t wash away so easily.
I’m certain of all your efforts and know how hard you try,
But when you come to visit, I’m just getting by.
I probably look just fine to you Continue reading
Posted in Air Quality, Environmental Health, Fragrance and Cosmetics, Support
Tagged allergies, asthma, Fragrance, friendship and fragrance, hazardous air pollutants, IAQ, invisible disabilities, MCS, petrochemicals
About a year ago I decided to give away an electronic item of some value that had belonged to my kids as they no longer wanted it and it had some chemical residues that prevented me from enjoying it (more too toxic tech issues). I posted it to a community giving group that is similar to Buy Nothing or Freecycle, where there are a lot of things given and received, for free (mostly clothing, toys, and small items).
As it was permitted to ask questions of respondents, I also decided to ask a question that people had to answer to be considered as a potential recipient.
Along with the description of the item, I posted:
*Please answer one of the following questions
1. Has anyone ever told you a product you use made them sick, and if so, how did you handle it?
2. If it hasn’t happened yet, how would you handle it if it did happen?
The responses included:
Posted in Accessibility, Air Quality, Change, Community, Environmental Health, Gifts, Health Promotion
Tagged environment, environmental sensitivities, Fragrance, invisible disabilities, MCS, petrochemicals
Guest post by Kelly N.
The Scream by Edvard Munch
It’s the most heartbreaking thing when you realize that you have no one…. zilch zero that will help you! All you are is a stranger in a strange land with no one hearing your plea. All the faces look around and stare at you like you have no face, no meaning.
Posted in Disability, Environmental Health, Human Rights, Interconnectedness
Tagged doubts, EHS, fibromyalgia, intolerance, invisible disabilities, Lyme Disease, MCS, ME/CFS, Mold