What I Wear In Bad Air :: Ellie

 

2016 Ellie

“Instead of cancer, I got MCS, meaning I stop breathing on contact with your everyday chemicals (plus a multitude of other symptoms.) Hey, there’s another perk! You might finally have the excuse you need to buy an expensive gas mask that can also be used with costumes! After all, once you get MCS, you can’t leave the house without one, so you’ll always be dressed for an adventure! #GoNatural”

Ellie uses this mask:

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What I Wear In Bad Air :: D.R.B. and M.C.

2016 D.R.B.

“I never leave home without a scarf to wrap around my face. To give me a hands free quick exit.”

~ D.R.B.

2016 M.C.

“This is me cleaning a mouldy wall in my apartment after a flood in February.  I was wearing all 3 – nasal filters, a disposable R95 (mostly to keep gas mask plastic off skin), plus the P100!  Thankfully, I didn’t have to stay and was able to move into a mold-free unit, as one became available.”

~ M.C.

To learn more about masks see

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What I Wear In Bad Air :: Rolf


2016 Rolf Aerssens

“This is me wearing a half face ABEK-P3 respirator with multi-gas filters.

I wear my “ALLERGY PATIENT” vest to identify my mask as a “medical necessity”. It helps a lot with preventing unkind comments and odd looks from people,  and hopefully will help people ask before shooting in times of terrorist threats.

I’m holding my clean air helmet in my right hand. The blower unit is normally worn on the back and is only in front for the photo.

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What I Wear In Bad Air :: Lisa M.

 

2016 Lisa M

“At one point I had to sleep in the mask when in a rental unit. There was smoke coming from a surrounding unit and toxicity from finish that was used on the floor. I typically use avoidance, but for situations where that is not completely possible the mask is used to help with some symptoms. One of the biggest issues I deal with is the impact of environmental triggers causing instant inflammation of my eyes. Since the mask does not help with that it has been necessary to wear it with glasses when avoidance is not possible.”

~ Lisa M.

For more info on masks see:

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What I Wear In Bad Air :: Marie

2016 Marie LeBlanc 1

“I have to  wear my mask to do laundry in the basement because of mustiness and other people’s fragrances.”

~ Marie LeBlanc

Marie also shared an artistically altered image of her wearing her mask while waiting to see a doctor, because people were ignoring the fragrance-free signs on the wall behind her. Continue reading

Update: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

UPDATE:
The bureaucrats expect Wendy to leave the only safe and accessible home Wendy has access to, the sherriffs could be there any day, and there is still no other safe and accessible place for Wendy to move to!

In a kind and sane society, disabled people would be treated with respect and dignity, and safe and accessible housing would not be taken from them when there is no place else to go to.

We need to treat people with invisible, inconvenient disabilities better!

Wendy has a safe-for-her-home, the ONLY place she can now be and remain functional, but the bureaucrats only see that it is a 3 bedroom home and not the 2 bedroom home her doctors have said she (at minimum) needs.

She cannot go to the mall, to the hospital, to a library, or to an apartment where people smoke, use fragrances, pesticides, or have dryer vents spewing toxic laundry products her way.

The only kind, humane, and sane solution is that she should be allowed to remain where she is, until the province has built MCS/ES accessible housing that is safe for her to move to…

2016 W.K. 1


UPDATE May 3rd:

According to this CBC interview, the housing authority has extended Wendy’s stay until the end of July, although a week or so ago they had told Wendy that she only had until April 30th, and they have not informed Wendy or her lawyer about this news (she learned via the CBC).

Hers is the 1st interview: http://www.cbc.ca/maritimenoon/2016/05/03/chemical-sensitivity-eviction-pot-pardons-your-thoughts/

∴ Wendy is NOT a widget. Widgets can go anywhere. Wendy can’t. “Widget” is used in texts and speech, especially in the context of accounting, to indicate a hypothetical “any…

Source: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

When We HAVE to Wear A Mask to Breathe and Function

When breathing the air hurts…

When we have to filter and “purify” the air just to breathe…

What options do we have?

2016 MCS-ES Awareness Month Compilation

The Courageous Canaries of MCS/ES (and mask) Awareness Month 2016

Having an invisible disability is difficult, especially when many of the adverse effects are delayed and we have to deal with them in isolation.  Some people feel  self conscious about wearing a mask, especially if we can’t find a “pretty” one that we are able to use, despite how they can reduce adverse effects. If there’s any good that comes from wearing one (in addition to protecting our health a bit) wearing a mask when we have an invisible disability helps make us visible.

The type of mask we benefit most from will depend on our “sensitivities” and circumstances. Masks will filter the air we breathe in various degrees, but unless we have a full face respirator and wear a hazmat suit, our eyes and skin will still absorb chemicals that can have an adverse effect on our health and well-being. For this reason, they should not be thought of as complete protection from pollution, and are therefore best used only when absolutely necessary.

Information and resources about masks that filter out some of the different types of daily pollutants we are subjected to, and what kinds of filter materials are needed to purify what kinds of pollutants follows.

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MCS Awareness Month and Masks

May is MCS/ES Awareness Month

Due to the wide variety of chemical pollutants in our air these days, many people with MCS/ES have to wear a mask when leaving home (and sometimes even at  home) to prevent or reduce debilitating and disabling symptoms.

may is mcs es awareness month

Having an invisible (and inconvenient, or so we are told) disability is difficult, especially when many of the adverse effects are delayed and we have to deal with them in isolation, out of sight, out of mind, and without witness to our suffering.

If there’s any good that comes from wearing a mask or respirator in public (in addition to protecting our health a bit) wearing one when we have an invisible disability helps make us visible, and alerts other people that they too are at risk.

Breathing is not optional.

Pollution is!

Wearing a protective breathing device can minimize some of the damaging effects exposures to pollutants cause, but people often feel self conscious about wearing a mask, especially if we can’t find a “pretty” one that we are able to use, Continue reading

MCS/ES and Mental Health

Living with MCS/ES creates challenges that seem unimaginable to most people. Despite some progress (more awareness), due in large part to so many more people being affected, the barriers and obstacles to living in the world as it currently is, can be never-ending when there is industry generated denial that everyday chemicals (or wireless) exposures are hurting and disabling people.

dinner time“Remember, don’t talk or breathe when you take your masks off to eat”

It is exhausting to have to constantly ask for accommodations just to be able to exist in a world where safe solutions are often hard to find, or when they do exist, they are not affordable. It can be like living in a world that wishes we’d just go away and leave them all alone, yet… there is no safe place to go away to…

Is it any wonder then, that people develop mental health problems?

When health problems (mental or otherwise) related to circumstances and experiences arise, one is (usually) only truly helped by people who have an understanding of the issues related to the circumstances that are connected to the problems. When that understanding doesn’t exist, appearances can create erroneous assumptions that perpetuate the kinds of harms that caused the problems in the first place.

For people with MCS/ES, exposures can  trigger temporary or long term brain and behavior issues that look like mental health problems to people who don’t know how toxic chemicals, molds, food sensitivities, or wireless exposures can affect our brains and bodies. And sometimes we are capable of doing some things, yet completely incapable of doing others, as exposures can affect different parts of our bodies and brains, and for varying amounts of time.

What people also don’t understand, is that when we are able to live free of those exposures, we can be free of the brain or behavior problems the exposures cause.

Finding ways to access goods and services without being subjected to disabling levels of exposures can take 10 to 100 times more effort than people normally have to extend for the same goods and services. Sometimes, despite our best efforts, we cannot safely access the goods and services everyone else takes for granted. These challenges can mean we may need to turn to others for help with survival and coping , yet not only is it difficult to receive practical support,

new research  also proves that access to knowledgeable mental health care providers is rare for people with MCS/ES!

 

“When asked to evaluate their provider’s knowledge of MCS on a scale of “not knowledgeable”, “somewhat knowledgeable”, or “highly knowledgeable”,

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Advertising Harmful and Addictive Products

I’ve been observing advertising for fragranced products over the years and have found some of the ads to be quite telling.

For instance, every time I’ve seen an ad for this product, it looks like the people using it are inhaling drugs.

cheap and legal 1

And this product too. All the ads show adults and/or children who look like they are getting stoned:

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