Tag Archives: health care access for people with MCS/ES

MCS/ES and Mental Health

Living with MCS/ES creates challenges that seem unimaginable to most people. Despite some progress (more awareness), due in large part to so many more people being affected, the barriers and obstacles to living in the world as it currently is, can be never-ending when there is industry generated denial that everyday chemicals (or wireless) exposures are hurting and disabling people.

dinner time“Remember, don’t talk or breathe when you take your masks off to eat”

It is exhausting to have to constantly ask for accommodations just to be able to exist in a world where safe solutions are often hard to find, or when they do exist, they are not affordable. It can be like living in a world that wishes we’d just go away and leave them all alone, yet… there is no safe place to go away to…

Is it any wonder then, that people develop mental health problems?

When health problems (mental or otherwise) related to circumstances and experiences arise, one is (usually) only truly helped by people who have an understanding of the issues related to the circumstances that are connected to the problems. When that understanding doesn’t exist, appearances can create erroneous assumptions that perpetuate the kinds of harms that caused the problems in the first place.

For people with MCS/ES, exposures can  trigger temporary or long term brain and behavior issues that look like mental health problems to people who don’t know how toxic chemicals, molds, food sensitivities, or wireless exposures can affect our brains and bodies. And sometimes we are capable of doing some things, yet completely incapable of doing others, as exposures can affect different parts of our bodies and brains, and for varying amounts of time.

What people also don’t understand, is that when we are able to live free of those exposures, we can be free of the brain or behavior problems the exposures cause.

Finding ways to access goods and services without being subjected to disabling levels of exposures can take 10 to 100 times more effort than people normally have to extend for the same goods and services. Sometimes, despite our best efforts, we cannot safely access the goods and services everyone else takes for granted. These challenges can mean we may need to turn to others for help with survival and coping , yet not only is it difficult to receive practical support,

new research  also proves that access to knowledgeable mental health care providers is rare for people with MCS/ES!

 

“When asked to evaluate their provider’s knowledge of MCS on a scale of “not knowledgeable”, “somewhat knowledgeable”, or “highly knowledgeable”,

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Advertising Harmful and Addictive Products

I’ve been observing advertising for fragranced products over the years and have found some of the ads to be quite telling.

For instance, every time I’ve seen an ad for this product, it looks like the people using it are inhaling drugs.

cheap and legal 1

And this product too. All the ads show adults and/or children who look like they are getting stoned:

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My LOVE: Resist Toxic Chemicals

My LOVE!

Be fragrance-free!

valentine splatter RESIST 1

What’s love got to do with it?

Everything!

Who among us wants to harm another? Modern fragrances cause harm. Stop them!

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V’s Canary Cries

Guest Post by V from the USA

This was originally posted to an online support group. V granted her permission to share it here. She has been able to put this part of her life story into words that so many of us find hard to express, and I thank her deeply for sharing her words with you too.

 

Canary V

It’s about 1:30 a.m. and this is about the time where I start to feel despair about everything in my life. I just can’t seem to adapt to the isolation and lack of a routine or purpose. Also, I can’t seem to find any pain meds for my chronic pain. I have been in physical pain for so long.

I know this post may seem disjointed which is apropos considering how I feel.

I AM so tired of spinning my wheels…Along with MCS I have so many other medical issues…non terminal that I know of but still…I have asthma and allergies.. I can’t be around dogs or cats, the weather determines my breathing status for the day and my physical mobility.

I can only eat about 10 things and it’s exhausting to try to rotate these foods and I spend excessive time trying to plan. Even planning a rotation I still get itching throat and sometimes a swollen throat with some of the ten things I think I can eat…it’s horrible to start eating and not know how I will feel ..

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“Artificial scents have no place in our hospitals”

Canada’s top medical journal, the Canadian Medical Association Journal (CMAJ), says
Artificial scents have no place in our hospitals

Hospital NO Fragrance

“These patients may be involuntarily exposed to artificial scents from staff, other patients and visitors, resulting in worsening of their clinical condition. As patients,
family members and emergency physicians will attest, the attacks can be quite sudden and serious. There is little justification for continuing to tolerate artificial scents in our
hospitals.” …

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Are Healthy Hospitals Possible?

That may seem like a dumb question to people who haven’t been in a hospital, but to the rest of us, including those of us who can’t even go into a hospital in life or death situations, it’s a serious one.

hospitals make us sick

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Check out this TEDMED video where Robin Guenther* discusses connections between health and environmental design, and what she and others are doing to make things  different:

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MCS is International

People all over the industrialized world have been developing Multiple Chemical Sensitivities and Environmental Sensitivities, or Environmental Illnesses. We are exposed to so many petrochemical pollutants, in our air, water, foods, clothes, furnishings, homes, and elsewhere in daily life, substances which are now known to cause many kinds of adverse health effects, and some of us just have the epigenetic disposition to feel the effects faster and more extremely than others who may develop cancer or some other condition many years later.

Amelia Hill (aka the Amazing Amelia Hill) lives in Australia and developed very severe, or extreme MCS after not being properly diagnosed for too many years. A lack of proper diagnosis and precautionary measures usually results in a debilitating worsening of the condition, which is best addressed with avoidance of the triggering substances, and building up health in very targeted ways. This is much more difficult to do the longer one isn’t able to take the steps to avoid exposures and rebuild life with safe alternatives.

Amelia’s life is probably unlike any you have ever heard of (even mine) although there are many similarities between the experiences those of us who have severe MCS/ES share. Amelia is known as “amazing” because of the ways she handles her life.

You will see why here.

Amelia 01

Amelia’s story has been featured as the cover story in what may be South Australia’s most popular newspaper weekend magazine: Continue reading