Fragrances Can Cause or Trigger Work-related Asthma
The Work-Related Asthma Prevention Program (WRAPP) of the California Department of Public Health released new fact sheets on fragrances and work-related asthma.
While these resources are primarily directed at women of childbearing age and children, they are really applicable to all of us. If a mother stops using perfume, but the father still piles on the scented deodorant, aftershave, and cologne, then his sperm, the mother, and children (born or unborn) are still being exposed to harmful chemicals.
If other family members, friends, and places like daycares are using scented laundry, personal care, and cleaning products, they too are putting moms-to-be and kids at risk.
The adverse effects from these chemicals can be life-long, even longer. Our exposures can affect our grandchildren. Eliminating them from our lives now will ensure better health all around, including downstream, where fish and wildlife are also being affected.
The short video below, produced by Women in Europe for a Common Future (WECF), provides simple, important information on how you can protect yourself and your child from Endocrine Disrupting Chemicals (EDCs). They are found in so many places now.
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WECF have also developed a new website, NESTING, which is another good resource for all of us. They have assembled a lot of good advice there.
Here’s an example from their Cleaning & personal care page:
When air is polluted both indoors and out, when people use fragrances and other products with toxic chemicals, when we are made ill and disabled by the pollutants, then we can’t wait for better regulations to take effect, we need to do something to protect our health now.
Sometimes we can buy masks that work for us, especially if we tolerate synthetic materials, but sometimes making our own is the only way. When we make our own, we can use safe-for-us fabrics and even coordinate them to our outfits (if we’re lucky enough to have safe-to-wear outfits).
Some people use scarves as masks. You can sew a pouch on the inside to hold filtering Continue reading →
Before I got sick, I was a dog trainer. My life was centered around my dogs,maybe too much, but I was happy. I taught basic classes, worked with serious behavior problems, and competed with my own dogs. It was my culture, and my life.
As MCS started to creep in, it make more difficult and even dangerous, to continue. To have poor reflexes or to miss something because I was brain fogged, could be the difference between success and failure, and sometimes failure meant a bite.
So I had to give it up. But I didn’t give up my personal dogs. While the number of dogs has diminished, I still have 3 beautiful and wonderful dogs left that keep me happy, keep me laughing and keep me sane. They make me get up on the bad days, cuddle with me when I’m sick, and keep my spirits up when I’m sad. And on a really good day, I train.
Most of us wear underwear all the time. We don’t think much about it.
I remember when I used to be able to find decent 100% cottom undies with enclosed elastic waistbands at the dollar stores! I could throw them in the wash once, and they were good to go. Those were the days!
More recently, I’ve been disabled from a serious fibro flare caused by trace (?) levels of chemical residues from wearing organic undies that cost me $20 a pair. Even after soaking and washing them at least a dozen times, and then boiling them several times after.
Disabled?
Yes, disabled!
My alternate title for this post was Disabled by Underwear… Here’s what happened:
Q ~ If you could tell the world ONE thing about your life with MCS/ES (or any other invisible disability that has MCS/ES as a symptom), what would it be?
A ~ What I’d really like to tell the world about my life is a full explanation of MCS, such that everyone would understand it enough to prevent, treat and accommodate me and everyone with this illness. That seems like more than I could do even if I had a whole book rather than a blog post. So I will focus my answer on something a bit more manageable.
I would tell the world that the invisible nature of this illness affects me on many levels. Some of the substances I react to are invisible, though they are obviously detected by my body. Some of my symptoms are invisible to others, but are still felt by me and still limit my abilities. Most importantly, the primary survival mechanism of chemical sensitivity is avoidance, which means that I have to avoid public places. Thus, the sicker I am, the more invisible I am to my community. That invisible nature of this illness is the most devastating part for me.
The following is a list of products many of us use or have contact with every day. Each and every one of these usually contains unregulated synthetic chemical ingredients, many of which pose known health hazards.
How many of these things did you touch or breathe in today?
What is protecting you?
People all over the industrialized world have been developing Multiple Chemical Sensitivities and Environmental Sensitivities, or Environmental Illnesses. We are exposed to so many petrochemical pollutants, in our air, water, foods, clothes, furnishings, homes, and elsewhere in daily life, substances which are now known to cause many kinds of adverse health effects, and some of us just have the epigenetic disposition to feel the effects faster and more extremely than others who may develop cancer or some other condition many years later.
Amelia Hill (aka the Amazing Amelia Hill) lives in Australia and developed very severe, or extreme MCS after not being properly diagnosed for too many years. A lack of proper diagnosis and precautionary measures usually results in a debilitating worsening of the condition, which is best addressed with avoidance of the triggering substances, and building up health in very targeted ways. This is much more difficult to do the longer one isn’t able to take the steps to avoid exposures and rebuild life with safe alternatives.
Amelia’s life is probably unlike any you have ever heard of (even mine) although there are many similarities between the experiences those of us who have severe MCS/ES share. Amelia is known as “amazing” because of the ways she handles her life.
You will see why here.
Amelia’s story has been featured as the cover story in what may be South Australia’s most popular newspaper weekend magazine: Continue reading →
I have Multiple Chemical Sensitivity (MCS) – a “multi-system illnesses as a result of contact with, or proximity to, a variety of airborne agents and other substances. (Environmental Protection Agency).” In other words, I react to fragrances, building products and more. It is not a histamine reaction, but rather, a systemic reaction to the chemicals in fragrance and other products.
As someone with MCS, I’m also known as a “canary” with deference to the Canaries in the Coal Mine. As a canary, I often encounter looks of disbelief when I mention I can smell someone’s laundry detergent, or fragrance. I can smell it on them, their dog, their cat, their clothes, or even the package they are bringing me. I smell it in their home and in their car.
Often times, if it’s just a passing moment, I try to step back, or just tough it out, but sometimes I have to speak out. When I do, the most common response, after the surprised look, are:
“I didn’t put any perfume on this morning”
or
“I don’t smell anything”
Why the disparity in perception? There are several reasons that I have observed:
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
CHE Toxicant and Disease Database
a searchable database that summarizes links between chemical contaminants and approximately 180 human diseases or conditions.
Sandra Steingraber
, an acclaimed ecologist and author, explores the links between human rights and the environment, with a focus on chemical contamination
Toxic Clout
explores how the industry’s actions create uncertainty and delay, threatening public health. The Center for Public Integrity
TOXNET
– Databases on toxicology, hazardous chemicals, environmental health, and toxic releases.
UCSF Program on Reproductive Health and the Environment
PRHE has developed a series of brochures that describe the common types and routes of exposure to toxic substances and provide evidence-based recommendations on ways to reduce those exposures
US Chemical Policy Reform
Physicians for Social Responsibility… statements from a number of organizations concerned about the new bill
Washington Toxics Coalition
We promote alternatives, advocate policies, empower communities and educate people to create a healthy environment.
Food
Buy Non-GMO
Buying non-GMO not only impacts your own and your family’s health concerns, it also influences the buying decisions of food manufacturers, distributors, and retailers.
Cultivating Food Co-ops
– resources and tools to meet the needs of those involved in sustainable food and farming co-operatives
Dr Vandana Shiva and Navdanya
are actively involved in the rejuvenation of indigenous knowledge and culture. It has created awareness on the hazards of genetic engineering, defended people’s knowledge from biopiracy and food rights in the face of globalisation and climate chan
Dr. Anne C. Steinemann
Resources: Fragrance-Free Policies, CDC Indoor Environmental Quality Policy, Leaders for Healthier Air, Air Freshener Fact Sheet, Green Clean Fact Sheet , Toxic Chemicals in Air Fresheners, Toxic Chemicals in Fragranced Laundry Products
Center for a New American Dream
We seek to cultivate a new American dream—one that emphasizes community, ecological sustainability, and a celebration of non-material values.
Sandrup Jongkhar Inititiative, Bhutan
establishing food security and self-sufficiency, protecting and enhancing the natural environment, strengthening communities, stemming the rural-urban migration tide, and fostering a cooperative, productive, entrepreneurial and self-reliant spirit
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Chemical Sensitivity Foundation
The primary goal of the Chemical Sensitivity Foundation, a 501(c)3 nonprofit corporation, is to raise public awareness about multiple chemical sensitivity.
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
Environmental Health Center-Dallas
The mission of the Environmental Health Center – Dallas is to provide superior medical care and education with a special emphasis on the effects of environmental factors on health and disease.
Quinte Healthcare Corporation
Accessibility – Environmental Sensitivities (previously known as Multiple Chemical Sensitivities)
Scent Reduction at Southlake Hospital
FAQ – an introduction (note, reduction is not the same as elimination, and they don’t mention scented laundry products, which can be worse than perfumes)
Miscellaneous
Amelia Hill
from Australia, her MCS story and resources
Marie LeBlanc
Canadian disability artist Marie LeBlanc advocates for those living with environmental sensitivities/multiple chemical sensitivity through her art.
Paradigm Change
While we are interested in all kinds of toxins (including heavy metals, pesticides, herbicides, fire retardants and other chemicals), a particular focus is on the biotoxins made by molds, cyanobacteria and other microorganisms.
Safe Canary Nest
Excellent compilation of resources for canaries
ThinkBeforeYouStink
An educational resource for reducing your chemical and fragrance footprint, improving your health, and making your home or business safe and accessible for all.
Orion Magazine
to inform, inspire, and engage individuals and grassroots organizations in becoming a significant cultural force for healing nature and community.
The Story of Stuff Project
Short, easily shareable online movies that explore some of the key features of our relationship with Stuff
News
Environmental Health News
a foundation-funded news organization that advances the public’s understanding of environmental health issues by reporting and publishing news stories and providing daily access to news from other media around the world.
O Ecotextiles
Excellent info on chemicals in textiles and furnishings
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
Bio Initiative
—A rationale for a biologically-based public exposure standard for electromagnetic fields
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
The BabySafe Wireless Project
a joint initiative of two environmental health non-profit organizations providing info like What You Should Know About Wireless Radiation and Your Baby
The Switch2Safe project
exists to inform the public of the dangers of e-pollution and to advise on ways to lower it in the home, at work and other public places