Kim was an award winning singer/songwriter/keyboardist originally from Toronto, Canada. She passed away October 23, 2006 after a long struggle with MCS, which developed after a gas leak and pesticide poisoning, among other things that she was exposed to during a short period of time.
She may have left us physically, but her music is still with us.
The following song is from her album titled “songs from a porcelain trailer”:
For some of us, this (electronic social media) is all we have to ease our isolation, not because people won’t put down their wireless devices (although this is a factor for reasons not brought up in the video), but because people won’t stop buying and using products made with fragrance and other toxic chemicals.
A lot of people and sites are sharing this video (it has been viewed over 17 million times in the week since it was posted, and with good reason). Too bad there is no mention of the adverse health effects wireless radiation can cause.
Many of us (too many now) have to wear a mask to filter some of the pollutants out of the air we have to breathe. I guess I am lucky that I have not cared about what people think when I wear mine to protect my health.
Seriously “Sensitive” to Pollution
For others, it’s not an easy decision, for a variety of reasons, and sadly, most of them have to do with a lack of understanding and acceptance in our communities.
In January, three bloggers that I am aware of have written about their mask wearing experience.
I found a blog post with some great descriptions of brain fog and how it can affect those of us who have it. Click on the link title to read Sarah’s stories:
I can relate to so many of the descriptions, having had very similar experiences for years…
And I am so very glad that I can now make my daily (fair trade, organic) coffee and do other slightly more complex things without needing to exhaust myself using all my (still limited) energy and effort to remain mindful focusing on whatever task is on hand. (The ability to hold more than one thought in my mind and do two things at once again has created new challenges, but that’s another story)
Fun times, not… even though they can make some funny stories when we feel better!
Before watching, it might be helpful to get really grounded and plan how you will deal with the emotions that come up.
These interviews and the roundtable discussion were filmed in Sante Fe, New Mexico in 1995. Parts of this piece are in the full documentary, Homesick: Living With Multiple Chemical Sensitivities.
Ontario Centre of Excellence in Environmental Health
Business Case Proposal Project
I’ve received the following email and attachments (copied below) which we are being asked to share:
Dear Friends of the ES/MCS Community:
We have some very important and exciting news to share with you regarding the creation of a number of key health and social supports within the health care system for people who suffer from environmental sensitivities and multiple chemical sensitivities (ES/MCS).
We are attaching the following:
1. Letter which is self-explanatory with the latest news
2. Questions and Answers Background Briefing document which describes Steering Committee of the Ontario Centre of Excellence in Environmental Health Business Case Proposal project.
What follows is copied from the PDFs for those who do not have easy access to downloading
(The PDF is also available for those who prefer to download files)
I am really looking forward to seeing this important film. So many of us are in need of safe, non-toxic housing in areas with clean, non-toxic outdoor air. When we are unable to function “as designed” in “normal” or moldy housing or when neighbors do things like use pesticides, conventional laundry products, smoke and burn things, or when there are wireless devices nearby, because of the disabling effects these harmful and toxic pollutants have on us, then safe housing can make such a great difference, allowing us to be more fully human again…
From Dual Power Productions: “Homesick was originally filmed in 1995. Director Susan Abod was so sick that she couldn’t finish the film. In 2011, we came on board to help. We’re excited to bring Homesick to you on September 15, a film that is even more relevant now than when it started in ’95.”
“Homesick”
“Imagine your house is making you dangerously sick. Common products like paint, carpeting, new building materials and insecticides are now your worst enemies. Your bones ache, you’re feverish, you suffer from extreme headaches, disabling fatigue, mental confusion, asthma and nausea. The longer you stay in your house, the sicker you get but you can’t imagine how or where you’re going to find a safe home. You are one of the millions suffering from the silent epidemic of Multiple Chemical Sensitivities (MCS).
In Homesick, Susan Abod hits the road to learn whether other people with MCS are finding safe housing. On her journey to the Southwestern United States, Susan meets people from all walks of life. Their living quarters range from a house on stilts to tents and a teepee.
Join Susan as she explores a little known world and discovers how people are coping with this growing epidemic.”
I have finally added a Page to the top of the blog that deals with MCS/ES under the following headings:
MCS – Multiple Chemical Sensitivities, etc
Environmental Sensitivities
Categorical guidelines for levels of disability
Getting diagnosed
ICD Codes
Treatment Options
Mind and Brain
Support
Human Rights and Accommodations
Would you like stores to stop selling everyday things that are full of harmful toxic chemicals?
What if you could feel better not only because you could be assured that the things you brought home were safe and healthy, but also because they were no longer full of the harmful chemicals that have been making you feel like crap?
In the absence of (and obstruction of) health protective regulations, we need to find other ways to get the changes happening that will allow ourselves and our grandchildren to live healthier lives.
The Government here has been re-organizing and changing all of their web pages lately and some types of information seem to be disappearing.
The policy on accommodating people with MCS/ES is no longer available on the website. This is what used to be there (2007-2013):
Policy on Environmental Sensitivities
This policy is issued to encourage employers and service providers to proactively address issues of accommodation for persons with environmental sensitivities.
Policy on Environmental Sensitivities
Individuals with environmental sensitivities experience a variety of adverse reactions to environmental agents at concentrations well below those that might affect the “average person”. This medical condition is a disability and those living with environmental sensitivities are entitled to the protection of the Canadian Human Rights Act, which prohibits discrimination on the basis of disability. The Canadian Human Rights Commission will receive any inquiry and process any complaint from any person who believes that he or she has been discriminated against because of an environmental sensitivity. Like others with a disability, those with environmental sensitivities are required by law to be accommodated.
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
CHE Toxicant and Disease Database
a searchable database that summarizes links between chemical contaminants and approximately 180 human diseases or conditions.
Sandra Steingraber
, an acclaimed ecologist and author, explores the links between human rights and the environment, with a focus on chemical contamination
Toxic Clout
explores how the industry’s actions create uncertainty and delay, threatening public health. The Center for Public Integrity
TOXNET
– Databases on toxicology, hazardous chemicals, environmental health, and toxic releases.
UCSF Program on Reproductive Health and the Environment
PRHE has developed a series of brochures that describe the common types and routes of exposure to toxic substances and provide evidence-based recommendations on ways to reduce those exposures
US Chemical Policy Reform
Physicians for Social Responsibility… statements from a number of organizations concerned about the new bill
Washington Toxics Coalition
We promote alternatives, advocate policies, empower communities and educate people to create a healthy environment.
Food
Buy Non-GMO
Buying non-GMO not only impacts your own and your family’s health concerns, it also influences the buying decisions of food manufacturers, distributors, and retailers.
Cultivating Food Co-ops
– resources and tools to meet the needs of those involved in sustainable food and farming co-operatives
Dr Vandana Shiva and Navdanya
are actively involved in the rejuvenation of indigenous knowledge and culture. It has created awareness on the hazards of genetic engineering, defended people’s knowledge from biopiracy and food rights in the face of globalisation and climate chan
Dr. Anne C. Steinemann
Resources: Fragrance-Free Policies, CDC Indoor Environmental Quality Policy, Leaders for Healthier Air, Air Freshener Fact Sheet, Green Clean Fact Sheet , Toxic Chemicals in Air Fresheners, Toxic Chemicals in Fragranced Laundry Products
Center for a New American Dream
We seek to cultivate a new American dream—one that emphasizes community, ecological sustainability, and a celebration of non-material values.
Sandrup Jongkhar Inititiative, Bhutan
establishing food security and self-sufficiency, protecting and enhancing the natural environment, strengthening communities, stemming the rural-urban migration tide, and fostering a cooperative, productive, entrepreneurial and self-reliant spirit
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
How to File an ADA Complaint with the U.S. Department of Justice
You can file an Americans with Disabilities Act complaint alleging disability discrimination against a State or local government or a public accommodation (private business including, for example, a restaurant, doctor’s office, retail store, hotel, etc.).
Chemical Sensitivity Foundation
The primary goal of the Chemical Sensitivity Foundation, a 501(c)3 nonprofit corporation, is to raise public awareness about multiple chemical sensitivity.
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
Environmental Health Center-Dallas
The mission of the Environmental Health Center – Dallas is to provide superior medical care and education with a special emphasis on the effects of environmental factors on health and disease.
Quinte Healthcare Corporation
Accessibility – Environmental Sensitivities (previously known as Multiple Chemical Sensitivities)
Scent Reduction at Southlake Hospital
FAQ – an introduction (note, reduction is not the same as elimination, and they don’t mention scented laundry products, which can be worse than perfumes)
Miscellaneous
Amelia Hill
from Australia, her MCS story and resources
Marie LeBlanc
Canadian disability artist Marie LeBlanc advocates for those living with environmental sensitivities/multiple chemical sensitivity through her art.
Paradigm Change
While we are interested in all kinds of toxins (including heavy metals, pesticides, herbicides, fire retardants and other chemicals), a particular focus is on the biotoxins made by molds, cyanobacteria and other microorganisms.
Safe Canary Nest
Excellent compilation of resources for canaries
ThinkBeforeYouStink
An educational resource for reducing your chemical and fragrance footprint, improving your health, and making your home or business safe and accessible for all.
Orion Magazine
to inform, inspire, and engage individuals and grassroots organizations in becoming a significant cultural force for healing nature and community.
The Story of Stuff Project
Short, easily shareable online movies that explore some of the key features of our relationship with Stuff
News
Environmental Health News
a foundation-funded news organization that advances the public’s understanding of environmental health issues by reporting and publishing news stories and providing daily access to news from other media around the world.
O Ecotextiles
Excellent info on chemicals in textiles and furnishings
Report an Adverse Effect or Unsafe Product (U.S.)
Product Safety Commission – Through SaferProducts.gov, consumers, child service providers, health care professionals, government officials and public safety entities can submit reports of harm
Accommodation and Compliance: Electrical Sensitivity
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.
Bio Initiative
—A rationale for a biologically-based public exposure standard for electromagnetic fields
EI Wellspring
Practical Tips for Coping with Chemical and Electrical Hypersensitivity
The BabySafe Wireless Project
a joint initiative of two environmental health non-profit organizations providing info like What You Should Know About Wireless Radiation and Your Baby
The Switch2Safe project
exists to inform the public of the dangers of e-pollution and to advise on ways to lower it in the home, at work and other public places