Tag Archives: MCS/ES

OBGYs Advise Pregnant Women to Live As If They Have MCS/ES!

The Royal College of Obstetricians and Gynaecologists (RCOG) released a new paper regarding everyday chemical exposures during pregnancy, and confirmed that there are sufficient indications that all is not well, that some of these chemicals we are exposed to on a daily basis are linked to causing some serious health problems, so it is better to be safe than sorry and avoid as many exposures as possible during pregnancy.

It’s high time time doctors stop being afraid of the chemical and pharmaceutical companies to speak up and out about this!

I applaud them for finally having the courage!

Chemical Exposures During Pregnancy
(Scientific Impact Paper 37)

“the approach recommended is for such women to put ‘safety first’. That is, to assume that risk is present even when it may be minimal or eventually proven to be unfounded. This is often referred to as the ‘precautionary approach’.

The Advice

to reduce overall chemical exposure:

● use fresh food rather than processed foods whenever possible

● reduce use of foods/beverages in cans/plastic containers, including their use for food storage

● minimise the use of personal care products such as moisturisers, cosmetics, shower gels and fragrances

● minimise the purchase of newly produced household furniture, fabrics, non–stick frying pans and cars whilst pregnant/nursing

● avoid the use of garden/household/pet pesticides or fungicides (such as fly sprays or strips,rose sprays, flea powders)

● avoid paint fumes

● only take over–the–counter analgesics or painkillers when necessary

● do not assume safety of products based on the absence of ‘harmful’ chemicals in their ingredients list, or the tag ‘natural’ (herbal or otherwise).

RCOG Advice

If you substitute “woman” or “pregnant woman” with “person who has MCS/ES”, and change “minimize” and “reduce” to “avoid”, and “pregnancy” to “probably permanently”, you get a pretty good idea of what doctors (who often have no idea or training about MCS/ES) should be saying to people about life with MCS/ES.

But really, it’s good advice for everyone.

Please note that children should also be protected from these same exposures, as their brains and bodies are still developing and these exposures can interfere with normal development and daily functioning.

They did omit one other very important exposure to avoid during pregnancy, and that is exposure to wireless radiation from sources such as cell towers, WiFi and devices like mobile phones, DECT phones, and even wireless baby monitors!

What follows are more excerpts from the paper and the links to it

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Accessibility, Human Rights and MCS/ES

Someday, indoor air and environmental quality information could be posted on the front door of every building and most buildings and services (products and materials too) could be safe and accessible for everyone

ACCESSIBILITY 2

In the meantime, we have Human Rights laws (in some places) that we can use in order to gain safe(r) access to neccessities like employment, housing, apartment buildings… facilities (restaurants, shops, hotels and theatres…) and services (health care etc), transit and other public places, so it is a good start, since access is something many of us with MCS/ES do not have now, although equal access is, for now, probably too much of a stretch in this chemical and wireless addicted society.

Some (but not all) of the information and resources I present here are from Ontario, Canada, but they can be used to inspire similar actions everywhere.

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Fragrance-Free Door Signs

Many of us who have MCS/ES find answering the door can be hazardous to our health because frequently those on the other side of the door are marinating in toxic fragrance chemicals.

Sometimes a simple sign like this will do.

No Fragrance

Other times it is not enough and we need to provide more information.

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Fragrances in Pesticides?

And pesticides in fragrances…

We live in a messed up world.

 Signs > DANGER (OSHA) > Chemical & Pesticide

I am thinking that adding fragrance chemicals to  ‘CIDEs  makes people think they are not the hazardous killing poisons that they really are, and making them smell better can make them more attractive and harmful to children!

Note that some of the fragrance chemicals might be MORE harmful than the pesticides themselves, as if pesticides weren’t already harmful enough, but those don’t have to be listed, because they are considered “inert ingredients“.

Benzene, for example… It’s a legal fragrance ingredient…

Franny

Can someone explain this to me? How is all this a good idea?

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Canadian Human Rights Documents Archived

The Government here has been re-organizing and changing all of their web pages lately and some types of information seem to be disappearing.

The_Canadian_Flag

The policy on accommodating people with MCS/ES is no longer available on the website. This is what used to be there (2007-2013):

Policy on Environmental Sensitivities

This policy is issued to encourage employers and service providers to proactively address issues of accommodation for persons with environmental sensitivities.

Policy on Environmental Sensitivities

Individuals with environmental sensitivities experience a variety of adverse reactions to environmental agents at concentrations well below those that might affect the “average person”. This medical condition is a disability and those living with environmental sensitivities  are entitled to the protection of the Canadian Human Rights Act, which prohibits discrimination on the basis of disability. The Canadian Human Rights Commission will receive any inquiry and process any complaint from any person who believes that he or she has been discriminated against because of an environmental sensitivity. Like others with a disability, those with environmental sensitivities are required by law to be accommodated.

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Sand, Tar, Oil, Gas, Frack, Health, Life, Fail ?

clean-up-your-mess-love-mother

This is not only an environmental crisis, although that is bad enough since we all depend on clean air and water for basic survival, this is also a health and human crisis.

The quest for and extraction of fossil fuels has reached a level that is threatening us all.

Reality Check: Canada’s Oil Sands

“Each fact included in Oil Sands Reality check is carefully researched, referenced and reviewed by a scientific advisory committee. This website was created as a resource for citizens, media, investors and decision makers who wish to participate in a more informed debate about the impacts of oil sands development.”

http://oilsandsrealitycheck.org/ and  http://tarsandssolutions.org/

  ♦

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Accessible Customer Service – What to do When A Store is Too Polluted to Enter

Having invisible disabilities can present challenges most people don’t think of.

Modified from original image by Eurofin

Modified from original image by Eurofin

Indoor air can be too polluted for some of us to safely breathe. Those of us with MCS/ES can develop serious and life-threatening symptoms from breathing in toxic chemicals commonly found in indoor air. Even a mask may not be enough to protect us.

Or we may be having a bad Fibromyalgia flare and just be in too much pain to shop.

So what can we do when we need something?

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

amputated-lives-chemical-sensitivity

How My Descent to Fragrance Hell Began

Manufactured fragrance ingredients have had a huge and mostly negative impact on my life, beginning with the “Chanel No.5 Eau de Cologne” my mother used to douse herself with in the 70’s. I remember running around opening windows and doors to air out the house after my parents went out on the town.

“Chanel No.5” happens to be the first fragrance that was created with synthetic substances. Nice to have a video about that now:

(August 13, 2014: I just watched the Chanel No 5 video that I had posted here, and they have completely changed it to remove all mentions of the synthetic (and toxic) substances that they were first to use!!! I have removed the video from the post, as it is now just an insipid commercial for the perfume.)

I remember as children (in the 60’s) my sister and I were often given tiny bottles of “4711” as gifts, most likely free samples that family members received when purchasing larger bottles of it. I don’t remember it bothering me at the time.

It was during the 70’s that more and more products (shampoos, moisturizers, cleaning products, etc) started to bother me. At the time, I thought it was normal that some products just didn’t agree with me. I had no idea I was actually being poisoned by them. I even ended up in the hospital for a week of tests in my late teens, after developing stroke-like migraine symptoms while applying one of my sister’s scented facial cremes after I had spent the night back home instead of where I was living then.

No connections to products were made at the time… It was also the week I learned to read food labels, as one evening the ice cream I was given for dessert started foaming up instead of melting into a puddle while I was eating my dinner…

As a young adult, I had to search high and low for a perfume or eau de cologne that I could wear on special occasions, because we were taught that it was an important part of the ritual. I don’t think I made it through two tiny bottles of “L’Air du Temp” before having to abandon that ritual. Just reading their evocative description now leads me to a never never land, one I don’t remember if I was influenced by back in those days. (According to the Nina Ricci website’s legal notice, I am not allowed to link to their site without written authorization, so you’ll have to google it for yourself!!! But beware, the site has some annoying hurdles to go through before you get to the perfume’s page).

Now there are hundreds, if not thousands of synthetic, petro-chemical ingredients used in fragrances. And fragrance chemicals are everywhere. It is pretty much impossible to avoid them unless you are alone in the middle of no-where. They are in the air, in our water, even in our supermarket foods.

I am housebound now because fragrance chemicals are everywhere, even in my yard when others are using their dryer vents and the wind blows this way. I have a very difficult time finding even basic essentials (like baking soda, food and clothing) that are un-contaminated by fragrance ingredients. I wrote about how fragrance residues basically left me homeless in the previous post.

eau de petroleum

The International Fragrance Association (IFRA) reports that 3090 materials have been reported (voluntarily via membership surveys, there was no forced compliance) as being used in fragrance compounds in 2008 and updated in 2011.

Here’s the list. Some are known to be quite hazardous. Most have never been tested for safety.

Check the sidebar here > > > for some links about fragrances and their health impacts. You can also read what I’ve previously posted about them.

Fragrance chemicals are clearly just as bad, if not worse for our health than tobacco smoke. It’s time to ban toxic chemicals from fragrances. At the very least, label them on products, so people know what they are applying to their bodies and forcing everyone else to breathe. Being forced to breathe in toxic chemicals is toxic trespass.

I love clean air

Here are some fragrance free policies from around the world.

CCOHS Scent Free Zone

Voices from the Shadows, a Film About ME/CFS From the UK

People with visible and invisible disabilities are often not only discriminated against, but far too often abused. Some of the abuse is from ignorance. Other times it is systemic and sometimes it is political.

ME/CFS, FM, and MCS/ES are often overlapping conditions. Canadian diagnosis stats with more details are here or a simple chart is at the bottom of the page here.

There are 3 dedicated clinics in Canada for diagnosing these conditions (and more, such as EHS). One is in Toronto (with a perpetual long wait list) and a new one just opened in BC with Dr Bested as the clinic director and was immediately overwhelmed with people seeking appointments. There is also one in  N.S.

Some provinces have a diagnostic code for ME/CFS now, and for FM, but not for MCS/ES. The CDC has also recognized it. In the US, people can look for doctors on the AAEM website. (there may be others, I am not as familiar with the US resources).

People in the UK and elsewhere are still trying to get proper recognition and protocols in place so that patients there are also not subjected to more abuse on top of these already devastating conditions.

Watch the trailer of the film here, then  you can link to the full length film from the Voices from the Shadows website. Continue reading