Tag Archives: petrochemicals

V’s Canary Cries

Posted on October 7, 2015 | 11 comments

Guest Post by V from the USA

This was originally posted to an online support group. V granted her permission to share it here. She has been able to put this part of her life story into words that so many of us find hard to express, and I thank her deeply for sharing her words with you too.

 

Canary V

It’s about 1:30 a.m. and this is about the time where I start to feel despair about everything in my life. I just can’t seem to adapt to the isolation and lack of a routine or purpose. Also, I can’t seem to find any pain meds for my chronic pain. I have been in physical pain for so long.

I know this post may seem disjointed which is apropos considering how I feel.

I AM so tired of spinning my wheels…Along with MCS I have so many other medical issues…non terminal that I know of but still…I have asthma and allergies.. I can’t be around dogs or cats, the weather determines my breathing status for the day and my physical mobility.

I can only eat about 10 things and it’s exhausting to try to rotate these foods and I spend excessive time trying to plan. Even planning a rotation I still get itching throat and sometimes a swollen throat with some of the ten things I think I can eat…it’s horrible to start eating and not know how I will feel ..

Continue reading →

11 Comments

Posted in Accessibility, Disability, Environmental Health, Fibromyalgia, MCS/ES

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“Artificial scents have no place in our hospitals”

Posted on October 5, 2015 | 24 comments

Canada’s top medical journal, the Canadian Medical Association Journal (CMAJ), says
“Artificial scents have no place in our hospitals“

Hospital NO Fragrance

“These patients may be involuntarily exposed to artificial scents from staff, other patients and visitors, resulting in worsening of their clinical condition. As patients,
family members and emergency physicians will attest, the attacks can be quite sudden and serious. There is little justification for continuing to tolerate artificial scents in our
hospitals.” …

Continue reading →

24 Comments

Posted in Accessibility, Air Quality, Disability, Environmental Health, Fragrance, Health, Health Care, Hospital Protocols, Policy, Precaution, Public Health

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Why We Need “Sensitive” Human Canaries

Posted on September 8, 2015 | 13 comments

“Sensitive” humans are not defective or here to inconvenience you.

maybe it is not me…

Some canary history:

“Carbon monoxide, a potentially deadly gas devoid of color, taste or smell, can form underground during a mine fire or after a mine explosion.

Today’s coal miners must rely on carbon monoxide detectors and monitors to recognize its presence underground. However, before the availability of modern detection devices, miners turned to Mother Nature for assistance.

Canaries — and sometimes mice — were used to alert miners to the presence of the poisonous gas. Following a mine fire or explosion, mine rescuers would descend into the mine carrying a canary in a small wooden or metal cage.

 

Any sign of distress from the canary was a clear signal that the conditions underground were unsafe, prompting a hasty return to the surface.

 

Continue reading →

13 Comments

Posted in Air Quality, Chemicals, Ecocide, Environmental Health, Human Rights, Pollution, Public Health, Toxic Trespass

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Who Wants to Help Me Get New Air Purifier Filters?

Posted on September 2, 2015 | 42 comments

I need several air purifiers to clean the air of pollutants from unavoidable everyday products and materials (like the mail, receipts, product labels, food packaging, replacement of any basic essentials, etc) and also the neighbourhood pollution (trains, planes, laundry products, pesticides, BBQs, fireplace smoke, etc) from my indoor air so that my brain and body can work more like they were intended to.

To cook, clean, and take care of my very basic needs, (nothing extra going on here, I am housebound) I am dependent on clean air to be able to function. My filters need to be changed annually or every other year (depending on what the air quality has been like) and mine were last changed in 2012, three years ago.

I have looked all over the place for funding to purchase new filters and there just isn’t anyone out there with a mandate to provide clean air to those who require it for medical reasons.

! ! !

IAQ help

Last summer was a disaster for me, this year was even worse. I’ve had a horrid three  months from area roadwork and pesticide use (there was massive spraying of Wild Parsnip around this part of Ontario during the summer, and the pesticide drift got to me really bad), and now other simpler exposures that hadn’t been bothering me as much as they used to, are again having more serious adverse effects on me because my indoor air is not being filtered anymore.

Continue reading →

42 Comments

Posted in Accessibility, Air Quality, Disability, Healthy Environment, Support

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Guest Post: Euthanasia and Disability Rights

Posted on August 23, 2015 | 42 comments

Monique and I both live in Ontario, Canada, where there are new discussions happening both provincially and federally regarding “assisted suicide”, “death with dignity”, the right to die, and euthanasia (I may have missed a few other terms used).

We both have MCS/ES, and are confronted with systemic discrimination and barriers to access with almost every breath we take. Breathing is not optional. And we are not alone. There are hundreds of thousands of us in Canada, and millions around the world.

Open letter in support of Euthanasia and Rights for those with diseases that defy accommodations

Guest Post by Monique

I Am Easy to Ignore

I am female
I am over 60
I am divorced and alone
I am a student
I have lower employability
I have invisible disability
I was abused
I have depression + ADD.
I do not feel strong

The biggest and most painful ordeal is people who lack the ability to reduce the perfumes they wear in public… who value their vanity above the good of others. I cannot exist without the kindness of strangers. I do not want to live without my Right to life-sustaining air. I do not want to explain why I cannot breathe your scents and subsist in the lifestyle you value and have grown attached to. I cannot live in your chemical soup.

I am a canary. I have MCS. Although canaries have saved many from disasters, their deaths are never celebrated. I feel like I will soon be sacrificed so that many will continue to breathe good quality air.

I would like to give a voice to those canaries. I’d like to call upon every canary on this planet to stand up and be counted. I want every canary not to die in vain. Continue reading →

42 Comments

Posted in Accessibility, Disability, Environmental Rights, Human Rights, Policy

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When They Poisoned the Pests, I Didn’t Care

Posted on August 4, 2015 | 12 comments

waves 1c

 

 

 

 

When they poisoned the pests,

I didn’t care, because I wasn’t a pest…

When they poisoned the frogs,

I didn’t care, because I was not a frog…

When they poisoned the birds,

I didn’t care, because I wasn’t a bird…

When they poisoned the air,

I didn’t care, because it was on the other side of the planet…

When they poisoned the ocean,

I didn’t care, because I wasn’t a fish…

When they poisoned the lands,

I didn’t care, because it wasn’t near my land…

When they poisoned the people,

I didn’t care, because it wasn’t anyone in my family…

(besides, those people with MCS/ES were acting all crazy, wanting me to change my laundry products, stop using fragrances, and get rid of my wi-fi, among other things)

Continue reading →

12 Comments

Posted in Action, Chemicals, climate change, Ecocide, Environmental Health, Writing

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Shouldn’t Cleaning Products REMOVE Pollutants Instead of ADDING Them?

Posted on July 31, 2015 | 12 comments

Here’s yet another scientific report about how dangerous chemicals and VOCs are being released from the everyday cleaning products most people use in their homes!

Environmental Defense (Canada) recently released their report THE DIRTY TRUTH, which found that products from some of the biggest cleaning brands (Mr. Clean, Clorox, Lysol, Windex, and PineSol ) pollute the air in Canadians’ homes with harmful chemicals. (Note that these products are not significantly, if at all different in the US, but the EU does have some bans on ingredient that are still allowed here).

ED’s The Dirty Truth follows hot on the heels of Women’s Voices For the Earth’s DEEP CLEAN report, and while both of these reports name names, they had a slightly different focus.

In Deep Clean, Women’s Voices For the Earth graded four major cleaning product manufacturers based on key indicators to expose their commitment to product safety: Product Ingredient Disclosure, Responsiveness to Consumer Concerns, Toxic Chemical Screening Process and Removal of WVE’s Chemicals of Concern.

Dr. Anne Steinemann’s research from earlier this year did not name product names, but she named numerous harmful volatile organic chemicals (VOCs) that the many popular products she tested do release into the air we breathe.

One has to wonder why this is allowed to be going on?

We should not be subjected to harmful industrial pollutants in our own homes!

cleaning pollution 1.

“Our new report found that products from some of the biggest cleaning brands (Mr. Clean, Clorox, Lysol, Windex, and PineSol ) pollute the air in Canadians’ homes with harmful chemicals called Volatile Organic Compounds. These chemicals have been linked to respiratory problems such as asthma and lower IQs.”

.

 Volatile Organic Compounds and Your Health

Continue reading →

12 Comments

Posted in Accessibility, Air Quality, Brain, Chemicals, Environmental Health, Health, Pollution, Products

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What We All Need Now: Personal Exposure Detection Devices!

Posted on July 12, 2015 | 38 comments

.

MyExposome has designed silicone wristbands (such as the ones worn in support of various causes) that are specially prepared to act as a sponge to absorb hundreds of different chemicals in our environment—the air, water, and even personal care products.

silicone-wristband-measures-1400-chemicals

The possibilities!

With all the toxic VOCs in everyday products,  the carcinogenic activity of the chemical cocktails we are exposed to on a daily basis, this is a great idea that can show people just how prevalent toxic chemicals have become, and how difficult it is to avoid them.

It would be really interesting to have a group of people with MCS/ES participate in some exposure measuring research, as those of us who have to practice extreme chemical avoidance for our health and well-being have some experiences that researchers will eventually find quite interesting.

Now, they would be able to see how difficult it is to avoid  these chemicals, even when making great efforts due to necessity (of course, different levels of MCS/ES dictate different levels of avoidance requirements and efforts too).

Continue reading →

38 Comments

Posted in Air Quality, Chemicals, Education, Environmental Health, Research

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The Effort and “Inconvenience” of Single-Handedly Trying to Remove Systemic Barriers to Access

Posted on June 29, 2015 | 8 comments

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When she needed accommodation, you won’t believe the rigmarole that ensued.

(unless you have MCS/ES)

equal opportunity 1

“They should not have to make significantly more effort to access or obtain service. They should also not have to accept lesser quality or more inconvenience.”

.

Someone with MCS (who wishes to remain anonymous) was asked about how her efforts to receive appropriate, safe, accommodation were going, so she could see a health care provider. She is one of a growing number of people who become disabled from exposures to toxic chemicals found in many everyday products and materials, especially in fragrances.

This is pretty much how the story goes:

She contacted a health care provider by phone and talked to a receptionist.

She asked her if they had a scent-free policy and was told they didn’t.

Continue reading →

8 Comments

Posted in Accessibility, Chemicals, Disability, Environmental Health, Fragrance, Human Rights, Indoor Air Quality, MCS/ES, Policy, Precaution

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Optional “Inconvenience”

Posted on June 28, 2015 | 7 comments

Guest post and images by Laura J Mac

What always strikes me during conversations about how to persuade service providers to accommodate our disability is how much extra work we have to do just to participate in simple survival stuff. I mean, “simply” tracking down professionals who are willing to accommodate is a chore and a half. The luxury of “having a good relationship” with a service provider falls way down on the list because it’s usually one or the other.

Laura J Mac 1

Nobody would think twice about someone who uses a mobility device asking if there are ramps and elevators but it seems that our need for fragrance-free and reduced chemical exposure is perceived as a “preference” rather than a medical necessity. That perception leads to the idea that accommodation of our disability is an “option” (and generally it’s an “option” that service providers aren’t willing to make available.) It’s not that we don’t “like” fragrance, these chemical exposures cause neurological and physiological problems that interfere with our ability to function on a daily basis.

Continue reading →

7 Comments

Posted in Accessibility, Disability, Environmental Health, Fragrance, Health Care, Human Rights, Indoor Air Quality, Mental Health, Policy, Public Health

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