Tag Archives: Fragrance

Accessibility, Human Rights and MCS/ES

Someday, indoor air and environmental quality information could be posted on the front door of every building and most buildings and services (products and materials too) could be safe and accessible for everyone

ACCESSIBILITY 2

In the meantime, we have Human Rights laws (in some places) that we can use in order to gain safe(r) access to neccessities like employment, housing, apartment buildings… facilities (restaurants, shops, hotels and theatres…) and services (health care etc), transit and other public places, so it is a good start, since access is something many of us with MCS/ES do not have now, although equal access is, for now, probably too much of a stretch in this chemical and wireless addicted society.

Some (but not all) of the information and resources I present here are from Ontario, Canada, but they can be used to inspire similar actions everywhere.

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Fragrance-Free Door Signs

Many of us who have MCS/ES find answering the door can be hazardous to our health because frequently those on the other side of the door are marinating in toxic fragrance chemicals.

Sometimes a simple sign like this will do.

No Fragrance

Other times it is not enough and we need to provide more information.

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MCS/ES Symptoms and Environmental Incitants

sensitive to pollution 3

Information about the materials most likely to cause adverse health effects, and the kinds of symptoms commonly experienced from exposures, copied from the 2007 Canadian Human Rights Commission’s  document “The Medical Perspective on Environmental Sensitivities By: Margaret E. Sears (M.Eng., Ph.D.), and a few other resources and links follow:

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Public Health Warning: Fragrance

Public Health Warning

Fragrance chemicals are linked to so many health problems now that they should be banned from indoor environments just like smoking.

Chemical Fragrance Public Health Warning

Resources

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Accessible Customer Service – What to do When A Store is Too Polluted to Enter

Having invisible disabilities can present challenges most people don’t think of.

Modified from original image by Eurofin

Modified from original image by Eurofin

Indoor air can be too polluted for some of us to safely breathe. Those of us with MCS/ES can develop serious and life-threatening symptoms from breathing in toxic chemicals commonly found in indoor air. Even a mask may not be enough to protect us.

Or we may be having a bad Fibromyalgia flare and just be in too much pain to shop.

So what can we do when we need something?

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Harvard Medical School Associate Professor Speaks about MCS: Video

Dr. L. Christine Oliver is an Associate Professor of Clinical Medicine at Harvard Medical School and Co-Director of Occupational and Environmental Medicine at Massachusetts General Hospital.

This is an excellent half hour presentation.

Dr Oliver packs so much about the issues faced by people with MCS into the first 16 minutes of this video. If you can’t watch the whole video, at least watch this much.  Alison Johnson finishes off by reading from her important book Amputated Lives.

Alison Johnson is the author/producer/director of books and documentaries on Multiple Chemical Sensitivity. Visit http://www.alisonjohnsonmcs.com to download a transcript or to purchase her books or DVDs.

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“Sensitive” to Pollution #3

"Sensitive" to Pollution 3

Is there anyone who isn’t “sensitive” to pollution?

You might be “SENSITIVE” to pollution!

Do you breathe?

sensitive to pollution 4

There’s WHAT in my Baking Soda?

Fragrance chemicals….

Yes, I said it… There are fragrance chemicals in much of the baking soda sold now… Even in the baking soda you bake with. Unless you are extremely lucky… and there’s no rhyme or reason as to when it might be fragrance free, because no-one who might know will tell as to why there are any problems with it in the first place.

For months now, I haven’t been able to get any baking soda that isn’t fragrance (or otherwise) pre-contaminated… and I use it instead of soap products, which I don’t tolerate, to clean me, my teeth, my clothes and everything else that needs cleaning… Because my body doesn’t tolerate soap, even organic olive oil soap, probably because there’s something about modern lye that doesn’t agree with me…

If I lived in a cave, it might not matter, but I’m stuck here in the suburbs, and despite being housebound, there are people who make assumptions on my rare appearances outdoors, like when I have to go to the recycling and garbage bins… And I am just well enough to notice, and to care… And it just doesn’t feel good physically, or emotionally…

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My local Bulk Barn store owner picking up 50 lbs of fragrance contaminated baking soda during a February snowstorm

The most recent Arm and Hammer bulk sample, was even worse than the previous one, although the type of contamination is different…
The owner/manager says he took the sample from a brand new bag he just cut open and used the jar I had given him when he picked up the 50 lbs of fragrance contaminated baking soda I’d purchased in December. He was even so kind as to deliver the jar full.

Arm and Hammer is saying there is no way their stuff is contaminated before it goes in the bag, Bulk Barn won’t tell me who the middle man is, and the bags are really unlikely to pick up contamination during the time between anyway – but I’ve had fragrance contamination on the INSIDE of the bag, when the outside had no fragrance residue.

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Worth Reading: Other Bloggers Write About MCS/ES and ME/CFS

Worth Reading

Fergiemoto wrote about the challenges she faces due to having MCS and fragrance chemical proliferation. I love her illustrations!  See Human Canaries and Friendship.

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Sharon, a writer and service dog partner who also has Lyme Disease and other disabilities, wrote about how MCS affects her life here: How MCS Affects Sharon

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Phoenix Rising posted this great piece by Carol Schmid who examines what it is about the nature of ME/CFS that makes it likely to generate skepticism. There are many similarities with MCS/ES. See:  The ME/CFS Stigma

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