Category Archives: Multiple Chemical Sensitivities

Ontario Reported on MCS/ES in 1985, Yet…

MCS/ES is not new. Over 30 years ago, the Province of Ontario created the “Committee on Environmental Hypersensitivity” and appointed George Thomson, a former provincial court judge, as chairman, with a mandate to study and “advise the Ministry of Health on the occurrence of environmental hypersensitivity in Ontario and on current methods of diagnosis and treatment. Further, the committee was to make recommendations to the ministry concerning future approaches to treatment and research that should be taken”

1985-ontario-report-cover-with-logo

From the the Legislative Assembly of Ontario Official Records for 17 December 1985:

Hon. Mr. Elston: Members of this House may also recall a six-member committee which was appointed in November 1984 to study a disorder which is known as environmental hypersensitivity, or 20th-century disease. The condition has been described as multiple sensitivities or allergies to a wide range of foods, chemicals and environmental substances.

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PSAC Video About MCS

 

The Public Service Alliance of Canada (PSAC) has created a video about MCS and job accommodation featuring Dr John Molot.

Dr Molot PSAC MCS video

Video: Demystifying Multiple Chemical Sensitivity

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What I Wear in Bad Air :: Zoraida

2016 Zoraida with masks

My name is Zoraida and I live in Spain. I was diagnosed with MCS two years ago, but I had been having reactions for a couple of years before that. Everything escalated suddenly in 2014, and this was when I began to need a mask for everyday life. There have been many other changes in addition to the mask. Among them, moving to a smaller, less polluted town.

My safety kit: Continue reading

What I Wear In Bad Air :: D.R.B. and M.C.

2016 D.R.B.

“I never leave home without a scarf to wrap around my face. To give me a hands free quick exit.”

~ D.R.B.

2016 M.C.

“This is me cleaning a mouldy wall in my apartment after a flood in February.  I was wearing all 3 – nasal filters, a disposable R95 (mostly to keep gas mask plastic off skin), plus the P100!  Thankfully, I didn’t have to stay and was able to move into a mold-free unit, as one became available.”

~ M.C.

To learn more about masks see

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What I Wear In Bad Air :: Marie

2016 Marie LeBlanc 1

“I have to  wear my mask to do laundry in the basement because of mustiness and other people’s fragrances.”

~ Marie LeBlanc

Marie also shared an artistically altered image of her wearing her mask while waiting to see a doctor, because people were ignoring the fragrance-free signs on the wall behind her. Continue reading

Update: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

UPDATE:
The bureaucrats expect Wendy to leave the only safe and accessible home Wendy has access to, the sherriffs could be there any day, and there is still no other safe and accessible place for Wendy to move to!

In a kind and sane society, disabled people would be treated with respect and dignity, and safe and accessible housing would not be taken from them when there is no place else to go to.

We need to treat people with invisible, inconvenient disabilities better!

Wendy has a safe-for-her-home, the ONLY place she can now be and remain functional, but the bureaucrats only see that it is a 3 bedroom home and not the 2 bedroom home her doctors have said she (at minimum) needs.

She cannot go to the mall, to the hospital, to a library, or to an apartment where people smoke, use fragrances, pesticides, or have dryer vents spewing toxic laundry products her way.

The only kind, humane, and sane solution is that she should be allowed to remain where she is, until the province has built MCS/ES accessible housing that is safe for her to move to…

2016 W.K. 1


UPDATE May 3rd:

According to this CBC interview, the housing authority has extended Wendy’s stay until the end of July, although a week or so ago they had told Wendy that she only had until April 30th, and they have not informed Wendy or her lawyer about this news (she learned via the CBC).

Hers is the 1st interview: http://www.cbc.ca/maritimenoon/2016/05/03/chemical-sensitivity-eviction-pot-pardons-your-thoughts/

∴ Wendy is NOT a widget. Widgets can go anywhere. Wendy can’t. “Widget” is used in texts and speech, especially in the context of accounting, to indicate a hypothetical “any…

Source: Wendy is NOT a Widget and She Shouldn’t be Treated Like One

Are You A Woman Over the Age Of 65 With MCS/ES?

IF SO, WOULD YOU PARTICIPATE IN A STUDY OF WOMEN’S NEEDS AS YOU GROW OLDER WITH ENVIRONMENTAL SENSITIVITIES?

The James Madison University Environmental Sensitivities Research Team is inviting women aged 65 and older who have experienced environmental sensitivities (chemical and/or electrical) to participate in an online study of how your needs are being met as you grow older with sensitivities.

If you are interested in participating, please click on the link below to see the consent form and learn more about the study. Continue reading

2015 – A Retrospective

I was hoping to be able to share some good news with you all, and here it is. We ARE making progress! It is unfortunate that it has taken this long, but I believe we are almost at the point where we will see an “overnight” shift happen.
Here’s what Dr John Molot (the author of “12,000 Canaries Can’t Be Wrong”) has to say:

johnmolot's avatarJohn Molot

2015-summaryIt’s the end of 2015, a time to celebrate the promise of the coming year but also a time to reflect on the 12 months that have just passed. It was an incredibly exciting year for me professionally. As a physician who advocated for my patients for so many years, I no longer feel that I am paddling upstream against the hardline, medically conservative current that has discredited environmental medicine for decades. The patient groups that I work with have realistic hope for improved care in the near future.

My 2015 :: Science :: Media
Medical Profession :: Insurance Companies :: The Canaries
What’s to come?

My 2015

This year, I have had several opportunities to effectively represent the people with environmentally linked conditions. I have been actively involved with the Ontario Ministry of Health and Long Term Care in the development of the promised (2014) Task Force on Environmental…

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Down is Harder After Up

Alternate title: Be Grateful or Be Miserable!

I had some really good brain and body days in the early spring, enough that they left an imprint on me of how it felt to feel (relatively, and almost) normal. instead of the usual:

feels like quicksand-3

Then shit happened… (sorry, I don’t usually use language like that, but I’ve lost access to some parts of my vocabulary lately as a result of the toxic stuff I was exposed to).

Pesticides, dental infections and extractions, toxic products and materials (including trying to replace a SS kitchen kettle -simple, yes? Actually, NO), summer road work, more and more pesticides, heat,  VOCs, lack of ventilation and air filtration, which meant no ability to cook, and more…all of which resulted in some serious brain fog, cognitive problems,  and drastically reduced physical abilities.

Back to the drawing board…

After having some good days this year, I crashed again, and I haven’t been able to recover… much… There can be a few better mini-moments here and there if the outdoor air quality is exceptional and the breezes have been blowing the “right” way, but nothing like how well I was doing for a while in the spring.

Which makes it so much harder now, because I can actually remember what it was like to be more functional. It was so long ago before, that it didn’t really come into play or into my thoughts, as for so many years, I couldn’t remember what it was like to think clearly, or to function without effort, with relative ease.

Is it really too much to ask to be able to function with relative ease? To not have every thought, every action be like climbing a mountain or navigating an obstacle course?

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Scientists to WHO: Recognize MCS and EHS

International Scientists Invite WHO to Recognize MCS and EHS

Paris, September 4th 2015.

“Following the fifth Paris Appeal congress, which took place on the 18th of May, 2015, the attending European, American and Canadian scientists unanimously decided to create a working group and to write a Common International Declaration to request an official recognition of these new diseases and of their sanitary consequences worldwide.

The declaration calls upon national and international bodies and institutions and particularly the WHO, for taking urgently their responsibility for recognizing electrohypersensitivity and multiple chemical sensitivity as real diseases, including them in the International Classification of Diseases.

This International Declaration also asks national and international institutions to adopt simple precautionary measures of prevention, to inform populations and requires the appointment of real independent expert groups to evaluate these sanitary risks in total scientific objectivity, which is not the case today.”

2015 WHO MCS EHSThe links to download the Declaration Statement and Press Release are below, as well as the link to see the presentations that took place during the meetings in May of 2015.

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