Wendell Berry’s Wisdom

Wendell Berry we are

“The idea that we live in something called ‘the environment’ is utterly preposterous. . . . The world that environs us, that is around us, is also within us. We are made of it; we Continue reading

Severe MCS/ES… What Does It Mean?

To some degree, severe MCS/ES (like pain) is subjective. In other ways it’s a moving target, as we can be fine (or almost fine) one minute, and be completely incapacitated the next hour (day, week, or month) from an exposure, or combination of exposures. One day, a perfume exposure during lunch with friends might “just” give someone a throbbing headache for the rest of the day, but the next day, because there was also a cloud of diesel smoke, a fragrance contaminated piece of mail, someone installed wi-fi in the apartment next door, and someone else’s dryer vent was pumping out chemicals when we walked by with the dog, the same 3 breaths of perfume at the pet store we were trying to buy dog food from, could send us to bed for a week, or longer.

To make matters more difficult for others to accurately assess (and assumptions and clueless opinions are rampant where invisible disabilities are concerned), the recovery period, when most incapacity takes place, occurs when no-one is around to witness the effects, as many symptoms are delayed reactions. This means that people with severe MCS/ES are usually only seen during better moments, not when we’re at our worst.

severe mcs es

Something else I often see is that people’s ability to tolerate change and adversity varies greatly. Some people fall apart when faced with the slightest challenge, while others can endure unbelievably difficult circumstances and suffering without ever complaining.

One person’s severe is another person’s “just another day”. And, as I found out, when we think things are as bad as they can possibly be, they can get 1000 times worse (especially where brain function is concerned). This can really confuse people, ourselves included…

That said, there are tools that have been designed to help medical professionals assess all kinds of health and disabilities. And accurate assessment is especially important when applying for disability benefits.

What follows are a few tools that can help us understand. This information is not meant for acquiring disability benefits. I’m providing it for educational purposes only.

How can “sensitivity” symptoms affect life?

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The Fragrance-Free Soapy Water-Bucket Challenge!

I challenge everyone who uses any products that have fragrance or parfum listed as an ingredient  to pour a bucket of fragrance free, non-toxic soapy water over your head, to draw attention to the fact that fragrance chemicals and ingredients in everyday personal care, laundry products, and cleaning products are making people sick and disabling them, and that fragrance-free, non-toxic products are healthier for everyone.

This looks like a it was bucket full of fragrance-free soapy water!

This looks like a it was bucket full of fragrance-free soapy water!

Please donate to these two organizations that are helping people who have been injured by fragrance (and other chemicals) find medically required, safe, non-toxic housing:

ECOASIS

http://www.aseq-ehaq-en.ca/ecoasis.html

re|shelter

https://reshelter.org/grant-programs/

 

Thank you for participating!

P.S. You can use WARM WATER!

Women: What’s in Your Box?

Check out the blog post by Pretty Smart:

Houston, we have a problem. Period : 3 Major Problems with the Menstrual Product Industry (and What You Can Do About It!)

“As most menstruating people will tell you, we have more than enough to deal with during our periods…”red splatter 2

Then get more details about what’s in tampons from Women’s Voices for the Earth

Pad-and-Tampon-image

Some of this isn’t news (or shouldn’t be). Back in 1992, Liz Armstrong co-wrote “Whitewash: Exposing the Health and Environmental Dangers of Women’s Sanitary Products and Disposable Diapers : What You Can Do About It”. Here’s an interview with Liz that includes other resources you may be interested in exploring from the book “Cancer: 101 Solutions to a Preventable Epidemic”.

If you prefer your info in a more entertaining format, then you can watch the musical spoof video “Detox the Box”:
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Fireworks… Pretty Toxic! And Scary Too!

Wishing a happy, safe, and peaceful Canada Day to Canadians, and a happy, safe, and peaceful Independence Day to Americans!

BUT can we please find safe ways to celebrate life instead of using dangerous substances which make noises that scare the daylights out of our children, pets and wildlife?

It’s the time of year again when some people like to blow up toxic, coloured,  gunpowder…

Please read my post from last year for details:

Fireworks… Pretty Toxic!

Let's find safer ways to celebrate

Let’s find safer ways to celebrate

Breath-taking: An architectural answer to one homeowner’s severe allergies

Safe, medically required, non-toxic, EMF/EMR safe housing CAN be built. I linked to another article and the architect’s website in the 1st comment below.
“Because Barbara Tudhope has severe allergies and acute sensitivities to dust, pollen, electromagnetic radiation (EMF) and a long list of construction materials, the couple designed their home to foster an environment that doesn’t cause her any adverse reaction.

… “Almost all construction and renovation uses building materials that off-gas volatile organic compounds [VOCs], and contractors generally pay little attention to electrical and magnetic fields in the homes they build,” says Mr. Tudhope, a business writer. “But both can have serious acute and chronic health consequences for someone like Barbara, and, in truth, for almost anyone.”

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Home Dental Extraction SUCCESS (#1)!

This is just a brief post to rejoice about the successful home extraction of a rear molar that was causing me unbearable problems.

The dentist who did this takes seriously his oath to “do no harm” and did not use it as an excuse to do nothing, like most dentists and doctors are prone to doing when they don’t want to change the way they do things to accommodate someone with disabilities.

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Do we exaggerate the dangers of conventional fabrics?

Another excellent post from O ECOTEXTILES

…”The generations born from 1970 on are the first to be raised in a truly toxified world. Probably one in three of the children you know suffers from a chronic illness – based on the finding of many studies on children’s health issues.[5] It could be cancer, or birth defects – perhaps asthma, or a problem that affects the child’s mind and behavior, such as a learning disorder, ADHD or autism or even a peanut allergy. We do know, for example: …”

O Ecotextiles (and Two Sisters Ecotextiles)'s avatarOEcotextiles

We received a comment on one of our blog posts recently in which the reader chastised us for exaggerating issues which they believe are disproportionate to the facts. In their words: For instance formaldehyde… is a volatile chemical…no doubt it is used in the textile industry a great deal…but looking for this chemical in end products is an example chasing a ghost…. It has to be put in perspective. I do not know of any citation that a human developed cancer because they wore durable press finished clothing.

Please follow along as I itemize the reasons that we don’t feel the issues are exaggerated.

Textiles are full of chemicals. The chemicals found in fabrics have been deemed to be, even by conservative organizations such as the Swedish government, simply doing us no good – and even harming us in ways ranging from subtle to profound. But fabrics are just one…

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“Smart” Meter Trouble In Paradise

Ok, so the s-meters aren’t smart, and this really isn’t paradise, but this IS supposed to be safer housing for people with environmental sensitivities and there’s an issue here that isn’t getting resolved and could put a third person at risk of serious health harm.

I was hoping I wouldn’t have to write this post, but it has come to my attention that a unit here is being shown to prospective tenants, when that unit should remain empty until the contents of the attached utility cabinet are moved away from the building.

The empty unit is currently unsafe for anyone to live in, never mind someone with environmental “sensitivities”.

I have to warn people, no matter how desperate you may be for chemically safer housing, please DO NOT try to live in the currently vacant bachelor unit here if you value your life! Even if it doesn’t affect you immediately, it will.

utility cabinet attached to bachelor unit wall

utility cabinet attached to bachelor unit wall

Above is the side view of the unit, the little windows on the left are above the sleeping area. A raised glass door technology cabinet divides that area from the “living room” in the front, which is on the other side of the utility cabinet. In the photo below you can see the rest of the living room window and the unit’s front door (taken on an angle from the next yard).

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The Wireless BabySafe Project

A great new resource has been launched to guide mothers and mothers-to-be regarding wireless radiation hazards and safety precautions that need to be taken.

“Most pregnant women understand that they should stay away from cigarette smoke, avoid alcohol and be careful about eating potentially contaminated foods of any kind. The weight of evidence clearly supports the need to protect pregnant women from wireless radiation exposures as well.”

~ Dr. Devra Davis, University of California at Berkeley

Their advice is good for all of us to heed:

ways_to_reduce_wireless_exposure 2More information (including scientific evidence and the above text) is available at

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